Mary Jo
  • Female
  • College Station, TX
  • United States
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  • Emily Coles
  • Rosemary Ekeng

Mary Jo's Discussions

Medicare and Type 1

Started this discussion. Last reply by Zoe Jun 24. 5 Replies

I have been a Type 1 since long before they ever called it that. It's been 54 years now. Through no choice of my own, I have just learned that I am now on Medicare Parts A and B. This happened…Continue

Irritation around CMG site

Started this discussion. Last reply by Mary Jo Jan 28, 2013. 6 Replies

I have been pumping a little over a year now. I love the improvements in control and the alerts and info provided by the CGM. I have no trouble with the skin around the infusion site, but have had…Continue

Social Security disability hearing

Started this discussion. Last reply by Betty J Oct 7, 2012. 8 Replies

I am looking for others who have undergone an Administrative Law Judge hearing in conjunction with a Social Security disability claim related to legal blindness as a complication of Type 1 diabetes.…Continue

Tags: Security, Social

 

Mary Jo's Page

Latest Activity

Mary Jo replied to Emily Coles's discussion 'Consensus Conference on glucose monitoring, patient input needed!'
"I was recently put into Medicare by my "friends" at the Social Security Administration andcwas stunned to learn that my CGM sensors aren't covered. An insulin pump and CGM have been true lifesavers for me. I am a recent widow who…"
Aug 3
Zoe replied to Mary Jo's discussion 'Medicare and Type 1'
"Definitely sounds like a winner, and one which it would be hard to give up!"
Jun 24
Mary Jo replied to Mary Jo's discussion 'Medicare and Type 1'
"Except I really like my endo (and really dislike the other "best" endo in our town). This is the first time I've ever had an endo who is actually a Type 1 and is married to a Type 1, who is also one of his office nurses, a CDE, helps…"
Jun 24
Mary Jo replied to 明けてく空's discussion 'Highs vs. Lows'
"Highs are easier to correct, at least for me. In the 54 years I've been a Type 1 I have only been hospitalized ONCE for a high, but have ended up in the ER many more times for lows. After 54 years I have hypoglycemia unawareness and have found…"
Jun 24
Zoe replied to Mary Jo's discussion 'Medicare and Type 1'
"The blood sugar logs aren't something they expect you to have on hand, but they give you enough time to do 30 days of logs and a form to do it on, then you submit it to your doctor, and he puts it in your file. I don't know how that…"
Jun 24
Mary Jo replied to Mary Jo's discussion 'Medicare and Type 1'
"Thanks for the insights. Under my current prescription plan (my employer's, offered through Blue Cross/Blue Shield of Texas, I have to get ALL my pump and CGM supplies through Liberty Medical, but I get my insulin from my local pharmacy. First…"
Jun 24
Zoe replied to Mary Jo's discussion 'Medicare and Type 1'
"Hi Mary Jo! I just started medicare last November so it's all pretty fresh. I have an integrated form of insurance that combines Anthem with Medicare and ends up with excellent coverage. (meds same as they were before which was pretty good,…"
Jun 24
Mary Jo posted a discussion

Medicare and Type 1

I have been a Type 1 since long before they ever called it that. It's been 54 years now. Through no choice of my own, I have just learned that I am now on Medicare Parts A and B. This happened because I, at 61, get Social Security disability funds based on the fact that I am legally blind (very little peripheral vision). I will keep the prescription drug benefit offered by my former employer, but Medicare is to be my primary coverage. It seems to me I've read and heard all sorts of stories…See More
Jun 24
Mary Jo updated their profile
Mar 11
Mary Jo is attending Emily Coles's event
Thumbnail

Live interview with Gary Scheiner about his new book "Until There Is a Cure: The Latest and Greatest in Diabetes Self-Care" at TuDiabetes homepage

May 30, 2013 from 1pm to 2pm
This event has already occurred, but you can still watch it here! Gary is a certified diabetes educator, insulin-pump and continuous glucose monitor user and trainer, and Masters-level exercise physiologist.  He serves on the advisory boards of several diabetes device manufacturers and pharmaceutical companies; volunteers for the Juvenile Diabetes Research Foundation, Diabetes…See More
May 30, 2013
Mary Jo and Rosemary Ekeng are now friends
Feb 12, 2013
Mary Jo replied to Ayomideji's discussion 'Your Reaction to Inexperience Doctors.'
"I am a type 1 close to 60 who has had diabetes since I was 7. Over the years I have had experiences with several specialists who have really shown their lack of knowledge. One was a dermatologist who suggested that maybe if I lost 20 pounds I…"
Jan 31, 2013
Mary Jo replied to Jen's discussion 'What percent?'
"88%. I'm almost 60 and was diagnosed at 7. And I must have been low during the days at school when they taught how to do percentages because I still can't figure them easily,"
Jan 31, 2013
Mary Jo replied to Mary Jo's discussion 'Irritation around CMG site'
"Thanks. My problem isn't around the sensor itself, it is strictly with the film used to cover it. I will, however, talk about the inhaler when I see my endo in March."
Jan 28, 2013
Mary Jo replied to Mary Jo's discussion 'Irritation around CMG site'
"My internist, my endo and my CDE (my endo's wife, both Type 1s themselves) all agree that it is probably an allergy. I can take a Benedryl and knock myself out, I can take a hydroxyz and the same thing happens, or I can take half a pill, which…"
Jan 28, 2013
Mary Jo replied to Mary Jo's discussion 'Irritation around CMG site'
"Thanks for the suggestion about no barrier wipes. Those were the first thing my team added when the itching started last year. And I must admit I have given some thought to only using the film when showering (and then being very careful that I…"
Jan 28, 2013

Profile Information

The PRIMARY person in my life who has diabetes is
me
The PRIMARY person in my life who has diabetes has
Type 1 or type 1.5 (LADA) diabetes
How do you hope to benefit from TuDiabetes?
My CDE mentioned the site on Facebook (and a poetry contest) and I joined the check the site out.
Date diagnosed
January 20, 1960
Most recent HbA1C %, date of result (optional)
6.2 on Medtronic charts in early April; 7.9 in December 2011
Type of treatment/devices you use
Pump, CGM
What pump model do you use, if any?
Medtronic 730G
Tell us more about you (optional)
I'm a recent widow who went on the pump/CGM in January of 2012. I was worried about "old dogs" and "new tricks" (you know how that saying goes), but I've really caught on now. Have recently switched from Medtronic 723 to Medtronic 730G and absolutely love the new threshold suspend.

Comment Wall (8 comments)

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At 10:29am on April 21, 2012, catlover said…

HI Mary Jo- Welcome to TuD. We hope you like it here.

At 9:22am on April 21, 2012, Linda G said…

Welcome home Mary Jo....
This is a great place to share, to learn, and to grow...all the while meeting new people world wide, and making friends Black heart (cards)
Take a peek at some the groups when you get a chance. Just go to the top of your page, and click on "Groups".
Once in, you can either peruse the wide array of available groups....or simply type a specific interest in the space provided.
Take in some of the blogs/discussions as well.
The resource boxes at the top of the home "Home" page, and
"About us" at the very bottom of your page and every page (the footer), offer you more information still.
-------------------------------------------------------------------------------------------------
Hope you find the support and information you came looking for.
Here is a useful link to get you on your way:
http://www.tudiabetes.org/notes
--------------------------------------------------------------------------------------------------
Take care....and keep in touch!

At 12:20pm on April 20, 2012, Marie B said…

oh I meant to tell you, if you'd like, you can enter the poetry contest again, next week after Monday, we are having winners every week.

At 8:57am on April 20, 2012, Doris D said…

WELCOME TO OUR LOVING, CARING, AND UNDERSTANDING FAMILY MY FRIEND!!! Great to have you here with us!!!!Please feel free to check out our Forum, Blogs and Groups here!!! If u have any questions please feel free to ask any of us or put it on our forum. To answer any of us back just hit the "comment back "bar under our comments and you will go to our page where you can leave a comment to us and also read abit about us.

Here's a link to help you get to know more about us: http://www.tudiabetes.org/notes

At 8:50am on April 20, 2012, Marie B said…

hi Mary Jo, welcome! glad you're enjoying the site. I've been a member over 4 years. let me know if you have any questions about the community.

At 6:02am on April 20, 2012, SEAGATOR said…

Welcome to our wonderful family. I am 85 and doing new tricks all the time. We are a very caring and supportive group. Questions? Please feel free to ask us. Please read the BLOGS the FORUMS and check out the many GROUPS for much valuable advice and information. WELCOME!!!

At 4:45am on April 20, 2012, brokenpole said…

Welcome to the family! On this forum you will learn so much. Most of all you will learn that you are not alone. Everyone here is supportive and will provide answers to your questions. Search the site for answers. Read the discussions and blogs for information. There are videos to help you understand diabetes and its treatment. Most of all there is family to talk to and even to vent to, if needed. Welcome home.

At 6:33pm on April 19, 2012, shoshana27 said…

welcome to this wonderful group of us

 
 
 

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REsources

From the Diabetes Hands Foundation blog...

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Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


DHF VOLUNTEERS


Lead Administrator

Bradford (has type 1)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)

 

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