"Myself, husband, and son (3 yr old) were all tested after my dtr was dx'd at 4 1/2 (now 7 1/2). Husband and son both tested positive for autoantibodies and they continue to be tested every 6 months. Xander is 5 yrs old now and he really has no…"
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Insulin Pump and Baseball
Started this discussion. Last reply by PhDiabetes Mar 12. 13 Replies 0 Likes
Hoping for some input here.My 9-year old son is starting Little League. He has T1D and wears an Animas Ping insulin pump. My plan is for him to wear it during the games.I'm trying to come up with…Continue
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Sophia'smommyLori replied to PhDiabetes's discussion 'Thoughts on Screening Siblings?' in the group parents of kids with Type 1"Toes do just fine, and the CDE (who also has diabetes) ok'd it. We use the One Touch Delica lancets, and I just put the lancing device on "2", which goes a little deeper than the "1" he uses for his fingers. I have found at…"
"I don't have any specific advice or steps. Sounds like some of the other contributors have given you great track to run on. I would echo what they said about diet and breakfast choices. Cereal and milk used to make a mess of his BG's (and…"
"Glad that the pump is working out for you. Here's a couple thoughts.
RE: waking up at night. My son happens to be a heavy sleeper. I check him at least once before going to be myself each night and sometimes more if I've had to give him a…"
"I think that if I knew that there was a really promising prevention intervention for antibody-positive, but non-symptomatic kids, I'd see a real upside. I guess that being antibody-positive would make you eligible for things that come up, which…"
Kj replied to PhDiabetes's discussion 'Thoughts on Screening Siblings?' in the group parents of kids with Type 1"We enrolled our 6yr old son when my youngest son was diagnosed, and have continued to have screenings for the past two years. I think it makes my youngest son feel good that his brother is having "pokes" too. Something else to consider:…"
aimeeh2oski replied to PhDiabetes's discussion 'Thoughts on Screening Siblings?' in the group parents of kids with Type 1"I have my 2 year old son tested each year at the JDRF Walk. This past Saturday was the 2nd time and the blood work is no big deal. Didn't bother him at all - no wincing, whimpering, crying - nada, so I would not let that be a factor.…"
sarhow replied to PhDiabetes's discussion 'Thoughts on Screening Siblings?' in the group parents of kids with Type 1"one pro: prevent ketoacidosis upon diagnosis; be more prepared for a diagnosis and keep an eye on it. Another pro: may qualify for prevention trials, some we may not even know about yet. Even delaying diagnosis a little bit could help. Con of being…"
"For the sake of argument, let's put aside the stress of bloodwork and the stress of not knowing as factors for a second. What specific good could the information do (i.e., whether the sibling tests positive or negative for autoantibodies)? What…"
type3mom replied to PhDiabetes's discussion 'Thoughts on Screening Siblings?' in the group parents of kids with Type 1"We've decided against it. I just can't bare the thought of having my 5 year old son in for blood draws. I spotted my daughter's T1D before she became very ill, so I feel sure that I would do the same with my son and I am not worried…"
aliceclones replied to PhDiabetes's discussion 'Thoughts on Screening Siblings?' in the group parents of kids with Type 1"After our first daughter was diagnosed we enrolled our other three in trial net. I was having a ton of anxiety over not knowing. Our oldest daughter came back positive for autoantibodies and was dx'd 2 months later (10 months after her sister).…"
sarhow replied to PhDiabetes's discussion 'Thoughts on Screening Siblings?' in the group parents of kids with Type 1"It's a tough call. I didn't for a long time, but then I changed my mind and did. Trialnet likes to screen every year, even if negative, so that's a lot of blood draws. We've chosen to do it every other year instead. My son has…"
Thoughts on Screening Siblings?
My oldest was diagnosed 2 years ago this March. He's 9 now. I have a 7 and 4 year old as well. The idea that the younger two might develop diabetes is upsetting to me. I know that TrialNet offers genetic screening for siblings of affected kids, and that they offer the opportunity to take part in prevention trials if the kids test positive for certain antibodies or genetic markers. I struggle with whether to have them tested, and my spouse is against it -- the upset of bloodwork, and possibly…See More
"We have experimented a lot and have been able to use the combo bolus pretty well with pizza most times. One thing that was VERY helpful was the following video by a CDE who has diabetes. There's a website called Type 1 university he runs. The…"
"Great. Thanks. I will look for it there."
"Garry,
I've felt just like that many times. Especially within the first year or year-and-a-half. It was all still so new and the loss felt so much more acute. From the picture on your profile, I'm guessing you have a preschooler with T1D?…"
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- At 8:19am on March 1, 2013,
Marie B said… hi Ph, please join this group
http://www.tudiabetes.org/group/parentsofkidswithtype1
- At 5:41pm on November 17, 2012,
Linda G said… 
We're so happy that you're finally here!
Welcome home PhDiabetes...
This is a great place to share, to learn, and to grow...all the while meeting new people world wide, and making friends.
Take a peek at some the groups when you get a chance. Just go to the top of your page, and click on "Groups".
Once in, you can either peruse the wide array of available groups....or simply type a specific interest in the space provided.
Take in some of the blogs/discussions as well.
The resource boxes at the top of the home "Home" page, and
"About us" at the very bottom of your page and every page (the footer), offer you more information still.
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Hope you find the support and information you came looking for.
Here is a useful link to get you on your way:
http://www.tudiabetes.org/notes
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Hey, why don't you come join us in the TuD chat room?
You'll see us at the bottom of the home page.
We have a great time getting to know each other, sharing info and lots of laughs :)
It's on right now!
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Take care....and keep in touch!
- At 5:35am on November 16, 2012,
SEAGATOR said… WELCOME to our wonderful family. We are a very caring and supportive group. Questions? Please feel free to ask us. Please read the BLOGS the FORUMS and check out the many GROUPS for much valuable advice and information. WELCOME!!!
- At 2:09am on November 16, 2012,
brokenpole said… - Welcome to the family!! On this forum you will learn so much. Most of what you will learn is that you are not alone. Everyone here is supportive and will provide answers to your questions. Search the site for answers. Read the discussions and blogs for information. There are videos to help you understand diabetes and its treatment. Most of all there is family to talk to and vent to, if needed.
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From the Diabetes Hands Foundation blog...
Congratulations Diabetes Advocates Scholarship Recipients!
The Diabetes Hands Foundation and Diabetes Advocates Program is proud to announce and congratulate the members of DA who were granted scholarships to attend diabetes conferences in 2013! Thanks to a generous grant from Novo Nordisk, in 2013 we were …Continue Reading
La Familia de EsTuDiabetes Sigue Creciendo
El Centro Nacional de Prevención de Enfermedades Crónicas y Promoción de la Salud en el Estados Unidos encontró que a partir de 2002-2009, el 11,8% de los hispanos mayores de 20 años, que viven en los EU, viven con diabetes …Continue Reading
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