Punk's Page

Latest Activity

Punk commented on Kasi's group 'Autistic Diabetics'
"Hi Brodysmum We have a facebook group that is very active and you are welcome to join. Just search Autism and Type 1 let me know your name so I can add you to the group. Kim"
Jun 27, 2013
Punk replied to dollfinmommy's discussion 'my 11 year old son is severely autistic and has type 1 diabetes' in the group Autistic Diabetics
"Hi, We have a group on facebook that is getting quite large. If yu have facebook I can post the link for the group for you. Kim"
Feb 21, 2013
Punk replied to NatalieHodge's discussion '8 year Old with PDD, and my 11 year old diagnosed t1d /celiac...' in the group Autistic Diabetics
"Hi Natalie, I dont think its really common but I still think there is some sort of link myself maybe in some cases anyway. Dane is T1 and has Autism. We also run a group on Facebook of you are interested. Kim"
Feb 18, 2012
Punk replied to Loquacity's discussion 'JDRF Walk for the Cure' in the group Diabetes in Australia
"I am doing the walk in Newcastle in November.. I have raised about $185...hoping to get some more sponsors to reach my target of $500..Good luck hope you get great weather.This is our 2nd year of doing the walk."
Oct 16, 2011
Jonna replied to Punk's discussion 'MIO infusion sets' in the group Minimed Paradigm Insulin Pump Users
"With the Sure-T, I manually insert it. It's become very easy for me, but I've had lots of practice! I hold it above the insertion point and tap it in quickly with my fingertip. My son just doesn't have enough fat on his butt yet to…"
Jul 8, 2011
Phoebe replied to Punk's discussion 'MIO infusion sets' in the group Minimed Paradigm Insulin Pump Users
"My son uses the MIO and we can't make up our minds about it - we are new to the pump, since May and I'm not sure what we're going to do. Our educator wanted us to use something different but I'm not sure about manually inserting…"
Jul 8, 2011
Jonna replied to Punk's discussion 'MIO infusion sets' in the group Minimed Paradigm Insulin Pump Users
"My son (age 3 1/2) has been using the MIOs for almost a year. Our endo just advised us to switch to a different infusion set because Ian kept spilling ketones on a pretty frequent basis, and we would have to switch out his MIO much earlier than it…"
Jun 22, 2011
Punk joined Kate's group
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Teenagers With Type 1

A group for teenagers with type 1 aged 13-20 :)
Apr 23, 2011

Profile Information

Date diagnosed
December 15, 2006
Most recent HbA1C %, date of result (optional)
7.5
Type of treatment/devices you use
Pump
What pump model do you use, if any?
medtronic 722

Punk's Photos

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Punk's Blog

The gastric bug

Posted on February 18, 2009 at 2:21pm 1 Comment

Well I am very proud of myself !!

Dane came done with a tummy bug that lasted 10 days, he had diarrhea, vomiting and could not eat or drink much.

I got up every few hours to give him some more insulin through the night.

Then because he didnt eat much for about a week, his sugars were going very low so we had to set a temporary basal till he could get some food in his system again.

I was so glad we didnt have to go to hospital. It is bad enough when a normal person gets these… Continue

Comment Wall (11 comments)

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At 8:14am on October 24, 2009, Michiko said…
Hi! Thanks for the comment! Isn't it amazing to find out that we are not alone yet not that many actually come out and speak up when we need each other's rapport? Am so glad to find the group:)
At 3:58pm on March 4, 2009, Jonah said…
The CGMS consumables actually isn't that bad. I use the Guardian on and off. One sensor costs 35 dollars (US). It supposedly lasts 3 days; but mine have lasted about three weeks each. I think wearing just a sensor per months is helpful.
At 7:48pm on March 3, 2009, Jonah said…
I'm 20 years old.
I lived on my own for four months when I was 18, but I really didn't do well on my own (memory problems, totally neglected all hygiene, difficulty talking, heard voices, etc) . I will try moving out again in a year or so. I will be student teaching in the fall and will hopefully get my bachelor's degree and teaching certification in November/December. I will get my degree in high school math, and my certification in high school math and I hope environmental science as well.
I worry most about nocturnal hypoglycemia. Hypos used to wake me up with a very scary feeling but these days when I wake up hypo I usually feel really wonderful and I'm irrational and don't really want to eat.
At 12:30am on February 23, 2009, Mona said…
HI! Havent been in here for ages either.. Gabriel finally got his diagnos (autism) in november, but we suspected it for a long time before that. Now we try to decide what to to, how to think about his future etc. Special schools? No, not Gabriel - he´s very high functional and we think he needs "normal" people around him at most times to get the grip of that we "normal" people people exist too *S*

We´ve had a turbulent time for the last two months. Many moodswings, some new fears and some new aspects of new "behaviors" that we do not approve of..But Gabriel is " the one and only" not just in his own mind but think he most times should be in in everybodys mind..*S*

Most good the diagnose did us was that we got an explanation to why he doesnt feel his highs or lows, it all comes down to autism to begin with - and now we understand that and that lifts a wheight from our shoulders and the pressure we sometimes - without knowing better- lay on him " Why dont you tell us that you dont feel well?" ...he just stared at us not understanding anything when he was so low that we felt that he just had to feel it...but then again, can you go out in the winter with lots of snows without your winterjacket or boots on, then you have the explanation right there - he just dont feel things the way we do, no matter how ever smart he might be otherwise.

Anyway, I´ll try to stop by a little more often ! Hope you´re all doing fine ! Lets stay in touch ...
At 4:24pm on February 19, 2009, Jonah said…
Hello Punk.
Does your son have sensory issues with the adhesive to keep the pump on?
What are your son's communication skills like? Can he feel highs and lows, and can he communicate them to you? Does he talk about diabetes?
For me, autism and diabetes interact in that it took me a lot longer to be diagnosed with diabetes than it otherwise would have because other people had a hard time understanding what I was saying when I talked about it. Also it was hard to separate my diabetes symptoms from my autism issues- I know now that my sensitivitity to light is actually a symptom of blood sugar, but at the time we thought it was just a sensory issue. And although having some urinary urgency issues is normal for me, the extreme problems I had in the year before dx wasn't just a stress+ autism issue, but I didn't know.
I've also had them interact in that I'm hypo unaware and have been from the start. It's not that I don't have symptoms, it's that it's very hard for me to figure out that they mean that I'm hypo, and other people don't pick up on them. I also have had sensory issues with wearing a CGMS, and the hospital was torture.
But I think the biggest difference is probably in that I am an obsessive sort of person because of autism and I obsess about diabetes. That probably will be very helpful for me in the long run.
At 12:29pm on July 28, 2008, Mona said…
Hi! I just dropped a message to Courtney since i found out that she too had a son with both diabetes and autism..I´m Mona from Sweden and im in the same situation as you two. I have a 6½ yr old son with diabetes and a-typical autism and probably also aspergers syndrome as well. Gabriel was diagnosed with diabetes 4 days before his second birthday and has been on an animas pump since he was 2 ½ yrs.

If you want you can drop your email in my inbox and i´ll contact you with my home- email adress.
At 2:37pm on May 1, 2008, Rebekah Humphrey said…
Is he the one in the picture? He looks adorable.

The pump is supposed to be really good. I am trying to get one.
At 6:20am on May 1, 2008, Penny R. said…
Welcome to tudiabetes and to the parents of kids with type 1 group.

My son, Riley, was diagnosed with Type 1 when he was 3. He is almost 6 now and uses an Animas insulin pump.
At 5:02am on May 1, 2008, Scott Strumello said…
Welcome to TuDiabetes, Punk! Glad you found us here.
At 2:11am on May 1, 2008, Rebekah Humphrey said…
Hello and welcome.

So who is the relative with diabetes? There are a few support groups on here with families of Diabetics. Feel free to search.
 
 
 

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