Our Madeline

Latest Activity

Nina left a comment for Kirsten Hamiltion
"Kirsten, Congratulations! What cute pictures, I just showed them to my son, he has the silver Animas pump. He thought it was cool that you live in Australia. One good thing about the Animas, it has the very smallest doses available. We have…"
Feb 14, 2009
Justin Turner left a comment for Kirsten Hamiltion
"HI ITS ME JUSTIN COMMENTING BACK. I LIVE IN SOUTHERN CALIFORNIA IN THE US AND I HAVE TYPE ONE."
Feb 12, 2009
Gina left a comment for Kirsten Hamiltion
"Hi Kirsten, I'm glad to have some news of you and Madeline! It's fun not to to give shots anymore (well mostly never ;) there are times when emergency called for shots, but the thing I do is I give the shot and disconnect the pump and give…"
Feb 11, 2009
Kelly Rawlings replied to Kirsten Hamiltion's discussion 'Serve Hypo.... Have you had one? Have you ever had to give the glucagon injection?'
"Thanks! I mis-read your earlier post."
Feb 10, 2009
Mandy replied to Kirsten Hamiltion's discussion 'Serve Hypo.... Have you had one? Have you ever had to give the glucagon injection?'
"You don't want it to slow absorption. That's why I recommend cake GEL instead of cake ICING. The gel does not have the fat that the icing has, and therefore enters the blood stream faster. Other than that gels are cheaper, and smaller to…"
Feb 10, 2009
Kelly Rawlings replied to Kirsten Hamiltion's discussion 'Serve Hypo.... Have you had one? Have you ever had to give the glucagon injection?'
"Why, with a severe low, would you want to slow the absorption of the glucose? But, if a parent can get a child with diabetes to take cake gel when she won't/can't take a glucose gel, liquid, or tab, then that's a good thing."
Feb 10, 2009
Mandy replied to Kirsten Hamiltion's discussion 'Serve Hypo.... Have you had one? Have you ever had to give the glucagon injection?'
"That's Awesome!"
Feb 10, 2009
Cody Turner replied to Kirsten Hamiltion's discussion 'Serve Hypo.... Have you had one? Have you ever had to give the glucagon injection?'
"I get the flourescent cake gel. One day I was at my dr's office and had a low and all I had with me was hot pink. He came in the examing room and my whole mouth was bright pink. He said I looked like I was a vampire that had just bit someone."
Feb 10, 2009

Profile Information

Date diagnosed
August 17, 2008
Most recent HbA1C %, date of result (optional)
8.3
Type of treatment/devices you use
Pump
What pump model do you use, if any?
Animas 2020
Enter your website, if any (blog, Facebook, Twitter)
http://walk.jdrf.org.au/NSW/MadelineHamilton/

Kirsten Hamiltion's Photos

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Comment Wall (38 comments)

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At 8:02pm on February 21, 2010, Gina said…
Kirsten, how time flies! It's been a year! Do you still visit tudiabetes? I was wondering how your family and Madeline are doing! I hope that life is good for you! Madeline loves hew pink pump (is it still pink - we changed colors 3 times)?

As for us, we had an answer last year about my son's stomach pains, it's called mesenteric adenitis, at least we have a name to his pain but took a long time to find some kind of relief. There is nothing they can do medically speaking. This last episode has lasted since beginning of December. It usually starts in the afternoon until nighttime, extreme stomach pains, turns white, his BGs are fine, has nausea, sometimes cries because it hurts too much. No drugs would help (tylenol, advil, motrin...).

We were fortunate enough to find a doctor that also has training in natural medicine and she suggested some homeopathic drops for him to try and found some relief after almost 3 months of pain. We were desperate for something to help him cope with this. My father at Christmas was mad (that's how he expressed his sadness) to see my son crying in pain and not being able to eat XMas dinner.

But now, let's hope only good stuff ahead!!!

Hope to hear from you!!!

Take care, -- Gina
At 2:37pm on February 14, 2009, Nina said…
Kirsten,
Congratulations! What cute pictures, I just showed them to my son, he has the silver Animas pump. He thought it was cool that you live in Australia.

One good thing about the Animas, it has the very smallest doses available. We have adjusted Alden's basal dose to drop down to .025 units/hour from 7:00 pm to 7:00 am, and it has made a real difference. Now he wakes up with decent numbers, before he actually had to go to bed high and would wake up in the 90s (his target GB is 130). I'm very impressed that infusion set changes are going well, and that she's testing her BG. These kids are tough, aren't they? We still have some issues with the set changes, but it is getting better.

The wildfires look very scary. It's been all over the news here. I hope you are not close to any of it. I've not been on line for a while because life/work has been all-consuming. We laid off more people at our firm, and I have just been offered a new job! I've been at the same place for 10 years and it will be hard to leave, but my husband and I work together and we just don't feel that in this economic climate it is safe for us to be at the same firm. Also, my new job will be 5 minutes from our house and the kid's school (instead of 30). The peace of mind alone that I will have knowing that if something comes up with Alden I'm right there during the day is worth it. I'm a little on pins and needles about telling my current employer and settling into a new place, but I'm sure it will be a good change.

Good to hear from you, take care, Nina.
At 4:37pm on February 12, 2009, Justin Turner said…
HI ITS ME JUSTIN COMMENTING BACK. I LIVE IN SOUTHERN CALIFORNIA IN THE US AND I HAVE TYPE ONE.
At 6:11pm on February 11, 2009, Gina said…
Hi Kirsten, I'm glad to have some news of you and Madeline! It's fun not to to give shots anymore (well mostly never ;) there are times when emergency called for shots, but the thing I do is I give the shot and disconnect the pump and give a bolus for the same amount, so it follows the Insulin on Board for future corrections or meals).

Having the pump is like starting over in some sense. It gives so much freedom, but when we have to adjust the basal rates, it can be tiring sometimes (especially during the night). I remember that for a month straight, I would get up twice during the night, not because the doctor said so, it was to be sure he was alright and I almost broke down. I had to work full time, that didn't help.

For the last 6 months, hubby is working night shift, he comes home at 1:00 AM, so I do one before his bedtime and one before mine and hubby does one to 2 during the night. It depends if he's low or high. At least, that works out good for us, but before that I relaxed a lot on the nighttime testing.

I can understand why people like the CGMS so much. Where I live, they don't promote that technology that much, but it is one of the questions I want to ask the endo this month. I wouldn't use it all the time, just when adjustments are needed it would be so helpful to see how his BG fluctuates...

I am not sure that skipping honeymooning is such a bad thing! I'm saying that because for us, it was a hard time. Having no clue when his remaining living (but dying) insulin cells would want to quick some insulin in more than usual and his BG would be so unpredictable. But you know, it isn't simple either way I am sure.

You're doing a great job!!! It takes courage to fight like you did for the pump and it's paying off quite well!!! I hope that you are proud of yourself, you should!!!

It must be so amazing to see Madeline doing her own testing, wow that is great! 3 years old and already testing herself, I'm s impressed!

I am doing good and my son also. We are having trouble with the weekday/weekend transitions, especially the one when it's his first day of school, he's usually high all morning, but fine after. During the week, we send him 2 snacks and his lunch. We put up the basal rates higher than the weekend because he eats his snacks and the excess covers his snacks. During the weekend, if he has a snack, I give a bolus. Since his weekdays basals are higher, than we have to reduced the carb/insulin ratios (to receive less insulin), so the carb/insulin ratios for the weekend are higher (he receives more insulin for his carbs). On Fridays, I put the carb/ratios for the weekend and the basal rates for the weekend.

I am sure we will figure the transitions better soon. It was fine before Christmas, so I know it's possible ;)

I started a work contract until the end of May, I am wondering if I'm not going to take the summer off. Here we have "day camps" they call it, for kids between 5 and 12 and the staff are teens finding summer jobs. I am worried about how they could take care of my son... I was thinking of maybe putting and add saying that I could take in a D child for the summer days. Those are just thoughts, I still don't know what I'm going to do.

I'm going to finish my novel here ;)

Take care, I'm happy that you keep in touch!

Gina
At 1:02pm on January 22, 2009, Gina said…
Hi Kirsten, it's me again ;) the endo called my back today and my son doesn't have celiac, what a relief! She says that if the pain keeps being regular, she will have him do more tests in February and even referrer him to a specialist (gastro something?). I don't know if it's that specialist that is going to do the weird h pylori test or not, we'll see.
At 7:52pm on January 21, 2009, Gina said…
Hi Kirsten, you must be so happy that the pump day is coming next Tuesday! I remember that we had to put the infusion set ourselves at the hospital and we were sooooooooo nervous (we do it manually). But after changing them a few times, the nervousness subsides.

Good luck!!!
At 6:34pm on January 17, 2009, Gina said…
Hi Kirsten, after more than one year on the pump, we are still using the Emla cream 1 hour prior the insertion, for him it works well. The thing is we are using and angled manual infusion set, so it takes more than one second for it to be in place like the automatic ones... That is why we are using it.

Glad to hear that the tummy trouble are gone!!! That must be a relief!

It's going to be a great improvement from 6 shots per day to one every 2-3 days!!!

Changing to the pump, it felt like having D all over again at first. So much to learn and lots of things we were thought that don't work anymore with the pump... And our son's adjustment to this also (scared for a whole month of the site changes). But after that initial first month, it's more work than injections but the freedom it brings is sooooooo nice!

I'll be thinking of you on the 27th ;) Good luck to the whole family!!!

Gina
At 6:19am on January 17, 2009, Nina said…
Kirsten, congratulation on the pump. Don't get discouraged if all the new information seems a little overwhelming at first, you'll get it! The pump really has changed our lives. It looks like you are getting good advice from others. Changing the infusion sets has really been the toughest part for my son, and I certainly don't blame him! The Emla cream did not work for Alden. It could have been psychological, but regardless, he said it didn't numb him. We use that trusty ice cube ... whatever works. Good luck, I'll be thinking of you. Nina.
At 8:36pm on January 12, 2009, Gina said…
Hi Kirsten! I am very glad to hear from you!!! Happy New Year to you and your family! I am glad that you went up the (ridiculous) pump list, congrats!!! You must be happy and relieved and anxious.

I am sorry to hear that you had trouble over the Holidays though. I can imagine that a severe low must be scary, we had none in 4 years, knock on wood ;) He had a real low, that the meter said LO instead of saying a number (somebody told me it's 1.1 mmol or less for our meter), but he was still standing and talking!

It must have been stressful to give the glucagon! Even if we're trained, it's still stressful and we don't want to do any mistakes. I carry one when we go out and we carry also a glucose gel (InstaGlucose). Lucky that she wasn't sick after the glucagon shot. A mom once told me that her son would get sick after and that they had to go to the hospital for dehydration (he was a soccer - foot for you?- fanatic) and she said that the next times that a real low happened, they tried the insta gel and that it did the job. I have not tried it either, it slipped my mind when my son was really low and I used the glucose tablets instead of the gel.

My son's bg were really too high the first week and a half of the Holidays, but with lots of basal and ratios adjustments, it was fine and since he went back to school, we had grad numbers (cross our fingers that it will stay that way... I know it's wishful thinking, I want to have hope ;) ).

During that time, his stomach pains returned and after searching a lot on the web, I decided I would be some medications to rule out some of the probable causes. I bought Lactaid in case that he is lactose intolerant. We tried them once and his stomach still hurt, so we know it's not that. I bought "anti-gas" chewable meds because this summer when at hospital for the pain, they did an x-ray and said that it hurt because of "gas". When he takes one, he has no stomach pains after eating, so I am wondering if we found the problem?

They said at the hospital that he needed to eat more fiber, so I add a high-fiber cereal to his regular cereal in the morning and I am hopping that will help.

Give me some news of the pump!!! Can't wait! Good luck!

Your friend, Gina
At 7:04am on December 14, 2008, Gina said…
Hi Kirsten, thanks for your message. Congrats on the test results! You must feel a weight has been lifted off of your shoulders!

Is it a coincidence that she is doing better with no gluten?

I have to call the hospital to find out if the Celiac test was negative, if it is, we will do the h pylori test after (she says that it's not a fun test to do, I don't know in which way it's not fun... Are some test fun?).

Hope that you can have access to a pump earlier than June, that's a bit far away in time... Your country has a funny way of doing things with D, but I heard a weird story from the UK (about the pump also)...

We had a day last week that my son's BGs were between 5.0 and 7.0 all day (which is pretty darn good) but 2 days before he woke up at 21.0 (I think the first in 4 years with D) and to try to lower his BG down, I gave him a shot (just to be sure it wasn't the infusion site going) and it didn't do much either, so I think it was a "hard day". Never experienced a day like that before. I've read of them...

Hope that you and your family will have a nice Christmas and a Happy New Year (in case we don't talk until then)!!!

Best of luck! -- Gina
 
 
 

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