TuDiabetes - A Community for People Touched by Diabetes

Marina C
  • Female
  • Minneapolis, MN
  • United States
Share 

Marina C's Friends

Marina C's Groups

Marina C's Discussions

 

Marina C's Page

Latest Activity

Marina: I am having good luck with 3-Ms Medipore tape. It is porous and does not cause any skin irritation. I simply apply a short strip of it over the sensor/transmitter unit after I have inserted the new sensor and it keeps the sensor/transmitte...
August 1
July 31
For us it is an insurance issue also. If DN's Mom changes jobs at some point, she may have a different insurance company. We had to fight to get the sensors, but they are not covered by most insurance. But to pull a perfectly working sensor on Day...
July 31
Go longer than seven days because if we have a sensor that is reading really well, we are hesitant to remove it. Generally, the first day the sensor does not read well. After that, we still do not have 90 percent coverage, I would say about 75 per...
July 30
I'm not sure about expecting a full two weeks in an active young teen. When they fail, they go pretty quick-- so discard at the first hint of extended "fuzziness", or failure to take a calibration and show a reading quickly. (Give it just TWO chan...
July 30
Jan, what is the reason to go longer than 7 days?
July 30
Just lost a beautifully working 10 day old sensor, Grrr. DN pulled it off accidentally and it was hanging by a thread. Did not have the IV 3000 dressing over it, but used the skin tac putting it on. Waiting for our Oppsite Flexifix order (thank yo...
July 30
IV Prep, doesn't that also have, in addition to alcohol, a sticky sort of substance? I can feel a slight tackiness after wiping. The Prep helps hold the infusion set, helps adhere. It is not as sticky as the Skin Tac, just slightly so. I will have...
July 21
Hey, Rick, we are only on our second sensor, LOL. That is what the Rep did for our first one, wipe Skin tac around the edges of the outside of the sensor tape, and she told us we could put IV 3000 dressing over it (cutting a hole for the sensor). ...
July 16
Hi Marine - I put waterproof tape (found in bandage section in store) on top of the tape portion of the sensor, making sure I do not cover the sensor. It is fine for th eshower and even a swimming pool.
July 16
Marina C and Ken are now friends
July 6
I get the out of range signals too, even when the receiver is right next to me. I find it really weird!
July 3
thank you so much for the advice! can you get skin prep locally or do you have to buy from a Diabetes supplier online?
July 3
L2r4J, I'm glad you find my advice! Alcohol swab plus "IV Prep" is simply redundant: Their both disinfectants (and in fact, "IV Prep" *is* a 70% IPA disinfectant wipe, with just some small amounts of other stuff added). Throw away the handed-out...
July 2
Jan, you lost me strange wording: "IV Prep 3000 tape". "I.V. Prep" and "I.V. 3000" exist, but there's no such thing as IV Prep 3000". As I described above -- I have the impression that most PWDs who have tried both "IV 3000" AND "flexifix" for Sen...
July 2
I am cleaning my sugar real estate with an alcohol swab and then I use one of my IV Prep swabs (given to me by my Animas Ping supplier) to prep the area. After inserting my Sensor, I use the IV 3000 with Frame Delivery (also given to me by my Anim...
July 1

Profile Information

Hometown (where you come from):
Minneapolis
Do you have diabetes?
Yes
Type of diabetes
Type 1
Date diagnosed
January 12, 2009
Most recent A1C (Blood Glucose Average) Value
7.9
What glucose meter do you use?
OneTouch Ultra 2
Type of treatment you use
Pump
What pump model do you use, if any?
Omnipod
What do you expect from TuDiabetes?
comradery, advice, understanding
How did you find out about us? What were you searching for?
Diabetes blogs; social networking sites for Diabetics and people who have undergone total pancreatectomies like me. So far ice only found a Yahoo group for the latter!
What do you do for a living?
recently laid off (interactive marketing manager); serving and nannying currently

My Diabetes Story

I originally was diagnosed with Type 2 Diabetes in the summer of 2008. However, I have had chronic pancreatitis since I was 14 and in January of 2009 finally decided to go through with a total pancreatectomy (getting my pancreas removed) and auto-islet cell transplant. The surgeon during an auto-islet transplant takes all the islet cells he can from my pancreas and harvests them to transplant them into my liver. If successful, the auto-islet cell transplant would allow my liver to grow islet cells which would create insulin and they could live there instead of my pancreas and I wouldn't have to be diabetic. However, I waited too long to go through with the surgery (I should have had it 3 or 4 years ago) and they couldn't salvage enough islet cells (10k when typical is 300-700k... ouch!) so I am now a Type 1 Diabetic.

It is a struggle learning to deal with Type 1. I had a much easier time with Type 2, and even though I was on a stricter diet I didn't have to deal with insulin shots and hypoglycemia. I have a tough time dealing with the lows, and counting carbs, and am thinking about a pancreas transplant. I cannot get one for a year, so perhaps once I go on the pump and get a CGMS (was recently denied because they said I needed to be a pumper, but I just got my Omnipod so it's in appeal) I will be stable enough and am able to manage the Diabetes where I won't have to have another drastic surgery. I am at this point leaning towards the transplant, but only time will tell!

Update June 10th: I am living an easier life now that I'm pumping! I love my Omnipod and have received my Dexcom system, but am waiting for the training next week. I have to admit it's been sitting here for at least a month but have been so busy I haven't been able to get the training in! I am hoping it will help with the spikes though and improve my A1C!

Marina C's Photos

Loading…

Marina C's Blog

Marina C

bad day chasing high bg's all day

So today started off fine, woke up with bg at 97, but that did not last long because I had a mixed meal test at the University of MN Medical Center to test my C-peptides and how much insulin I was making (if any). I am an ongoing participant in a study at the U because I had a full pancreatectomy (removed my pancreas) due to pancreatitis since age 14. I had an auto-islet cell transplant but they were only able to get 10k islet cells and normal is 300-700k so I am in the 10% of people whose trans… Continue

Posted on April 28, 2009 at 7:09pm — 5 Comments

Marina C

Denied!

Today I got a call from Edge Park saying I was denied by my insurance company for a Dexcom CGM. On account of me not being on a pump! However, if my insurance company APPROVED my Omnipod and I already have it (but can't start it yet unfortunately due to training and my schedule- but THEY don't know that!) then wouldn't they know that I AM on a pump??? This is a little ridiculous to me. So we have to appeal my claim once I start on the Omnipod- I'm not sure whey Edge Park just can't go back and s… Continue

Posted on April 27, 2009 at 9:53pm — 10 Comments

Marina C

My trip to San Diego/LA......

Was great!! I was very, very nervous that my Diabetes would prevent me from enjoying my trip (this was the first trip on my own, without my boyfriend to help me with everything since I've been diagnosed with Type 1), and would impede my activities and everything, but it wasn't that bad. I originally was supposed to start my Omnipod the day before the trip, but my CDE didn't want to risk anything bad happening or me not being able to come in to adjust things while I was gone so my new training is… Continue

Posted on April 26, 2009 at 7:43pm — 2 Comments

Marina C

Blood glucose meter differences- ugh!

So I got my new Omnipod the other day- whoot whoot! But I can't use it yet until I've had my training on it and that is next week (bummer). Anyway it came with a Freestyle Flash meter and I currently use a OneTouch Ultra 2 so I decided to test them side by side at different times to see if they were so different.
They couldn't be more different! The OneTouch Ultra 2 is always lower than the Freestyle Flash usually by at least 20 points. I've had 20, 40, 60, and even 90 points of difference from… Continue

Posted on April 14, 2009 at 10:17pm — 4 Comments

Marina C

Approved!

Hooray! Today I got a call from Omnipod saying that my insurance approved my request for their system! And the best news is that I am covered at 100% because due to my surgery in January, I met my out of pocket max this year (bad that I met it in January already but good that I'm done paying) so everything including the pods, insulin, and strips are going to be covered. So up next is that I have to set up an appointment with an educator. I was hoping that I could bring it to my appointment with… Continue

Posted on April 7, 2009 at 8:10pm — 2 Comments

Comment Wall (28 comments)

You need to be a member of TuDiabetes - A Community for People Touched by Diabetes to add comments!

Join this social network

At 2:48am on November 7, 2009, Sohair Abdel-Rahman said…
Happy Birthday to you,wish you happy life
At 1:00pm on July 31, 2009, 3BoysMom said…
Just wondered how the Omnipod was going on your end? Things are pretty good here. I am still tweaking, my first A1C since the pod was at 7.7 and I was really hoping it would have improved more. I have been having a lot of post dinner spikes. I also just read in Pumping Insulin that I should wait 20 mins after a bolus to eat. I never knew that. Hopefully knowing that will help some. Anyways how r u?
At 3:50pm on June 20, 2009, Christina said…
Image and video hosting by TinyPic
At 7:25am on June 12, 2009, Kelly Schwebach said…
I am thinking of the pump. The funny thing is I have had three different doctors discourage it. Is it a lot of work calibrating and cleaning? Are the supplies a lot more expensive.

Have you found it harder to work out now that you have diabetes? It is interesting because it is hard for me to really remember life before diabetes. I love to be active but sometimes it seriously works against me. I go low in blood sugar easily and when I run a little bit higher in blood sugar before I work out I feel really terrible. Do ever experience this?
At 9:04am on June 11, 2009, Christina said…

Myspace Layouts
At 2:04pm on June 10, 2009, 3BoysMom said…
Going well. I am having a lot of highs again this week, week before period. Sucks!!! Otherwise I have had minimal issues. I have been able to exercise now and have been watching my diet for the past month or so. I think I have lost around 4 pds. Yippee, only 21 more to go and that would still put me at a weight higher than when I was diagnosed. I am just trying to be realistic. Ugh!!! The joys of being diabetic. As far as the PDM goes, yeah it sucks!! I had to pay the upgrade too but I knew they were going to be more expensive if I waited.
At 4:56pm on May 27, 2009, Christina said…

Love And Hugs
Grab a Funny Picture from pYzam.com

At 1:49pm on May 16, 2009, Christina said…
Myspace Layouts
Myspace Layouts
At 11:03am on May 5, 2009, Christina said…
Myspace Layouts
Myspace Layouts
At 8:46am on May 1, 2009, Kelly Schwebach said…
It seems like second nature now. I have had Diabetes for longer than I didn't have it. It is a struggle. You always have to think about what your eating.

Alyssa probably knows more than diabetes than most people since she was my roommate.

Have you had trouble with drinking and low blood sugar? Sometimes you can confuse the two. I tend never to drink really sugary drinks because mixing extra insulin and alcohol can make for a bad combination.

How did you meet Nicole and Alyssa?
 
 

© 2009   Created by Diabetes Hands Foundation, P.O. Box 9421, Berkeley, CA 94709.
Diabetes Hands Foundation (DHF) is a 501(c)(3) nonprofit. Donations to DHF are eligible to be deducted.

Disclaimer
The contents of TuDiabetes is for informational purposes only and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition, including without limitation diabetes. Never disregard professional medical advice or delay in seeking it because of something you have read on TuDiabetes.

If you think you may have a medical emergency, call your doctor or 911 immediately. The Diabetes Hands Foundation does not endorse any specific tests, physicians, products, services, procedures, opinions, or other information that are advertised or mentioned on the web site.


TuDiabetes®, TuDiabetes.org®, Word in Your Hand™, Drawing Diabetes™, Diabetes Supplies Art™ and No-Sugar Added Poetry™ are trademarks or registered trademarks of the Diabetes Hands Foundation.

Badges  |  Contact Us  |  Privacy  |  Terms of Service