My 5 year old daughter has type 1 ... and I expressed this same concern with her Endo. Which resulted in her looking at me as if I was crazy..lol She later referred me to call Animas about this issue. But my daughter has EXPERIENCED this…"
"Replying to "Fighting for Stephany", I too was just denied by medicaid for the the CGM! We had a appointment set up and everything. My daughter's doctor called and canceled on the same day she was suppose to get it! I have been having…"
"Free foods: Sunflower seeds have so much fiber they are almost free. Frozen cool whip in one of those 4 gram mini wafter cones. You can also freeze Reddi whip (like this better). These are very low carb icecream substitutes (though high in fat).…"
"Ha ha! Well... there is the usual assortment of cheese, pre-cooked sausage, bacon, but there is also sugar free jello, snack packs of baby carrots (not actually "free", but low enough in carbs that they don't have to dose for it if…"
"All your replies are great.....! I confirmed today with Syeda's NEW (YEAHHHHHH) diatician that it is totally fine for Syeda to snack on turkey bacon, along with hot dogs, cheese sticks, cottage cheese (yuck) and a few others. What a releif!! I…"
"Great A1c; we have the same with higher carb. There are definitely days when she is not hungry (many of them) and she will eat about 100 grams per day. We have noticed her control is much better on 100 grams with little postprandial spike. I…"
"This nurse is incorrect. I don't think your daughter's highs are due to the food she eats but the need for a good pediatric endo to oversee her insulin regime. And the first month or so, my niece was very high because they had her on NPH…"
"Judith, I think we are on the same page. But there is a typo in which you say you hope the endo is not one who "condemns" a low carb diet. I see you meant to use the word "condone." In other words, children are growing and should…"
"I think that as long as she is healthy, then it is fine. My daughter absolutely loves hot dogs straight from the fridge (I know gross). I do however try to provide turkey dogs for her, since her CDE said that quite a few D children tend to have high…"
"I think we all realize that everyones needs are different. We actually had to up our girls carb intake because they both are very competitive swimmers, and do dance etc. They average 1.5 hours vigorous excercise a night. we started on a lower carb,…"
"BEWARE SCHOOL NURSES! they aren't all bad, but they know a little about a lot of things, we do a lot of head nodding with our school nurse, and then the whole staff just does what we the parents recommend, and what the girls endo recommends,…"
"carb101---for variety, if it helps at all--I recently discovered 4-carb pitas freom Joseph's bakery---made with flax and oat bran---I use them as a pizza crust, smear them with almond butter or cream cheese---whatever!......"
You asked a while back about eating in between meals . . .Willow is actually able to eat anything at any time - we just bolus. The pump really helps with that. When we were still doing shots it was much more important to keep her on a strict eating schedule. Not sure if you have thought about the pump - but it really helps with in between snacks and meals. Oh and Willow is 8. Hope you are well! Sorry it took me so long to respond to your question. :)
What kind of pump did she go with? Avery is on the minimed 522 pump. I looked into the omnipod and i had a sample sent to me in the mail for my son to try. I just thought it was so big for his little body. The site he has now is very little. I know he has to carry the pump with him but i have the clip on it and he wears it in the back of his pants. Out of sight out of mind right... I always lock it out, but he really never touches it. His diabetes has been alot better controlled and they have more of there life back. I hope your daughter does good. Let me know what she thinks about it. Take care!
Hi, Sorry that i haven't got back with you sooner. We just bought a new home. That's crazy our children were diagnosed only 3 days apart. Scariest time of my life. I hope you are doing good. Avery's recent A1c was 8.7 BG ave was 207. We've been pumping now for the past month and half. He has a minimed 522 pump. I'm waiting for my doctors ok to get the monotoring system. She wanted to give us time to learn the pump first. Luckily for me my younger sister who is 27 also has the minimed pump. So i was programming hers and changing sites for several months before Avery got his. So far Avery has done really good. The highest BG was 500, and his lowest was 40. Thank God we've only had that happen a couple times. I was worried getting the pump. He has a little brother that is only 4 and i thought he would play with it when i wasn't looking. But he never has and Avery doesn't seem to even realize it's there. The pump has been great for Avery. He love's to eat and now he can eat more when he wants instead of sticking to a schedule. It's still so painful to think that this has happened. I've had a hard time, i find myself asking WHY. But i try to focus on one day at a time. That's really all we can do. Let me know how things are going for you guys. Take Care rememeber your not Alone.
Hi Keyanna and Syeda,
Well, just wanted to let you knowits been 2 weeks now that Johnny's been on the pump and its going really well for the most part. I was a nervous wreck the first day(tried not to show it), but everything was fine. The first 3 days were felt like when we first brought Johnny home after diagnosis. We had to do middle of the night checks and many checks during the day. He did have some bad lows because of the sensitivity to only having the Humalog.We followed the nurses directions very closely so we could get the basal rates set and his i:c ratios as well. There were many adjustments. The only advice I'd have is to ask your Diabetic nurse exactly what kind of diet Syeda should have the first 3 days. Our nurse told us the ideal diet (to better narrow the basal and i:c numbers). I thought this would be hard (pasta was off the menu and no snacks b/w meals), but Johnny was really compliant, so this helped to get his numbers quickly. After about a week, she said we were doing great and didn't have to call in his daily BG numbers anymore. We're getting the hang of it and made some adjustments ourselves. Now we're waiting to get the Continous Glucose Sensor hooked up on him. This will give us better control of his numbers. Hopefully. Well, just thought I'd share our experience thus far. I wish you two a good start!!
Hi Keyanna & Syeda!! Looks like we're in the same "boat". My son Johnny was diagnosed Jan 22, 2009. He'll be 10 in July. What a whirlwind 5 months its been!! I'm sure you can relate. We're starting him on the insulin pump next Thursday. Actually, he's wearing it right now with saline running through for training. We're excited (and nervous), but hoping that the pump will help keep a tighter control of his numbers. Please share your story of starting Keyanna on the pump and I will too!!
Hi - Sorry to hear about the diagnosis. Will is now 3.5 years old and is doing great. I think the biggest change from shots to pump is that the basal dosage is more constant and calculated exactly for your child. The only pump we've ever used is the OmniPod and we chose it specifically because of the lack of tubing. It hardly bothers him. Sometimes, if it gets a direct hit, yes, it can hurt, but other than that, he hardly notices it. Don't worry about the highs - in the beginning (even the lows) are normal. It takes a while to figure out how to manage your specific child. The pump really gave us more control. We now only test Will at night if he's sick (no more 2 a.m. checks!!) He hardly ever has any lows, and highs happen if we miscalculate the carbs. But its so much easier to bring down a high with the pump - increase basal and give a larger dose of insulin.
The Diabetes Hands Foundation and Diabetes Advocates Program is proud to announce and congratulate the members of DA who were granted scholarships to attend diabetes conferences in 2013! Thanks to a generous grant from Novo Nordisk, in 2013 we were … Continue Reading
El Centro Nacional de Prevención de Enfermedades Crónicas y Promoción de la Salud en el Estados Unidos encontró que a partir de 2002-2009, el 11,8% de los hispanos mayores de 20 años, que viven en los EU, viven con diabetes … Continue Reading