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Spock's Discussions

Isn't Juvenile Diabetes an Antiquated term?

Started this discussion. Last reply by acidrock23 on Monday. 18 Replies

I see this terminology all the time, especially JDRF. Maybe after 50+ years of Type 1, I am no longer juvenile and hate to be corralled in that fence.Continue

Tags: nomenclature, name, type1, juvenile

Supplies Overseas

Started this discussion. Last reply by Mari Jul 18. 5 Replies

I know some of you live outside the U.S. and are American citizens. How do you get supplies and prescriptions? I am checking our healthcare coverage and looks like we will be OK for doctors and even…Continue

Mini Med CGM "reuse"

Started this discussion. Last reply by Spock Jun 4. 2 Replies

I usually do the 7 day thing with my MM CGM, but have read here about people going longer..Hit 7 days today, recharged the transmitter, and restarted as "new sensor." It is doing a 3 hour warm up.…Continue

Weather Changes

Started this discussion. Last reply by karen May 12. 9 Replies

It has heated up here, pretty quickly, this week and my D is a total wreck. My wonderful, stand by me husband is as tired of it as I am and showing the strain. I lowered my basal from 12.75 to 10.45…Continue

 

Spock's Page

Latest Activity

artwoman replied to Spock's discussion 'Pump and Airport Security'
"I just don't want to risk a problem (with the4 pump - not the TSA). And I know that if your pump company learns that it I=has been exposed to the imaging tech, the warranty is nullified."
6 hours ago
cbaer replied to Spock's discussion 'Pump and Airport Security'
"I have a MiniMed pump and I travel very frequently. I never disconnect abd always walk through whatever system I need to with my pump and I have NEVER had a problem. I have been doing this for the past 10 years. When going through the full body…"
7 hours ago
acidrock23 replied to Spock's discussion 'Isn't Juvenile Diabetes an Antiquated term?'
"I had T2 misentered into my file when I moved a couple of years ago. Maybe my A1Cs confused them or something. My GP fixed it at my last visit. I think that JDRF is an "operation" and doesn't want to do the chore to change their name.…"
Monday
artwoman replied to Spock's discussion 'Isn't Juvenile Diabetes an Antiquated term?'
"You said it Zoe! Even something as critical as getting enough test strips is based on the correct Dx. It can take an act of God to get "them" to change the Dx to type 1, once the type 2 Dx is entered on the file. And there are,…"
Monday
Zoe replied to Spock's discussion 'Isn't Juvenile Diabetes an Antiquated term?'
"Understanding for parents of Type 1 children is great, Leah, but since more people are diagnosed Type 1 as adults than as children, I think we are the ones that need understanding! It's good that you were told you had "type 1…"
Sunday
Leah replied to Spock's discussion 'Isn't Juvenile Diabetes an Antiquated term?'
"When I was diagnosed in 2010, I was told that I had "Type 1 Diabetes, also known as Juvenile Diabetes". Some parents grew up with that terminology and its easier for them to understand what their kid is going through if they can use the…"
Sunday
Spock replied to Spock's discussion 'Isn't Juvenile Diabetes an Antiquated term?'
"I was 10--52 years ago, so was diagnosed while a juvenile. The point for me is that lots of people, who are not juveniles, are diagnosed every day. AND it is type 1 diabetes. I think my problem with it is inaccuracy, as you do not need to be a child…"
Friday
artwoman replied to Spock's discussion 'Isn't Juvenile Diabetes an Antiquated term?'
"I love that they whispered "sugar diabetes" I wonder is there an "aspartame" diabetes for sugar substitute users? Or a "splenda" diabetes? Jong youput a smile on my face this morning."
Friday
JohnG replied to Spock's discussion 'Isn't Juvenile Diabetes an Antiquated term?'
"When I was diagnosed they whispered the term "Sugar Diabetes"...it was kind of like receiving the mark of the beast...:-)"
Friday
artwoman replied to Spock's discussion 'Isn't Juvenile Diabetes an Antiquated term?'
"I have a feeling that since JDRF is focused on type 1, it is helpful to their fundraising if type 1 is associated with children. And let's face it, as one of the major funding sources for research into a cure, my thoughts are whatever works."
Jul 24
Cora replied to Spock's discussion 'Isn't Juvenile Diabetes an Antiquated term?'
"While yes, the term "juvenile" is antiquated, the JDRF does not discourage it's use. Simply because charities and organizations that raise money "for the kids" get a lot more of people's pocketbooks. It's the fund…"
Jul 24
curlysarah replied to Spock's discussion 'Isn't Juvenile Diabetes an Antiquated term?'
"I disagree with it being inaccurate....it may be for you, but not for all. I was diagnosed at 9 years old. So, I was a juvenile diabetic. But now I am an adult type 1. I could care less what people call it or call me. I would rather focus on taking…"
Jul 24
karen replied to Spock's discussion 'Isn't Juvenile Diabetes an Antiquated term?'
"JDRF has tried to "rebrand" but folks won't let them. I was dx'd juvenile and it does not bother me. But then I act very juvenile so it still fits :)"
Jul 24
Sensorium139 replied to Spock's discussion 'Isn't Juvenile Diabetes an Antiquated term?'
"I think it needs to go away, it's very antiqued and inaccurate ...and has been inaccurate since they figured out what type 1 diabetes is. I usually say I''m  a type 1 or insulin dependent . I still get "I didn't know…"
Jul 24
Jen replied to Spock's discussion 'Isn't Juvenile Diabetes an Antiquated term?'
"When I was diagnosed in 1991 the terminology was "insulin dependent diabetes mellitus" so I'm not sure when "juvenile diabetes" was replaced by IDDM. I think "juvenile diabetes" was used back then but I don't…"
Jul 24
Shadow Dragon replied to Spock's discussion 'Isn't Juvenile Diabetes an Antiquated term?'
"As mentioned, JDRF is distancing itself from that term: In addition, we understand that the word “juvenile” is no longer descriptive of the disease or those burdened with it. Today, 85 percent of those with type 1 diabetes in the U.S are…"
Jul 24

Profile Information

The PRIMARY person in my life who has diabetes has
Type 1 or type 1.5 (LADA) diabetes
How do you hope to benefit from TuDiabetes?
Information
Date diagnosed
December 25, 1963
Most recent HbA1C %, date of result (optional)
5.6
Type of treatment/devices you use
Pump, CGM
What pump model do you use, if any?
Minimed revel

Comment Wall (19 comments)

You need to be a member of Diabetes community by Diabetes Hands Foundation: TuDiabetes to add comments!

Join Diabetes community by Diabetes Hands Foundation: TuDiabetes

At 5:55pm on May 1, 2014, shoshana27 said…

Welcome Spock, glad you're a member of Tudiabetes.
This place is awsome.

At 2:30pm on November 3, 2013, Kathy said…

Hi - I just read your comment re restless leg syndrome. I have had it since my early teens and it keeps getting worse and worse (I'm now 60). I cannot go on a long car trip, or even to a concert or lecture or movie without taking a load of requip, which then in 2 hours gives me the side effect of a major frontal headache.
I think most of my doctors think I'm exaggerating how bad it is. One doc put me on iron supplements, which upset my stomach. I even ordered an expensive TENS machine off the web, which, essentially did nothing.
I used to get immediate relief from a hot bath, but, that no longer works. Sometimes I have to just stand and read for a couple of hours until the flare passes. At this point, it is far more challenging to live with than the db. Please let me know if you have fouind anything that helps.

At 6:13pm on October 29, 2013, rick the "Blogabetic" said…

Spock, congratulations on being named a featured member of the week.

At 7:01pm on October 25, 2013, Manny Hernandez said…

Where are you based out of, Spock?

At 6:11pm on October 25, 2013, Linda G said…

BRAVO on being a FEATURE MEMBER again Spock!

At 1:56pm on March 26, 2013, Linda G said…

You're OWNING AN awesome a1c, and you're a FEATURED MEMBER!!! What else could you ask for ;)
CONGRATULATIONS!!

At 11:40pm on February 21, 2013, Holger Schmeken said…

Thanks for the friend add, Spock. My congrats to your excellent A1c.

At 4:40pm on October 30, 2012, acidrock23 said…

Thx for the friend add!

At 9:33am on August 31, 2012, Linda G said…

WOW!!!You're a featured member again!!! BRAVO!!

At 2:50pm on July 4, 2012, jrtpup said…

A bit belated, but congrats on being featured, and thank for all you contibute!

 
 
 

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REsources

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Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


DHF VOLUNTEERS


Lead Administrator

Bradford (has type 1)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)

 

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