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Punk
  • Female
  • Central Coast NSW
  • Australia
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Where do you put your pump when you sleep?

Replied Mar 4

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Punk left a comment for Kelly
October 26
Kelly left a comment for Punk
October 26
Punk commented on Kasi's group 'Autistic Diabetics'
Hi all havent been here for a while. Thought I would just say hello and I have some good news, I now receive carers payment from centrelink for looking after Dane which means I dont have to work as much Its a real load of me to have a bit more tim...
October 25
Punk left a comment for Kelly
October 24
Punk commented on Kasi's group 'Autistic Diabetics'
Hope everyone is good. Its great to meet others in the same situation and we can talk about issues that some other people might not come across.Dane is good at the moment we are having lots of lows again. I sometimes wonder if its when he is havin...
March 5
Jonah left a comment for Punk
March 4
Punk replied to Mike Campana's discussion 'Where do you put your pump when you sleep?'
I made pouches for my son's pump that he wears 24/7 he seems to be able to sleep ok with it. The pouch holds the pump and it has a soft belt with a velcro strips on it. All the tubing is in the pouch with just a small amount coming out to the site...
March 4
Punk left a comment for Jonah
March 4

Comment Wall (18 comments)

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At 12:51am on October 26, 2009, Kelly said…
hello, yes i do understand your concerns! im not sure what you would like me to do, but i can will do anything u need to help you? i could give u a direct number to the diabetes section in caneberra hospital if you would like.. although they are rather hard to get in contact with because there rather under staffed.. if your son needs me to help him im more then happy too, do you know where abouts in canberra his camp is? (: take care, kelly
At 8:14am on October 24, 2009, Michiko said…
Hi! Thanks for the comment! Isn't it amazing to find out that we are not alone yet not that many actually come out and speak up when we need each other's rapport? Am so glad to find the group:)
At 3:58pm on March 4, 2009, Jonah said…
The CGMS consumables actually isn't that bad. I use the Guardian on and off. One sensor costs 35 dollars (US). It supposedly lasts 3 days; but mine have lasted about three weeks each. I think wearing just a sensor per months is helpful.
At 7:48pm on March 3, 2009, Jonah said…
I'm 20 years old.
I lived on my own for four months when I was 18, but I really didn't do well on my own (memory problems, totally neglected all hygiene, difficulty talking, heard voices, etc) . I will try moving out again in a year or so. I will be student teaching in the fall and will hopefully get my bachelor's degree and teaching certification in November/December. I will get my degree in high school math, and my certification in high school math and I hope environmental science as well.
I worry most about nocturnal hypoglycemia. Hypos used to wake me up with a very scary feeling but these days when I wake up hypo I usually feel really wonderful and I'm irrational and don't really want to eat.
At 7:16am on February 24, 2009, Courtneyv said…
Thanks Kim!
Feel better....I know what you mean about the sleep thing . I haven't had a real restful night since I well.......I have no idea since when.......someday right? be good........Courneyv
At 4:09am on February 23, 2009, Courtneyv said…
Hey Kim,
We were able to manage the Ketones at home but it seemed like a long stretch.
I hope the pschologist can offer insight for you. We are blessed with on site behavioralists in our current school program and for now this has met his needs. He is always trying to get one over on us, usually a proactive approach opposed to reactive is the best way to work with Luke.
So we are a year out of our Diabetes diagnosis and my only thoughts are did my kid used to get sick this much and for that long? I don't know seems like we've had ketones about 5 times since his diagnosis- is that strange?
Oh well otherwise things are good...let me know about the autisn Diabetes group if possible could someone send me an invite.....I looked but couldn't find. So I cursed at my computer a couple times and gave up! Ahhh technology good for so many things but it tests my patience when I attempt basic things........must get Luke ready for school....be good! courtneyv
At 12:30am on February 23, 2009, Mona said…
HI! Havent been in here for ages either.. Gabriel finally got his diagnos (autism) in november, but we suspected it for a long time before that. Now we try to decide what to to, how to think about his future etc. Special schools? No, not Gabriel - he´s very high functional and we think he needs "normal" people around him at most times to get the grip of that we "normal" people people exist too *S*

We´ve had a turbulent time for the last two months. Many moodswings, some new fears and some new aspects of new "behaviors" that we do not approve of..But Gabriel is " the one and only" not just in his own mind but think he most times should be in in everybodys mind..*S*

Most good the diagnose did us was that we got an explanation to why he doesnt feel his highs or lows, it all comes down to autism to begin with - and now we understand that and that lifts a wheight from our shoulders and the pressure we sometimes - without knowing better- lay on him " Why dont you tell us that you dont feel well?" ...he just stared at us not understanding anything when he was so low that we felt that he just had to feel it...but then again, can you go out in the winter with lots of snows without your winterjacket or boots on, then you have the explanation right there - he just dont feel things the way we do, no matter how ever smart he might be otherwise.

Anyway, I´ll try to stop by a little more often ! Hope you´re all doing fine ! Lets stay in touch ...
At 4:24pm on February 19, 2009, Jonah said…
Hello Punk.
Does your son have sensory issues with the adhesive to keep the pump on?
What are your son's communication skills like? Can he feel highs and lows, and can he communicate them to you? Does he talk about diabetes?
For me, autism and diabetes interact in that it took me a lot longer to be diagnosed with diabetes than it otherwise would have because other people had a hard time understanding what I was saying when I talked about it. Also it was hard to separate my diabetes symptoms from my autism issues- I know now that my sensitivitity to light is actually a symptom of blood sugar, but at the time we thought it was just a sensory issue. And although having some urinary urgency issues is normal for me, the extreme problems I had in the year before dx wasn't just a stress+ autism issue, but I didn't know.
I've also had them interact in that I'm hypo unaware and have been from the start. It's not that I don't have symptoms, it's that it's very hard for me to figure out that they mean that I'm hypo, and other people don't pick up on them. I also have had sensory issues with wearing a CGMS, and the hospital was torture.
But I think the biggest difference is probably in that I am an obsessive sort of person because of autism and I obsess about diabetes. That probably will be very helpful for me in the long run.
At 4:33am on February 19, 2009, Courtneyv said…
Just had Luke home for 5 days with ketones- I relate.....sounds great about the group, I will join. Be good get your mom strength back!
CourtneyV
At 12:29pm on July 28, 2008, Mona said…
Hi! I just dropped a message to Courtney since i found out that she too had a son with both diabetes and autism..I´m Mona from Sweden and im in the same situation as you two. I have a 6½ yr old son with diabetes and a-typical autism and probably also aspergers syndrome as well. Gabriel was diagnosed with diabetes 4 days before his second birthday and has been on an animas pump since he was 2 ½ yrs.

If you want you can drop your email in my inbox and i´ll contact you with my home- email adress.

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Profile Information

Hometown (where you come from):
Australia
Do you have diabetes?
I have a relative/friend with diabetes
Type of diabetes
Type 1
Date diagnosed
December 15, 2006
Most recent A1C (Blood Glucose Average) Value
7.5
What glucose meter do you use?
optium
Type of treatment you use
Pump
What pump model do you use, if any?
medtronic 722
How did you find out about us? What were you searching for?
Find people in the same situation as myself. Share information and advice with others. Make some friends. get advice.
What do you do for a living?
hospitality

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Punk

The gastric bug

Well I am very proud of myself !!
Dane came done with a tummy bug that lasted 10 days, he had diarrhea, vomiting and could not eat or drink much.
I got up every few hours to give him some more insulin through the night.
Then because he didnt eat much for about a week, his sugars were going very low so we had to set a temporary basal till he could get some food in his system again.
I was so glad we didnt have to go to hospital. It is bad enough when a normal person gets these type of viruses but… Continue

Posted on February 18, 2009 at 2:21pm — 1 Comment

 
 

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