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Spooky
  • Female
  • Beverly Hills, CA
  • United States
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Test Strips

Replied Aug 11

Life Expectancy?

Replied Aug 11

14K People With Diabetes Test Their Blood Sugar at the Same Time

Replied Jul 14

 

Spooky's Page

Latest Activity

Spooky replied to marty peters's discussion 'Denied Air Travel' in the group Omnipod Users
wow. I flew Jet Blue and had no problem at all. I would call Insulet and ask them to get involved- write a letter or call on your behalf
November 10
Spooky replied to Nicks Dad's discussion 'Help. Pod or Tubes? Please comment.' in the group Omnipod Users
It sounds like you have a very bright and strong son. I was diagnosed at 17 years old and wasn't as together as he seems to be at 10. To me it's his body and he has to wear it and manage it and because he sounds so extraordinary maybe he knows wha...
November 7
Spooky replied to Robin M's discussion 'Proposed Healthcare Bill' in the group Omnipod Users
my insurance company considers it a durable medical device and I have to have it's necessity reevaluated every three months. Perhaps there will be a way to solve it with recycling or simply just language.
November 3
Spooky replied to Sherry Ann's discussion 'Pod Failures from the "Spare"?' in the group Omnipod Users
I carry two around with me and haven't had any problems with them. One is floating around at the bottom of my purse :(
November 2
Spooky replied to Susan K's discussion 'Alarm While Priming - Am I doing something wrong?' in the group Omnipod Users
I just had one pod do this. The first time it's happened for me. Omnipod replaced it. I also had a difficult time removing the insulin from it. It bent the syringe and had a very strong vacuum as well. Interesting. I had a bunch of failures happen...
October 30
Spooky replied to Mayumi's discussion 'Can you believe it???' in the group Omnipod Users
I hope you get better soon. I know a diabetes nurse from Tennessee who had no clue what the Omni Pod was. I spent a solid hour at a reunion explaining it to him. For the rest of the weekend whenever he saw me he'd talk to me in a robot voice.
October 21
Spooky replied to Mayumi's discussion 'Has anyone had a "HIGH" reading from the PDM ??' in the group Omnipod Users
yes. I did what Tammy did- considered it a 500. I also give myself a few units by injection when this happens as for me it brings it down faster than the pod. hope you feel better soon.
October 16
Robin M replied to Spooky's discussion 'so many pod failures' in the group Omnipod Users
Way to hang in there.
October 15

Profile Information

Hometown (where you come from):
Cape Cod MA
Do you have diabetes?
Yes
Type of diabetes
Type 1
Date diagnosed
October 5, 1986
Type of treatment you use
Pump, Diet and Exercise
What pump model do you use, if any?
Omnipod
What do you expect from TuDiabetes?
connections
How did you find out about us? What were you searching for?
I heard "My grandmother had diabetes" and "OH MY GOD you're not going to shoot up in front of me" once too often and decided I needed to find a group of people who understood what I deal with every day.
What do you do for a living?
photographer

Spooky's Photos

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Spooky's Blog

Spooky

"What's the big deal?" she said

I am a big coffee drinker. I literally felt faint when my doctor told me that coffee can impact my bg negatively. So maybe I have three cups a day. Sometimes four. It's my last vice. I have a five year old daughter and I need coffee.

There is a coffee chain I go to that serves a blended coffee drink regular or sugar free. I ordered a sugar free iced blended mocha with an extra shot of espresso. I first asked to see the nutritional breakdown to make sure sugar free is really sugar free. It was.… Continue

Posted on September 25, 2009 at 8:24pm — 16 Comments

Spooky

You REALLY have Type 1 diabetes

I went to my doctor this week and all is well. My A1C is down another .4 to 7.6 and my doctor said it would be down another 1.5 above that if it weren't for my unreliable pump system. I am almost back to the high 5 low 6 range I have always been in. It's a relief to see my hard work paying off but also angering because of how unreliable my pump is. It's my first pump and I love the freedom of it. My doctor tells me that it shouldn't be this unreliable and wants me to get rid of it but I am dedic… Continue

Posted on September 6, 2009 at 11:12am — 14 Comments

Spooky

just a funny story...

So my insurance company forces me to order my maintenance medications via a mail order pharmacy. It's a battle every time I have to order- just logistically a pain. I also don't like my insulin showing up in a freezer pack and left at my door. It's never cool to the touch when it arrives and I just worry about it's effectiveness being compromised. I've never had a problem but it still bugs me.

This afternoon I am ordering refills via an automated system on the phone. I am trying to enter the rx… Continue

Posted on August 26, 2009 at 2:53pm — 20 Comments

Spooky

Why is diabetes considered a punch line?

Years ago ( 15+) when I was first dating my husband, he took me to a performance by one half of one of the most successful comedy teams in history. It was a comedy/music extravaganza! It was almost a deal breaker in our relationship. It was that bad. The men I usually dated at that time took me to Beastie Boys concerts or away for the weekend to Vegas. Not to see some bloated egomaniac that told his last funny joke 40 years ago. Half way through the show, this comedian makes some lame joke about… Continue

Posted on August 11, 2009 at 4:50pm — 16 Comments

Spooky

worn out

Some days I just feel worn out. I get tired of the daily pain of diabetes. My fingertips hurt from testing my BG. My arm and back hurts from the Omni Pod pump. My stomach has bruises from taking shots of Symlin. I am bruised and banged up. My skin is irritated from the pod adhesive. I have checked my BG so many times today that the last lancet stab didn't even heal and a tiny red speck appeared next to the latest one. I have bloodstains on the pages of the latest book I am reading. From flipping… Continue

Posted on August 7, 2009 at 11:34pm — 10 Comments

Comment Wall (71 comments)

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At 8:59am on October 6, 2009, Danny said…
Hope you had a semi-okay day yesterday. Sorry I did not comment to you yesterday but I had a super busy day. I am sure it was a bit of an emotional day… Spooky, you seem to be doing very well after 23 years of Type 1 Diabetes. Eyes, kidneys and legs all intact, right? What more can you ask for besides a new pancreas.
At 7:34pm on September 18, 2009, Danny said…
Hope you are having a fantastic weekend...
At 5:45pm on September 10, 2009, Danny said…
Well, I am in the middle of rebuilding my page... I get tired of the same page after a while. Nothing worse in life than a stagnant social networking page. I will put my playlist back up in a few moments.

How is your week going?
At 8:53pm on August 23, 2009, Danny said…
I will have to checkout "The Warmth"... Don Rickles was a big part of Las Vegas back in the day...thanks for thinking of me;)
At 8:44pm on August 23, 2009, Danny said…
Wow, I am highly impressed on your knowledge of SHAG. I have a room devoted to old Tiki (Tiki bar) in my home. Awesome that you own original prints. I have a few cool prints but none are original :(

I purchased a Pentax K-2000 very affordable for the features. I tcomes with a 10.2 mega pixel , 18-55 lens. I do own a brand new iMAC that I will use iphoto to edit etc. I uploaded a few photo's on my TU page that I took yesterday.. all of them are on my main page,the pictures are insulin bottles/Diabetic photo's. Check it out when you get a moment.

I am sorry to hear about your husbands job, it will get better :) I look forward to seeing your website, I am sure it will have amazing photo's.
At 6:21pm on August 23, 2009, Danny said…
Hey, Hope you are having a great weekend? I know you do a lot of photography. I purchased a beginner DSLR camera this weekend. I have been tinkering with it since yesterday. I have recently found out how powerful and entertaining a photo can be...thus me buying a camera,lol. If you do not mind me asking, what kind of camera do you use?
At 11:34am on August 13, 2009, Susan K said…
People tell me my pug at 22 lbs is a big one - but yours are bigger. Too cute!
At 10:51am on August 13, 2009, Danny said…
Yes, you are right... I also heard Ad-Rock has Epilepsy. Many years ago he had a problem with the stage lighting system, resulting in a seizure. I could be wrong.
At 8:23pm on August 12, 2009, Danny said…
I saw them on Jimmy Fallon a few weeks ago and they seem to be still making good music....a little older but. I do have the song "egg man" on my music player ( TU mypage).
At 12:36pm on August 12, 2009, Susan K said…
Noticed in your blog post that you said you were pug crazy and had to come see if you had photos of your pugs. Adorable! I'm crazy about my little girl Pippi and am always excited to see someone else with a black pug.

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