"same for us....my son was diagnosed at 9 yrs. old, he's now 12. He has a twin brother with autism...wonder what the connection might be?"
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SJR's Discussions
nighttime diabetic alert systems
Started this discussion. Last reply by Joe Feb 10. 14 Replies 0 Likes
I am wondering if anyone has tried any type of alert system for avoiding hypoglycemia at nighttime? Our son is 12, has had diabetic seizures 2 times since diagnosis at 9 and thankfully I woke up both…Continue
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SJR replied to Felix's discussion 'Diabetes friendly places to stay around Orlando ?' in the group parents of kids with Type 1"Check online at www.airbnb.com and also check out vrbo.com. These are home type places. We have used vrbo.com twice and have been very pleased. It was a smooth process both times. WIth a family of 6 a kitchen was very helpful. Enjoy!"
Joe replied to SJR's discussion 'nighttime diabetic alert systems'"I agree with everyone who recommends a CGM. I have used one for 5 years now. But if you can't afford one, the answer may lie in achieving the best control you can, and teaching your child rigorous testing protocols and good insulin/food…"
Hockey Mom replied to SJR's discussion 'just how long is insulin good for????' in the group parents of kids with Type 1"We always carried a pen (along with a RX script for supplies)as a backup in case we lost the PDM when traveling. We tried to keep it cool in insulated bags and in the mini fridge but after carrying it around of several days, I would usually throw it…"
Ken replied to SJR's discussion 'just how long is insulin good for????' in the group parents of kids with Type 1"I would not be surprised at all if the insulin manufacturers engineered in planned obsolescence. Chemically engineering the insulin so it "expires" after a certain period of time, that way we need to buy more and fuel the pharma industry.…"
JamesUK replied to SJR's discussion 'nighttime diabetic alert systems'"There's also those non-invasive watches, but from what I read they don't work very well.
Anyone used one?
Maybe an improved one might come out this year..."
Sue59 replied to SJR's discussion 'nighttime diabetic alert systems'"Not knowing what kind of insurance you have, but I would suggest that you call your insurance and dig deeper. Dexcom doesn't always ask the right questions. They told me I had to pay a 20% copayment for the Dexcom under durable medical…"
"keep at them! it never hurts to ask (and ask again and again)"
SJR replied to SJR's discussion 'nighttime diabetic alert systems'"Dexcom did the work for me and said that it wasn't covered. I could trying to appealing, but I'm not too hopeful that would make a difference. I have been getting up every night a 2am to check him...after checking at 10pm also. After 3…"
Terry replied to SJR's discussion 'nighttime diabetic alert systems'"Marie - Thank you for the link. I wasn't aware that Medtronic had such an alarm system. If I had a young child T1, I would be especially interested in such a tool, providing that it was dependable."
Terry replied to SJR's discussion 'nighttime diabetic alert systems'"While it may be a pain to live with, have you thought about setting an alarm clock for either you or your son to wake up and check his blood glucose? When I'm having trouble with lows over night I often found that they predominantly occurred…"
peruvianpasohi replied to SJR's discussion 'nighttime diabetic alert systems'"How do you know that your insurance will not cover the Dexcom. You need to get a rejection letter in writing from them, then appeal, then get that rejection letter in writing, and then....I will update if it actually goes that far."
"can you appeal? this is too scary not to try again. talk w/ your doc maybe they have experience on what to say to get it cleared"
SJR replied to SJR's discussion 'nighttime diabetic alert systems'"We looked at CGMs but our insurance won't pay for it. Dexcom quoted us $1600 to start and $300/month aftet that. It's just not financially possible. I have looked at Sentry so that might be the best option right now. Omnipod is supposed to…"
Larry D replied to SJR's discussion 'just how long is insulin good for????' in the group parents of kids with Type 1"Not sure why your son's ommipod takes 3 hours to get the full dose of insulin. My daughter has the omnipod and a correction dosage is administered immediately. Be that as it may, I would opt to carry a couple of syringes and a vial of insulin…"
Carrie replied to SJR's discussion 'nighttime diabetic alert systems'"Wow, I wish that system was available when I was young, as I had a lot of seizures in my teenage years. Now I use the Medtronic Veo pump (similar to Revel in the US I think) with a Cgms. The best feature of this is that it stops all insulin for 2…"
Profile Information
- Either I or a loved one have:
- Type 1 or type 1.5 (LADA) diabetes
- How do you hope to benefit from TuDiabetes?
- insight to how a a mom can deal with it
- Date diagnosed
- September 2, 2008
- Most recent HbA1C %, date of result (optional)
- 7.3
- Type of treatment/devices you use
- Pump
- What pump model do you use, if any?
- omipod
Comment Wall (5 comments)
- At 4:05pm on April 4, 2011,
Donna H said… - Welcome to TuDiabetes! Check out some of the groups -- it's a great way to get to know the community.
- At 11:58am on April 3, 2011, Doris D said…
- WELCOME TO THE BEST FAMILY YOU CAN EVER FIND MY FRIEND!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! And like all families we sometimes agree and sometimes disagree, but you know families right?
Here's a link with loads of info on it to help our new member's learn more "About Us": http://www.tudiabetes.org/notes
- At 9:42am on April 3, 2011,
Marie B said… - hello and welcome! Here's a link to our largest Parents Group
http://www.tudiabetes.org/group/parentsofkidswithtype1
- At 8:42am on April 3, 2011,
lotsofshots said… - Hi there, welcome to TuDiabetes, we are so happy that you found us!
- At 9:15pm on April 2, 2011,
Linda Gauvin-Miller said… 
Welcome home SJR.....
Take a peek at some the groups when you get a chance. Just go to the top of your page, and click on "Groups". Once in, you can either peruse the wide array of available groups....or simply type a specific interest in the space provided. Take in some of the blogs/discussion as well.
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Hope you find the support and information you came looking for. Here is a useful link to get you on your way:
http://www.tudiabetes.org/notes
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There are also groups here for parents of children with D., such as....
"Parents of Kids with type 1" and "Kids with Diabetes"
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Take care....and keep in touch!
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