"We have been at UCSF since our younger son's dx four years ago. Our older son was diagnosed a year later. The care we have received at UCSF is the best! They are a top rated practice, and we have absolutely no complaints.
Our younger son was 10 when he started pumping, a few months after he was diagnosed; (the older one was 14, but he started right after he was diagnosed).
We did have to go through all of the detailed record keeping, but it was just for a month,…"
"We had the opposite experience, my older son was growing way too fast! This was pre-diagonosis, and the doctor wanted to be sure there wasn't a problem in his adrenal glands. His bone age was about 2 years "older" than he was, but…"
It is totally normal to feel the way you do - the worry never totally goes away, but as your son gets older and more independent it definitely lessens. We have two boys that are T1, 14 and 17 and have been at this for about 4 years. I try to…"
My kids are now older and are babysitting other T1 kids now! I was able to find babysitters through another local support website here in CA. You can also check out www.safesittings.com which has listings of type 1 babysitters.
"So sorry to hear all this, diabetes is hard enough without the added pressures you all are experiencing.
Both of our boys are on the OmniPod, and we do see highs after pod changes. We have started to bolus a tiny bit before the pod change, and that…"
I would RUN to a different doctor - diabetes is hard enough without having to deal with a disinterested doctor, both for you and your son. Maybe she had had a long hard day, but that is no excuse.
Our endo team includes a nutritionist and social…"
"Any chance his PE time could be moved to either first thing in the morning or after lunch? . Instead of juice, we usually use some sort of protein bar, or a combination of fruit and crackers - this seems to have a little more staying power than the…"
"I wouldn't bother calling your agent at this point, you may not get a completely correct answer. I would check with the motor vehicle department to see what the story is. I noticed on their website that if there are "certain medical…"
"I have been in the insurance business for over 20 years and have never encountered this. I know that it can sometimes be an issue for the local DMV, depending on how you answer questions on the application for a license.
At least here in California,…"
"I am so sorry that this happened - it drives me crazy when people think they know better. They are probably trying to mitigate their liability (and are doing an extraordinarily poor job of it). You mentioned a teacher, is this a school sponsored…"
"It's so hard to let go! When my kids started sleeping out, I always made sure the parents knew that they were diabetic. I would write everything down on a quick "cheat sheet". I asked that they remind them to test before eating, and…"
"Lucky us, yes. Our younger one was diagnosed a few years ago at 10, and the older one the following year. They have a first cousin with T1 too, so I'm guessing there's some genetic component at play...."
"Good thing school's starting soon! A more regular schedule will probably help. My kids generally eat pretty well, but I found that the stuff that he was sneaking was more "portable" food!
We are just outside of San Francisco, in…"
"Yikes, although my younger one (13) was at 13.1 last endo visit - it is so hard to manage this part. Our endo advised not restricting his food, because it would just lead to more sneaking and perhaps more push back. I have gotten rid of a lot of…"
Patti, I just read your comment from december about the pump. both my sons just disconnect when they are are exercising, they do not need the insulin when they work/play that hard. they test every hour, plug the pump back in for a small correction if needed, then go back in the water without it.
when Leo sails, he does the same thing.
The youngest was diagnosed 7 years ago when he was 8, to be followed by his older brother 2 years later. That was difficult, much more for my youngest who felt guilty than my oldest who, I am sure, felt that he was going to get finally as much attention as his younger brother. Since then, it has been good mostly. they are both on the pump (animas) and it makes life so much easier. I am not quite the "standard" mom; we talk about everything in plain terms and they are great kids. I am starting to worry about the rapidly approaching going away to college, and driving of course, but life is all right. The most liberating moment in our lives was when I replied to Gabriel's "I hate diabetes" "i hate it too, now let's deal with this as it is not going away".
But maybe, surely, it is different with girls. How long have they had it?
No pump yet. Both my girls are very competitive swimmers, with long practices, and the only true waterproof pump is one with the tubing. There isn't a place to clip it on the suit. We looked at the omnipod, but it isn't actually waterproof (just watertight), and it was just too big on the girls, they don't have enough body fat to provide adequate rotation sites. So we are on MDI, and waiting for either the solo or the jewelpump. My younger daughter is actually the only one interested just yet, but she is willing to wait till we can get a pump that won't limit her activities. Our older daughter has only been D for a month and a half. she does her own shots, and her numbers are really good, so she wants to wait a while for the pump anyway. We are planning to request a CGM when we take the younger of the 2 into her endo in a few weeks. we are hoping that will help us give her more stability. We may look into a dog later as well, but right now i can't think of bringing another living thing into our house!
I am sorry for your son. I think my older daughters dx was actually harder on the younger of the 2. she absolutely wailed when she found out her sister was also T1. In some ways this has made it easier to deal with. The girls have eachother for support, and no one feels picked on or singled out when i say it is time to check BG or get a shot. On the other hand i have double to worry about, and 2x the numbers to juggle. My younger also gets discouraged because her sisters numbers are always so much more stable (the difference between having some insulin and no insulin). i often feel a bit like alice in wonderland, like i was dropped into someone elses distorted version of reality. i agree that having 2 with Dis a bit different than just having 1. like i said, some things are easier, but some things are defenitely much more complicated!
Was your boys onset similar? Our younger daughter had what one doctor called a kamikazi onset. she was sick with influenza A, and at the end of it (2 weeks), she was dx'd with no natural insulin. Our other daughter has had a much slower progression, with a long "silent beta" destruction. We knew she was T1 (or suspected) for several months before clinical diagnosis). Their endo team is thinking that the same virus triggered both girls D, but one went into overdrive, while the other has been more typical, and she still has lots of natural insulin. Despite onset and basal doses, their treatment seems to be pretty similar. Same sensitivities etc. Do your boys tend to follow similar patterns? my girls crack up when they have the exact same blood sugar readings, which happens more often than i thought it would. Do you have other children as well? do you have any other family members with T1? Sorry lots of questions, just a little excited to chat with another parent of "mutiples".
Nice to know i am not the only with with 2 T1 kids. 2 of my 4 kids were diagnosed this year (10 months apart). I am alway curious about the stories of other multiple diagnosed families. So far my youngest 2 are negative for the autoantobodies and we are praying they stay that way. Are your boys twins? my girls are 19 months apart in age, and ironically the younger of the 2 was diagnosed first. i would love to swap stories and share notes on diagnosis.
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