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  • ScottD
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Kathy's Discussions

Adult Stem Cell treatment

Started this discussion. Last reply by Jan Dec 2, 2010. 4 Replies

islet cell recipient

Started this discussion. Last reply by Kathy Feb 18, 2009. 49 Replies

 

Kathy's Page

Latest Activity

Kathy is attending Emily Coles's event
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Live interview: Joshua Levy "Map to a Cure for Type 1 Diabetes" at TuDiabetes homepage

November 11, 2014 from 1pm to 2pm
This event already occurred.  Enjoy the recording! Joshua Levy is a Bay Area native who works as a software engineer.  His daughter was diagnosed with type 1 diabetes at the age of 18 months, and is now 13 years old.  Joshua has been blogging for many years about potential cures for T1D, at Current…See More
Nov 10
Kathy replied to Krista B's discussion 'Los Angeles Area Resources for Finding a Rescue Dog to DAD Train' in the group Diabetes Alert Dogs
"I adopted a dog that flunked out of a service dog training agency. I was fostering him, and he failed due to some hip dysplasia. Before this happened, I had been reading a lot on training DADs. I was lucky enough to have one of the trainers from the…"
May 6
Kathy and ScottD are now friends
Jan 29
Kathy might attend Emily Coles's event
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Diabetes Hope Conference at http://www.diabeteshopeconference.com/

May 21, 2013 from 11am to 1pm
While there is no known cure for diabetes, that doesn't mean the diagnosis is hopeless. Join us on May 21 at 11am Central Time, when we convene panelists from the medical, blogger and diabetes community worlds to engage in frank and honest discussions about diabetes. Through the magic of Google Hangouts, we'll live stream both virtual panels and take questions live from the audience via Twitter and the hashtag #dHopeConf. You won't want to miss the first annual …See More
May 20, 2013
Kathy replied to Sweetgirl's discussion 'TRAINING YOUR OWN DIABETIC ALERT DOG' in the group Diabetes Alert Dogs
"There are some places on line that you can get some advice and ask questions. Here is one.. There is also a facebook page called Diabetes Alert Dog talk that is useful. Good luck. It takes awhile, but is very worth it."
Apr 27, 2013
Kathy might attend Emily Coles's event
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Live Interview with Mary McNeight, founder of Diabetic Alert Dog Academy at TuDiabetes homepage

May 2, 2013 from 1pm to 2pm
This event already occurred.  Watch it here! Mary McNeight is the founder of a unique program called Diabetic Alert Dog University.  She is a professional member of the Association of Pet Dog…See More
Apr 21, 2013
Kathy left a comment for Kathy
"My virus, the BK virus, was diagnosed with a kidney biopsy. The biopsy was to determine whether the Prograf was causing my kidney problems, or something else. I really thought it was the Prograf. The virus is finally decreasing in my kidney.…"
Mar 12, 2013

Profile Information

How do you hope to benefit from TuDiabetes?
Meeting people with similar interests.
Date diagnosed
August 1, 1984
Most recent HbA1C %, date of result (optional)
5.4
Type of treatment/devices you use
Diet and Exercise
Enter your website, if any (blog, Facebook, Twitter)
http://kathy-mynewislets.blogspot.com

Kathy's Blog

Islet Cell Transplant at 3 years

Posted on September 2, 2011 at 5:10pm 2 Comments

This year was just as eventful as the first two.



I made it to my 2year anniversary of becoming insulin free on Sept. 19th. Shortly after that, it was decided that I was having too many high blood sugars (>180) after meals and that I should begin using some insulin. It was heartbreaking at first. I was so afraid that I would be on a steady increase of insulin until I was right back to where I was pre-transplant.



But that was not the case. I creeped up to about 8… Continue

2 year anniversary of islet cell transplant

Posted on August 8, 2010 at 7:00am 2 Comments

I recently had my 2 year anniversary of my islet cell transplant. Its been a good and eventful year. Last year at this time, I was recovering from my first CMV infection. I did get over it with the help of the the antiviral Valcyte. Then, in January, I came down with it for the second time. The Valcyte did the trick again and I seem to be rid of it.


I had to give up on the immunosuppressant that had been giving me problems. It caused too many stomach issues and was probably…
Continue

18 Month post-islet cell transplant visit

Posted on January 24, 2010 at 9:58am 0 Comments

I just had my 18 month post-transplant visit to Minneapolis. Things are continuing to go well, My A1c was 5.4. My CBC, lipids, and other tests look good so far. I am still waiting on some results.



I am still getting used to the Cellcept/Prograf meds. I take them with my meals now which has helped my stomach to feel better, but it is more difficult to keep them stable. I get the levels tested at least monthly, and they are rarely the same. Time is helping, but they are still an… Continue

Update on my islet cell transplant

Posted on June 10, 2009 at 12:25pm 1 Comment

I have not posted here for awhile, so I have a lot to write about. I am approaching the one year anniversary of my islet cell transplant and have been having a wonderful and sometimes crazy experience.



I have been off of insulin since September. My blood sugars are near normal. I still get a few highs in the 160-180 range, and surprisingly, a few lows in the 55-65 range. Compared to my numbers a year ago, this is amazing.



I haven't changed either my diet or exercise habits… Continue

new blog address

Posted on December 26, 2008 at 11:44am 0 Comments

I have been posting information on my islet cell transplant at another address.

http://kathy-mynewislets.blogspot.com

please look for me there,

Kathy

Comment Wall (22 comments)

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At 7:26am on March 8, 2013, Kathy said…

Thanks for writing back with the good news.
How was the virus diagnosed? Have your food restrictions been lifted?
I'm doing okay. Was in the hospital for 3 weeks in December for swelling in my arm. Had every test in the book and was seen by 7 special, all who got extremely irritated that they couldn't come up with a diagnosis. But all is okay now and my labs are good. I switched to a to a diuretic called called torsemide, which is working better. Also have been pretty compliant with the sodium restriction, but can still enjoy a nice restaurant meal a couple of times per month. And, thankfully, there are a ton of low sodium websites with great recipes.
Hang tight, sister. All my best to you!!!

At 8:03am on March 7, 2013, Kathy said…

Hey sister. How have you been doing? How's the kidney situation?

At 5:12pm on October 23, 2011, Kathy said…
Hi Kathy - thanks for stopping by.
No, I did not go to the Symposium - but Scott told us about it.
I know that river walk very well - in fact, my nephew who was a student at the U when the 35W bridge collapsed, had been jogging right under it 20 min before it happened.
Let me know next time you come to town. It would be fun to meet you.
At 9:53am on February 17, 2011, dickengel said…
I am jealous - You have had islet cell transplants? How did you manage that? The closest I have gotten to research was the DCCT study in the early 90's wjen I was first introduced to an Insulin pump. It is amazing how things change. I was told about islet cells transplantion (I think encapsulation was the buzzword then) way back in 1979 and have been waiting ever since.
At 9:42am on May 3, 2010, Paige said…
Kathy, I'm going to put time aside to look over your blogs soon. I'm 19 and a type I diabetic of 14 years. I'm really curious as to how you got the offer for the beta islet cell transplants. You make it sounds sooo worthwhile. Let me know how life is going... what the biggest problems are... if you were nervous about the procedures, I'm very interested!
At 7:38am on April 11, 2010, Michelle said…
Kathy,
Hi I had my daughter set me up a facebook page yesterday so I can get on. I am really excited that someone decided to set that up. I now there are quite a few people out there who have maintained insulin independence for a long time and I would like to hear how they are doing. There is not much information out there about long term issues. We just got back from Minnesota on Thur. They had 2 more transplants recently. How are you feeling now that you are off the Cellcept??
At 10:27pm on February 16, 2010, Jim Allison said…
thanks for getting back to me so soon, I just have one more question, now that you've had the transplant your on meds. to stable it correct?
At 12:22pm on February 15, 2010, Jim Allison said…
Sorry didn't mean to sound so " Oh woah is me" cuz I know we all struggle with it.
At 12:21pm on February 15, 2010, Jim Allison said…
Hey Kathy I'm amazed at your story, how could I get one of these transplants. I'm at the point where Diabetes is burning me out and I'm having a really really hard time in my life. I've had it pretty much my whole life and I'm slowing fading from it :(
At 12:05pm on February 10, 2010, FatCatAnna said…
I wish I'd seen your page earlier Kathy! Just saw Ali's posting, and then you had commented that you had it done the procedure as well. Curious, do you still have to test your BG's? So many questions, wish I was sitting across from you talking to you!
Anna from Montreal
 
 
 

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