"I forgot to say that what saved my sanity during my hospital stay and the weeks after was to use different strengths of reading glasses. I was able to see with them... I also got two very expensive graduated lenses, but I hated them and returned…"
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Pilcrow
- 23, Male
- Vic
- Australia
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Pilcrow's Discussions
Those who have survived severe DKA
Started this discussion. Last reply by meee May 11. 71 Replies 2 Likes
To cut a long story short, in 2006 when I was 16, I was diagnosed with type 1 by way of what I was told, was the worst case of DKA ever survived by a patient at Royal Childrens Hospital.In all…Continue
Bell's palsy
Started this discussion. Last reply by Pilcrow Jul 6, 2010. 3 Replies 0 Likes
I've just been told i have bell's palsy, a (usually) temporary partial paralysis of the face.Everything I read about it mentions a link to diabetes, but I can't find any info on how it is linked,…Continue
A flaw in logic.
Started this discussion. Last reply by Xanthasun Apr 15, 2010. 10 Replies 0 Likes
OK, so I'm going to be starting pumping in a few months, but there seems to me to be a flaw in the logic of pumping. Obviously there is some solution that I can not see, so I was wondering if any of…Continue
Mistakes at work from lows
Started this discussion. Last reply by Pilcrow Mar 16, 2010. 6 Replies 0 Likes
If you are low at work, and make a mistake because of it, do you tell your boss it was because you were low? or do you just act as if it were a 'normal' mistake?As a result of my being low, I made a…Continue
Tags: mistakes, employment, work, hypos, lows
Pilcrow's Page
Latest Activity
Shawnmarie replied to Pilcrow's discussion 'Those who have survived severe DKA'"No DKA for me, but blurry vision immediately before diagnosis - it's what ultimately sent me to the doc. After my BG was under control, the blurry vision resolved, but it took a few weeks before it felt like what it was before the fun began."
meee replied to Pilcrow's discussion 'Those who have survived severe DKA'"I went through dka last year, I was in the icu for 4 days and my vision went totally blurry after fluid and insulin treatment.. I lost both my close and far focus ability, it was a terrifying experience. No one really gave me any clear explanation…"
Gracey replied to Pilcrow's discussion 'Those who have survived severe DKA'"We have already found an endo doc his first appointment is tomorrow. I'm more worried about his vision, though I have read over and over new insulin users to have blurry vision idk I find myself doing as much as humanly possible I've only…"
"@Gracey, believe it or not he will be ok. What is now important is he needs a Endocrinologist also a Certified Diabetes Educator. As time moves on he will also need a Podiatrist and some other specialist. Educating yourselves about how to live with…"
Zoe replied to Pilcrow's discussion 'Those who have survived severe DKA'"Glad you're here, Gracey, and hope your husband joins us as well. Please feel free, both of you to ask questions and again, welcome! You're in the right place!"
Gracey replied to Pilcrow's discussion 'Those who have survived severe DKA'"He was 37 and diagnosed"
Gracey replied to Pilcrow's discussion 'Those who have survived severe DKA'"KI'm so glad to have found this. My husband fell into coma as we had no idea what was wrong they said your husband has type 1 and has ketoacidosis, what's that Omg so after two days of constantly by his side asking what's happening…"
Pilcrow joined Nell's group
Living Alone with Diabetes
Individuals with diabetes who live alone face the usual complex self-management challenges that all PWDs face. Living alone, however, brings additional challenges. Only a few are noted here. Some "aloners" (new term?) face personal and medical safety issues with hypo unawareness, acute illnesses (who makes the chicken soup for flu?), and injuries, to name a few. Some may run higher than desired BGs during sleep to avoid a hypo reaction. There are unique challenges with planning, prepping, and…See More
ash-harris replied to Pilcrow's discussion 'Those who have survived severe DKA'"What a lovely sentiment Joni, it has indeed been helpful to read about others experiences. I count myself lucky that as drastic as my DKA was, things could have been far worse.
I threw a surprise birthday get-together for my partner Jason to both…"
Gerri replied to Pilcrow's discussion 'Those who have survived severe DKA'"That's horrid! Waging a battle is the last thing a sick person can do, but is forced to do. Sorry to repeat what I've said before, but hospitals are prisons for sick people. They function on the same model of control."
Joni replied to Pilcrow's discussion 'Those who have survived severe DKA'"Hello Ash and Gerri and all of you here. I haven't posted in this topic, so perhaps I should give a little background first. Sorry it's long.
Prior to my "DKA", I was a healthy and active 52 year old mother of a 4th grader. I had…"
Natalie ._c- replied to Pilcrow's discussion 'Those who have survived severe DKA'"When I was hospitalized, near dead from DKA a couple of years ago, the CDE on the case had to fight with the hospitalist (a doctor that only treats patients in the hospital -- jack of all trades, master of none), to use T1 protocols on me, not T2. I…"
Gerri replied to Pilcrow's discussion 'Those who have survived severe DKA'"Homemade soup--ha! I can relate to being reprimanded about not eating. Nurses said the same to me. Found out later that hospital didn't prepare food on site. It was trucked in 3 times a week from a central commissary. Why salads were revolting…"
Profile Information
- How do you hope to benefit from TuDiabetes?
- well, having been a member for a while now, i'm past the 'expecting' stage.
- Date diagnosed
- June 21, 2006
- Most recent HbA1C %, date of result (optional)
- 7.7%
- Type of treatment/devices you use
- Pump
- What pump model do you use, if any?
- Animas 2020 (her name is Amy ;)
- Enter your website, if any (blog, Facebook, Twitter)
- http://www.flickr.com/photos/nicholaslancasterphotography/
Pilcrow's Blog
Seasons of D
Posted on June 12, 2010 at 7:06am 3 Comments 0 Likes
Five hundred twenty-five thousand
Six hundred minutes,
Five hundred twenty-five thousand
Moments so D.
Five hundred twenty-five thousand
Six hundred minutes
How do you measure, measure a year?
In injections, in test strips, in site changes
In cups of juice
In highs, in lows, in HBa1c.
In five hundred twenty-five thousand
Six hundred minutes
How do you measure
A year with D?
Six hundred minutes,
Five hundred twenty-five thousand
Moments so D.
Five hundred twenty-five thousand
Six hundred minutes
How do you measure, measure a year?
In injections, in test strips, in site changes
In cups of juice
In highs, in lows, in HBa1c.
In five hundred twenty-five thousand
Six hundred minutes
How do you measure
A year with D?
The Rastafarian con man.
Posted on May 22, 2010 at 4:30pm 1 Comment 0 Likes
So the other day I was flicking through Pumping Insulin (4th edition) by John Walsh and Ruth Roberts, which, as many of us know, is one of the bibles of insulin pump therapy. There is however, one section that I can’t help but giggle when I read, not because the information is inaccurate or unhelpful, but just because of the poor choice of abbreviation.
The con mon.
Instead of the intended root of the term, the continuous… Continue
The con mon.
Instead of the intended root of the term, the continuous… Continue
Comment Wall (11 comments)
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Join Diabetes community by Diabetes Hands Foundation: TuDiabetes
- At 2:53am on March 19, 2011,
Michael Hutch said… - my musical taste has been questioned before!
check out my youtube channel with my D videos; some comments about my awesome musical taste !! enjoy!
http://www.youtube.com/watch?v=bpbjnFY9qmI
- At 2:28am on March 19, 2011, Michael Hutch said…
- so funny, that friend request !
- At 12:50pm on February 4, 2011,
Joanne said… - Just had to comment after I read in a discussion that you test 14/day ..... good grief & you're fingers are not sore. I think mine stay OK cuz I moisturize my feet at night too and rub the remainder on my arms and hands. Lol .... 14 --- amazing = )
- At 9:04am on June 9, 2010,
Sloane said… - Everybody seems to be desperate for violists.. which means that my auditions are a lot less competitive! :)
I really wish I wasn't working on anything right now! my auditions are all this week for orchestras/quartets and other things. I really hate scales.. lol.
- At 3:11pm on May 30, 2010, Sloane said…
- It's the coolest moment when you find your new best friend/viola, and you know it right away!
What are you working on right now? I'm gearing up for an audition in two weeks and I'm playing Concerto in B minor by Handel.
- At 9:41am on May 23, 2010, Sloane said…
- I think we're twins! I did violin for seven.. blah.. and viola for three so far! I'm trialing 16 inch violas right now (but I'm currently in love with one) so mine doesn't have a name. My last one was Antonio- and my bow is Bownita, :)
Isadoré is such a pretty name! I'm still in awe that theres another type 1 viola!
- At 8:25pm on May 22, 2010, Sloane said…
- Ahh! I thought I was the only one, too!
Viola is my favorite.. (contrary to what cellists and violinists believe). Having diabetes AND playing viola makes a person really cool. How long have you played?
- At 12:22pm on January 24, 2010,
Jim Roach said… - Welcome to Tudiabetes Pilcrow!
- At 10:04am on January 23, 2010,
Doris D said… - Welcome to our growing family Pilcrow!!!!!!!!!!!!!
- At 7:58am on January 23, 2010,
Robyn said… - Hello and Welcome!
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From the Diabetes Hands Foundation blog...
Congratulations Diabetes Advocates Scholarship Recipients!
The Diabetes Hands Foundation and Diabetes Advocates Program is proud to announce and congratulate the members of DA who were granted scholarships to attend diabetes conferences in 2013! Thanks to a generous grant from Novo Nordisk, in 2013 we were …Continue Reading
La Familia de EsTuDiabetes Sigue Creciendo
El Centro Nacional de Prevención de Enfermedades Crónicas y Promoción de la Salud en el Estados Unidos encontró que a partir de 2002-2009, el 11,8% de los hispanos mayores de 20 años, que viven en los EU, viven con diabetes …Continue Reading
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