"My kids ALWAYS tested in class. It is dangerous to have him walking to the nurse's office, particularly if he is very low or very high. As others have pointed out, it is his right to test in class. Most of the teachers we have had are fine with…"
"The pump is a big adjustment, it took us over a month to get comfortable with everything. We notice higher numbers after a pod change, and have added a mini bolus after insertion to correct that. To echo what others have said, it may be a bad batch…"
"No, you're not a bad mom! My kids loved diabetes camp, and it is a huge relief to know that there is a place that they can have a great time and receive the attention that they need.
She will love it I am sure."
We just finished attending an excellent seminar on this topic. Under the ADA, students can request a private fridge for their meds. There are other accommodations available as well, en suite bathrooms, priority registration (to avoid…"
I hear you! We have two sons with T1D, so I have spent a lot of time trying to figure out where we went wrong. It's been 5 years since our first diagnosis, and I have spilled endless tears over it. It does get easier to manage the…"
"We have struggled with our younger one for a few years now with this (he's almost 16)
So far, the best we have come up with is to have him bolus all of the time. If he is at home, we check the pump before he delivers the bolus (to be sure…"
"I never remember seeing an email from them about the upgrade. I knew new pods were coming, but assumed they would be controlled with the old PDM. I'm not even sure I knew a new PDM was coming out until very recently! So imagine my shock when I…"
If you have had multiple failures (which you have) call Insulet (and leave plenty of time for that little task) and ask them to replace the insulin as well. We had this happen last year and they were able to calculate, based on the pod…"
"I am so sorry that happened to you! If it were up to me, I would have done the same thing, but it was for my son who can't deal with the tubing at all. Hopefully there will be a tubeless alternative in the future. . . ."
"Happened to me when I had a PDM fail earlier in the year, they would not sell me another (2nd gen) PDM to use up the 3 months of pods I had sitting in my bathroom. About a month later (on shots), I contacted them about upgrading me to the new system…"
"That's really my main beef with them. I spent over two hours on the phone this morning, and they truly believe posting info on their webpage and sending out an email blast constituted notification to their customers. I shudder to think how they…"
"I think it is pretty crappy of them not to have warned you that they would not be making the old pods after such and such a date. Luckily in canada they still have the old pods as the new ones are not out yet. it`s too bad that you can`t get them…"
Patti, I just read your comment from december about the pump. both my sons just disconnect when they are are exercising, they do not need the insulin when they work/play that hard. they test every hour, plug the pump back in for a small correction if needed, then go back in the water without it.
when Leo sails, he does the same thing.
The youngest was diagnosed 7 years ago when he was 8, to be followed by his older brother 2 years later. That was difficult, much more for my youngest who felt guilty than my oldest who, I am sure, felt that he was going to get finally as much attention as his younger brother. Since then, it has been good mostly. they are both on the pump (animas) and it makes life so much easier. I am not quite the "standard" mom; we talk about everything in plain terms and they are great kids. I am starting to worry about the rapidly approaching going away to college, and driving of course, but life is all right. The most liberating moment in our lives was when I replied to Gabriel's "I hate diabetes" "i hate it too, now let's deal with this as it is not going away".
But maybe, surely, it is different with girls. How long have they had it?
No pump yet. Both my girls are very competitive swimmers, with long practices, and the only true waterproof pump is one with the tubing. There isn't a place to clip it on the suit. We looked at the omnipod, but it isn't actually waterproof (just watertight), and it was just too big on the girls, they don't have enough body fat to provide adequate rotation sites. So we are on MDI, and waiting for either the solo or the jewelpump. My younger daughter is actually the only one interested just yet, but she is willing to wait till we can get a pump that won't limit her activities. Our older daughter has only been D for a month and a half. she does her own shots, and her numbers are really good, so she wants to wait a while for the pump anyway. We are planning to request a CGM when we take the younger of the 2 into her endo in a few weeks. we are hoping that will help us give her more stability. We may look into a dog later as well, but right now i can't think of bringing another living thing into our house!
I am sorry for your son. I think my older daughters dx was actually harder on the younger of the 2. she absolutely wailed when she found out her sister was also T1. In some ways this has made it easier to deal with. The girls have eachother for support, and no one feels picked on or singled out when i say it is time to check BG or get a shot. On the other hand i have double to worry about, and 2x the numbers to juggle. My younger also gets discouraged because her sisters numbers are always so much more stable (the difference between having some insulin and no insulin). i often feel a bit like alice in wonderland, like i was dropped into someone elses distorted version of reality. i agree that having 2 with Dis a bit different than just having 1. like i said, some things are easier, but some things are defenitely much more complicated!
Was your boys onset similar? Our younger daughter had what one doctor called a kamikazi onset. she was sick with influenza A, and at the end of it (2 weeks), she was dx'd with no natural insulin. Our other daughter has had a much slower progression, with a long "silent beta" destruction. We knew she was T1 (or suspected) for several months before clinical diagnosis). Their endo team is thinking that the same virus triggered both girls D, but one went into overdrive, while the other has been more typical, and she still has lots of natural insulin. Despite onset and basal doses, their treatment seems to be pretty similar. Same sensitivities etc. Do your boys tend to follow similar patterns? my girls crack up when they have the exact same blood sugar readings, which happens more often than i thought it would. Do you have other children as well? do you have any other family members with T1? Sorry lots of questions, just a little excited to chat with another parent of "mutiples".
Nice to know i am not the only with with 2 T1 kids. 2 of my 4 kids were diagnosed this year (10 months apart). I am alway curious about the stories of other multiple diagnosed families. So far my youngest 2 are negative for the autoantobodies and we are praying they stay that way. Are your boys twins? my girls are 19 months apart in age, and ironically the younger of the 2 was diagnosed first. i would love to swap stories and share notes on diagnosis.
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Written By Emily Coles, TuDiabetes Community Manager. Last summer we surveyed members of TuDiabetes and EsTuDiabetes online communities, and gained some GREAT insights! We learned that our members are happy with the information and support they receive on TuDiabetes and Read on! →
Last month, I had one of the most amazing experiences I have had with technology since I have been living with diabetes. It happened at the Focus On Technology conference organized by Children With Diabetes in Los Angeles (the first Read on! →