Patti
  • Belvedere Tiburon, CA
  • United States
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  • Valerie
  • aliceclones
 

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Latest Activity

Patti replied to Jennifer's discussion 'GUILT (and anger and fear and all other negative emotions)' in the group parents of kids with Type 1
"Hi Jennifer, I hear you! We have two sons with T1D, so I have spent a lot of time trying to figure out where we went wrong. It's been 5 years since our first diagnosis, and I have spilled endless tears over it. It does get easier to manage the…"
Dec 6, 2013
Patti replied to NatalieHodge's discussion 'type one teen noncompliance' in the group parents of kids with Type 1
"We have struggled with our younger one for a few years now with this (he's almost 16) So far, the best we have come up with is to have him bolus all of the time. If he is at home, we check the pump before he delivers the bolus (to be sure…"
Dec 1, 2013
RachelG replied to Patti's discussion 'New pods?' in the group OmniPod Users
"I never remember seeing an email from them about the upgrade. I knew new pods were coming, but assumed they would be controlled with the old PDM. I'm not even sure I knew a new PDM was coming out until very recently! So imagine my shock when I…"
Sep 30, 2013
Patti replied to Dondi's discussion 'Omnipod (New Version) Failures' in the group OmniPod Users
"Hi Don, If you have had multiple failures (which you have) call Insulet (and leave plenty of time for that little task) and ask them to replace the insulin as well. We had this happen last year and they were able to calculate, based on the pod…"
Sep 29, 2013
Patti replied to Patti's discussion 'New pods?' in the group OmniPod Users
"I am so sorry that happened to you! If it were up to me, I would have done the same thing, but it was for my son who can't deal with the tubing at all. Hopefully there will be a tubeless alternative in the future. . . ."
Sep 24, 2013
MaiaJane replied to Patti's discussion 'New pods?' in the group OmniPod Users
"Happened to me when I had a PDM fail earlier in the year, they would not sell me another (2nd gen) PDM to use up the 3 months of pods I had sitting in my bathroom. About a month later (on shots), I contacted them about upgrading me to the new system…"
Sep 23, 2013
Patti replied to Patti's discussion 'New pods?' in the group OmniPod Users
"That's really my main beef with them. I spent over two hours on the phone this morning, and they truly believe posting info on their webpage and sending out an email blast constituted notification to their customers. I shudder to think how they…"
Sep 23, 2013
Scott Wilkins replied to Patti's discussion 'New pods?' in the group OmniPod Users
"I recall Insulet saying the old pods would not be made any more many months ago. But alas, they did not directly inform users which is a bad in my book."
Sep 23, 2013
meh_mtl replied to Patti's discussion 'New pods?' in the group OmniPod Users
"I think it is pretty crappy of them not to have warned you that they would not be making the old pods after such and such a date. Luckily in canada they still have the old pods as the new ones are not out yet. it`s too bad that you can`t get them…"
Sep 23, 2013
john replied to Patti's discussion 'New pods?' in the group OmniPod Users
"Unfortunately, yeah, it is legal. And is about par for the course in today's medical industry."
Sep 22, 2013
Patti added a discussion to the group OmniPod Users
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New pods?

Am seeing red after my discussion with Insulet.We were not notified when our PDM for our son was out of warranty in April. I received a phone call in September offering an upgrade to the new system, and was told that it would be about $1,000 (as we have a very high insurance deductible). We were not told that the old system would no longer be supported.We called Insulet to check on a replacement box of pods, as we got a bad box. We were told that they were no longer producing them, and we would…See More
Sep 22, 2013
Patti joined Mathew's group
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OmniPod Users

This group is dedicated to giving OmniPod users a place to discuss and share our experiences so that we may grow and help each other "make diabetes a smaller part of our lives."Please note: the exchange, sale or giveaway of items between members that require a prescription from a licensed practitioner, including insulin pumps and pump supplies, is not allowed on TuDiabetes.We encourage you to donate supplies to non-profits such as the Charles…See More
Sep 22, 2013
Patti replied to LukesMom's discussion 'Need feedback on UCSF' in the group parents of kids with Type 1
"We have been at UCSF since our younger son's dx four years ago. Our older son was diagnosed a year later. The care we have received at UCSF is the best! They are a top rated practice, and we have absolutely no complaints. Good luck,"
Feb 1, 2013
Patti replied to Blondie's discussion 'Jumping Through The Hoops To Get A Pump' in the group parents of kids with Type 1
"Hi, Our younger son was 10 when he started pumping, a few months after he was diagnosed; (the older one was 14, but he started right after he was diagnosed). We did have to go through all of the detailed record keeping, but it was just for a month,…"
Dec 20, 2012
Patti replied to Jen's discussion 'Bone Age X-Ray' in the group parents of kids with Type 1
"We had the opposite experience, my older son was growing way too fast! This was pre-diagonosis, and the doctor wanted to be sure there wasn't a problem in his adrenal glands. His bone age was about 2 years "older" than he was, but…"
Dec 11, 2012
Patti replied to Curtsmom's discussion 'Complete emotional wreck!! Tell me this gets easier???' in the group parents of kids with Type 1
"Hi! It is totally normal to feel the way you do - the worry never totally goes away, but as your son gets older and more independent it definitely lessens. We have two boys that are T1, 14 and 17 and have been at this for about 4 years. I try to…"
Jul 18, 2012

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At 7:13am on April 25, 2011, Valerie said…
Patti, I just read your comment from december about the pump. both my sons just disconnect when they are are exercising, they do not need the insulin when they work/play that hard. they test every hour, plug the pump back in for a small correction if needed, then go back in the water without it.
when Leo sails, he does the same thing.
At 7:10am on April 25, 2011, Valerie said…
Hello Patti,

The youngest was diagnosed 7 years ago when he was 8, to be followed by his older brother 2 years later. That was difficult, much more for my youngest who felt guilty than my oldest who, I am sure, felt that he was going to get finally as much attention as his younger brother. Since then, it has been good mostly. they are both on the pump (animas) and it makes life so much easier. I am not quite the "standard" mom; we talk about everything in plain terms and they are great kids. I am starting to worry about the rapidly approaching going away to college, and driving of course, but life is all right. The most liberating moment in our lives was when I replied to Gabriel's "I hate diabetes" "i hate it too, now let's deal with this as it is not going away".
But maybe, surely, it is different with girls. How long have they had it?
At 1:33pm on December 3, 2010, aliceclones said…
No pump yet. Both my girls are very competitive swimmers, with long practices, and the only true waterproof pump is one with the tubing. There isn't a place to clip it on the suit. We looked at the omnipod, but it isn't actually waterproof (just watertight), and it was just too big on the girls, they don't have enough body fat to provide adequate rotation sites. So we are on MDI, and waiting for either the solo or the jewelpump. My younger daughter is actually the only one interested just yet, but she is willing to wait till we can get a pump that won't limit her activities. Our older daughter has only been D for a month and a half. she does her own shots, and her numbers are really good, so she wants to wait a while for the pump anyway. We are planning to request a CGM when we take the younger of the 2 into her endo in a few weeks. we are hoping that will help us give her more stability. We may look into a dog later as well, but right now i can't think of bringing another living thing into our house!
At 9:07am on December 3, 2010, aliceclones said…
I am sorry for your son. I think my older daughters dx was actually harder on the younger of the 2. she absolutely wailed when she found out her sister was also T1. In some ways this has made it easier to deal with. The girls have eachother for support, and no one feels picked on or singled out when i say it is time to check BG or get a shot. On the other hand i have double to worry about, and 2x the numbers to juggle. My younger also gets discouraged because her sisters numbers are always so much more stable (the difference between having some insulin and no insulin). i often feel a bit like alice in wonderland, like i was dropped into someone elses distorted version of reality. i agree that having 2 with Dis a bit different than just having 1. like i said, some things are easier, but some things are defenitely much more complicated!
At 10:50pm on December 2, 2010, aliceclones said…
Was your boys onset similar? Our younger daughter had what one doctor called a kamikazi onset. she was sick with influenza A, and at the end of it (2 weeks), she was dx'd with no natural insulin. Our other daughter has had a much slower progression, with a long "silent beta" destruction. We knew she was T1 (or suspected) for several months before clinical diagnosis). Their endo team is thinking that the same virus triggered both girls D, but one went into overdrive, while the other has been more typical, and she still has lots of natural insulin. Despite onset and basal doses, their treatment seems to be pretty similar. Same sensitivities etc. Do your boys tend to follow similar patterns? my girls crack up when they have the exact same blood sugar readings, which happens more often than i thought it would. Do you have other children as well? do you have any other family members with T1? Sorry lots of questions, just a little excited to chat with another parent of "mutiples".
At 9:55pm on December 2, 2010, aliceclones said…
Nice to know i am not the only with with 2 T1 kids. 2 of my 4 kids were diagnosed this year (10 months apart). I am alway curious about the stories of other multiple diagnosed families. So far my youngest 2 are negative for the autoantobodies and we are praying they stay that way. Are your boys twins? my girls are 19 months apart in age, and ironically the younger of the 2 was diagnosed first. i would love to swap stories and share notes on diagnosis.
Charis
At 11:58am on November 8, 2010, catlover said…
Hi Patti-Welcome to TuD. We hope you like it here.
At 6:21am on November 8, 2010, Marie B said…
hi Patti, welcome! We lived in Tiburon, in Paradise Cay. It was a great place to live. Here's a link to our Parents Group

http://www.tudiabetes.org/group/parentsofkidswithtype1
At 3:13am on November 8, 2010, Donna H said…
Welcome to TuDiabetes! Check out some of the groups on the site. It is a great way to get to know the community.
At 7:05pm on November 7, 2010, Doris D said…
WELCOME TO OUR REALLY BIG (WORLDWIDE) LOVING, CARING & GIVING FAMILY!!!!!!!!!!!
Here a link to help our new member's learn more about us: http://www.tudiabetes.org/notes
Also please put a pic up of you (or something related to you) so we can tell you from other's in forum
 
 
 

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