Josh F's Page

Latest Activity

Jag1 left a comment for Josh F
"Hi Josh, hope all is going well. I needed an annual eye exam, so decided to try Joslin Beetham for the first time. Its a great facility but I was not impressed with the Dr I got - George Sharuk - his communication skills really sucked (using words I…"
Nov 27, 2013
Stuart joined Josh F's group
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Diabetic Kung Fu

Diabetics who practice Kung fu, or any martial art, that has helped them not only physically but mentally as well. I have studied Wing Chun Kung fu for 12 years here in Boston's China town. It has helped me with circulation and a improved state of mind. I would love to hear your experiences as well.See More
Apr 15, 2013
Marie B left a comment for Josh F
"hi Josh, I don't know if you've seen it, but right now we are needing donations of any amount for our 6th Anniversary birthday campaign. The money is used to primarily to fund our programs and things like the wonderful live chats with…"
Mar 22, 2013
Josh F posted a status
"OTC, Mosaic photos 6 sets, and Flouricine exam. Maculas clear, no ischema, edema, and moderate NPDR in both eyes. Thank you universe."
Mar 7, 2013
Josh F posted a status
"I am seeing new eye dr tomorrow. Scared as hell. Hoping I can stabilize this moderate/severe NPDR and stop having blind spots. Wish me luck."
Mar 6, 2013
Josh F replied to onesaint's discussion 'How do you do it?'
"Onesaint: I have to say I originally saw your posts via your flatlines and was very jealous, but then saw this post and realized you were not one of those lucky people where the control comes easy due to genes but just hard work ;-) I have had T1…"
Mar 5, 2013
Josh F joined Danny's group
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FLATLINERS CLUB

A club to share your successful and not so successful trends (graphs) from your CGM or Glucose Meters....See More
Mar 5, 2013
Josh F replied to Lianna's discussion 'Macular Ischemia' in the group Diabetics With Eye Problems
"You won't go blind per se, young people tend to do better unless the ischema is very bad, and it tends to blur a lot. Even with a total ichemic macula, you would retain most peripheral vision and the other eye if not affected woulf compensate a…"
Mar 5, 2013
Josh F replied to Lianna's discussion 'Macular Ischemia' in the group Diabetics With Eye Problems
"When the blood vessels in the area of the center of the vision begin to drop out or stop working due to poor blood flow. It can sometimes be associated with bad cases of macular edema, but not always. It can be diagnosed by a FA exam, like Dr Wong…"
Mar 5, 2013
Josh F left a comment for Muckie
"Hi Mary, I don't know specifically about Medicare because I am not on that. But please read this, http://kellywpa.com/2012/01/31/cgms-coverage/ as this lady seems to have managed to succeed in getting it covered. It takes a lot of work, but you…"
Mar 5, 2013
Muckie left a comment for Josh F
"HI JOSH , I WOULD LIKE TO KNOW WHAT YOU HAD TO DO TO GET YOUR CGM MONTOR I HAVE BEEN TRYING & THEY TELL ME MEDICARE DOES NOT PAY FOR IT & MY INSURANCE WONT PAY UNLESS MEDICARE PAYS FOR this. I REALLY NEED ONE IF MEDICARE CAN PAY FOR STRIPS…"
Mar 5, 2013
Josh F and julez_79 are now friends
Mar 4, 2013
Jag1 left a comment for Josh F
"Hot button for me too. Advice from recent onset T2 about how easy this is to control ("just follow Bernstein") make me crazy."
Mar 4, 2013
Josh F left a comment for Jag1
"Thanks. Glad to see I did not sound crazy. Just a hot button topic for me. ;)"
Mar 4, 2013
Jag1 left a comment for Josh F
"Ran across your comments on the A1c chart. I've had T1 for 38 years and couldn't agree more."
Mar 4, 2013
Josh F commented on Emily Coles's event 'Live interview with Retina Specialist Randall Wong, MD'
"Oh and I never said I had an easy question to answer, but Dr Wong knows me well haha ;-)"
Mar 1, 2013

Profile Information

The PRIMARY person in my life who has diabetes has
Type 1 or type 1.5 (LADA) diabetes
How do you hope to benefit from TuDiabetes?
Get a grip on the day to day in taking care of myself.
Date diagnosed
August 1, 1980
Most recent HbA1C %, date of result (optional)
6.2
Type of treatment/devices you use
Shots, Diet and Exercise
Tell us more about you (optional)
I have had type 1 since I was 5. I had the highest bloodsugar on record at Joslin at the time (1450) and flatlined 3 times in my life. I have been an average Diabetic. Rebelous in my teenage years and much better when I got into my 20s. I have lived in Japan, and Hong Kong, been to almost every country for my work ( I am a designer for Puma) and paint on the side. Went to RISD for Illustration. That said, I have a HUGE*** fear of vision loss, and have had Background retinopathy for years. Luckily ( knock on wood) I have non clinical significant DME and moderate NPDR, but my fear or PDR has forced me to stop checking the internet for answers and just get my control as tight as possible. I have been going to Joslin all my life, and Have a wonderful Eye dr at Beetham. Maybe it is good genes but my retinopathy has not progressed in 6 years ( when it went from mild to moderate) and I hope it stays that way.( edit: my left eye is now early severe NPDR but hopefully is a transitional change as a result of tightened control as my endo seems to think...I hope) I have yet to have any other complications, and think it has to do with how much I work at my BP and working out, and eating right. I am neurotic by nature, but my diabetes has always been "brittle". I used to be on the pump for 5 years but got burned out and am now combining the CGM with my Levimer and Novalog pens. I think it is a good balance.

What I am finally looking for is a way to meet and talk to others like me. I have always been a loner about my condition and not let it stop me from doing things. In fact I am writing this intro from Vietnam for a work trip. ;-) Anyway, I have the utmost respect for my fellow T1 and T2s. I hope to make some lifelong friends here and learn some things about myself along the way. Feel free to add me. I want to hear from everyone.

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Josh F's Blog

Chasing...even 34 years in

Posted on April 11, 2012 at 7:04am 3 Comments

Last night was terrible.

I have been on the CGM to sort of offset the 20 blood sugars I usually took a day to ensure I was within range. My background retinopathy is at such a point that it seems any deviations above 240 or below 60 cause issues with ischemic spots forming in my eyes.

I am so burned out. Certainly something we have all experienced.

Last night I barely slept. I got up with my Dex beeping at every low and high...I rebounded for 8 hours...only with my fear…

Continue

So not the answer I wanted... but still pushing.

Posted on April 9, 2012 at 10:56am 0 Comments

So I had a theory about a new subtheshold laser therapy they are using for DME as a potential for prevention at a severe NPDR stage: Yeah I know... translation please?... laser that does not cause collateral damage because it works on faster and lower wavelengths which does not cause the underlying Photoreceptors to be destroyed to save central vision by creating oxygen need balance. So I sent this question out to a few key people in the field. Got this response... though not the one I was…

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Comment Wall (62 comments)

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At 3:10pm on November 27, 2013, Jag1 said…

Hi Josh, hope all is going well. I needed an annual eye exam, so decided to try Joslin Beetham for the first time. Its a great facility but I was not impressed with the Dr I got - George Sharuk - his communication skills really sucked (using words I don't know in a casual way and writing nothing down) then he shuffled me out of the office with no info and nothing but an appointment in a year. You mentioned you like your eye doctor - can I ask his name?

At 10:29am on March 22, 2013, Marie B said…

hi Josh, I don't know if you've seen it, but right now we are needing donations of any amount for our 6th Anniversary birthday campaign. The money is used to primarily to fund our programs and things like the wonderful live chats with people like Dr Wong. Please if you haven't already, consider
http://www.tudiabetes.org/forum/topics/let-s-celebrate-tudiabetes-6th-birthday

At 9:11am on March 5, 2013, Muckie said…

HI JOSH , I WOULD LIKE TO KNOW WHAT YOU HAD TO DO TO GET YOUR CGM MONTOR I HAVE BEEN TRYING & THEY TELL ME MEDICARE DOES NOT PAY FOR IT & MY INSURANCE WONT PAY UNLESS MEDICARE PAYS FOR this. I REALLY NEED ONE IF MEDICARE CAN PAY FOR STRIPS WHY CANT THEY PAY FOR A CGM. PLEASE LET ME KNOW WHAT I HAVE TO DO TO GET ONE. THANKS. MARY

At 4:07pm on March 4, 2013, Jag1 said…

Hot button for me too. Advice from recent onset T2 about how easy this is to control ("just follow Bernstein") make me crazy.

At 12:17pm on March 4, 2013, Jag1 said…

Ran across your comments on the A1c chart. I've had T1 for 38 years and couldn't agree more.

At 12:28pm on February 24, 2013, Marie B said…

hi Josh, how are you doing? I wanted to let you know Dr Wong will be live with us on Friday
http://www.tudiabetes.org/events/live-interview-with-retina-specialist-randall-wong-md

If you can't be here with us, you can comment or ask a question on the event page, and, of course, the interview will be recorded so you can watch it later. hope you are well.

At 8:53pm on October 23, 2012, jrtpup said…

Pssst.... pass it on!

I just wanted to stop by to see if you've done your Big Blue Test Today. Dont' forget that every time you log a Big Blue Test $5 is donated to diabetes charities that are providing life-saving supplies and services.

If you haven't yet, go log a Big Blue Test at http://www.bigbluetest.org/. If you have, do another!

At 6:21pm on July 4, 2012, Linda G said…

At 10:03am on April 26, 2012, SF Pete said…

Hi, Josh -- I disappeared for a bit. But I'm working my way back into to mix. If SteveD suggested we connect, it must be a good idea. I'm sorry for the millenium of delay before responding. It's kind of a long story that you would probably not find at all interesting. I look forward to making your acquiantance now that I've resurfaced. :)

At 2:36pm on April 24, 2012, ShelbyH said…

Hi Josh,
Sorry I missed you a couple weeks ago. It was crazy timing you had; I was seeing friends from Diabetic Camp that I had not seen in 20 years! It was super awesome to spend time with them again.

I am catching up now on things. So, I just read your update from earlier this month. DAMN! I am so sorry and bummed that you are going through this and have to deal with such heavy feelings. Sometimes things get a little bit worse before they get better. Perhaps, that is all this is. Hopefully, this is a minor setback, but since you are under better control, things will begin to improve. Good blood sugars can cause improvement. I hope that your new better sugars will cause your eyes to heal, it can happen!

I think that since you are so communicative about it all, it totally helps. Instead of bottling it all up. This illness is a nightmare, honestly. I am trying to go gluten free. But, we all know that changing food means changing everything. I had a bad low in front of a friend and I was p***ed about it. It's not like we can just be nonchalant about anything. It's fracking annoying.

Thanks for keeping in touch. Hope things have mellowed for you since earlier this month.

~Shelby

 
 
 

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