Hello!Do any of you have problems speaking when you are low? Slurred speech or tongue tied type of problems?I ALWAYS get that when I am low, but now I feel it happens now and then when I am not low.…Continue
"Are you still off the pump? Did you find any relief?
I have been on about 1.5 year vacation after being on the pump for 7 years. about 5.5 years into it I started getting terrible reactions and knots at the sites. It caused terrible reactions which…"
"How are you doing now? I was on the pump for 7 years, and about 5.5 years into it I started getting terrible reactions and boils. One time it got so bad, I had to go to urgent care and they gave me antibiotics.
I switched to a different type of…"
":( I am currently going through this. well, I went through it over a year ago and have been giving shots. i want to go back on the pump before I get pregnant again, but nothing works! :( I just want a cure already!"
"I wish I knew! I also get boils from MiniMed sites. I switched to Sure-T (and in my legs mostly) and that helped for awhile. then I kept getting "no delivery" and some irritation, so I went off the pump.
I might try a different brand of…"
"I went off the pump a little over a year ago for similar reasons! I LOVED the pump when it was working correctly with no technical errors. But the pump with the issues I was having was terrible. I would get terrible swelling at my site on my love…"
"I would love to learn more and talk to you about this. I was given a questionnaire I am turning into a University about a pancreas (no kidney) transplant. I do have some complications, and trouble controlling my diabetes. (largely due to the fact I…"
"Me too!! when I am low I often get confused and anxious and feel like everything is moving too fast. (My mom says when I'm low I get whiny too!!)Also my tongue or lower lip will start tingling. I can never read when I'm low either, I just…"
"I am a speech pathologist. The slurred speech . as many of the posters ha e noted, is correlated with impaired motoric functions controlled by our brain, which is not being fed while deprived of glucose. I,too, have some impaired awareness of lows…"
My story started in 5th grade, and just like any other kid, I loved to play outside, run around, and had a wild imagination. Things slowly started changing and these strange symptoms were starting to worry my family and teachers. I started drinking water excessively, which led to frequent bathroom trips. My skin was so dry and dehydrated that I started getting rashes and bleeding from my knuckles. The weeks before my diagnosis, I would take afternoon naps, which was not normal for me. One afternoon while napping in my parent’s room, I wet the bed. Ten years old is too old to wet the bed, and my mom decided to take me to the doctor. It was March 11, 1998. My mom took me in and out of school 3 times that day to get various tests done. I first went to get my urine tested, then pulled out again to get my blood tested, then pulled out once more when the blood results came back. She picked me up from school, and while wiping her tears, said, "It is official, you have Type 1 Diabetes." I might have cried myself if I really understood what it was. In the car I remember asking my mom, "So what happens today? I just have to go home and look for sugar free things in the cabinet?" I thought diabetes was simply a disease where you will be fine if you don’t eat sugar. I did not know how complex it would be.
I was in the hospital for one week. I remember my first insulin shot the nurse gave. The needle was much bigger than the ones I would use at home, and it was in the stomach, which is my least favorite spot to inject. After the shot, I looked at my mom and simply said, “I don’t want to.” We both cried.
My mom and dad were so sincere during this time, and often said if they could take this disease from me they would. I would ask why this happened to me, and they said, “Because you are strong enough to live this life”. I took that as a compliment, and remember that being the first smile related with diabetes.
The first few months of diabetes, was almost fun. It was my “honeymoon stage”, and in a weird way it was new and kind of exciting. That didn’t last too long. I wasn’t bad the next few years, but I was growing, and often found that at times when you do everything you are directed to do, you might still get a high and low sugar reading. I had two low blood sugars at school, which required attention from an ambulance within a few weeks. I was later told that one teacher made ignorant comments about how she wasn’t surprised it happened twice, because I do not take care of myself. That comment made me livid, because those were the days I was trying really hard, and I think that was the start to my rebellious days.
Most diabetics go through a stage where they are too cool for diabetes. I had the theory that if I felt fine, I was fine, so why would I test? It lasted several years, and I had several episodes because of it. I didn’t listen to people trying to help me, because I didn’t feel that anyone understood. I often thought to myself, “Well, let’s see you deal with diabetes, and see how you would do.” My left eye today has a blind spot, which I will never get back, even after having Lasik eye surgery. Ironically, I think losing some sight in my eye is what made me wake up and see how poorly I was treating myself. I just hope that is the worst result from my rebellious days.
Today, I work full time in the administrative field, for a company who offers amazing health benefits. I am active, and often go to the gym. I was married last year, and my doctor gave me the clearance to try for children. My husband and I will be hoping for a baby in the next few years.
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Welcome home Kari... This is a great place to share, to learn, and to grow...all the while meeting new people world wide, and making friends ♥
Take a peek at some the groups when you get a chance. Just go to the top of your page, and click on "Groups".
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Take in some of the blogs/discussions as well.
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Hope you find the support and information you came looking for.
Here is a useful link to get you on your way: http://www.tudiabetes.org/notes
Take care....and keep in touch!
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