Stoyan Male Bronx, NY United States: Like

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Juvenile Diabetes Cure A…

5 members
5 Comments 3 Likes

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Stoyan's Discussions

When were you told a cure is coming?

Started this discussion. Last reply by Turtle Dove Apr 29. 63 Replies 1 Like

I often hear people sharing that when they were diagnosed with type 1 diabetes, their doctors sometimes (often) told them a rather specific time-frame for a cure - in the next 5 years, in the next 10…Continue

Tags: type, 1, industry, research, cure

Where do you want to make the biggest improvements?

Started this discussion. Last reply by MountainCat Apr 2. 2 Replies 1 Like

A post by Cara over at the JDCA blog got me thinking about making improvements in your daily…Continue

Tags: cure, awareness, 1, type, research

Diabetes Foundations...Mission Statements?

Started Mar 21 0 Replies 1 Like

I was wondering how many people on here, who have been involved with, donated money, or participated in any fundraisers by the JDRF, DRIF, ADA or Joslin, were aware of each organization's mission…Continue

Tags: cure, awareness, 1, type, research

How do you explain type 1 Diabates to people?

Started this discussion. Last reply by kestrel Mar 5. 8 Replies 1 Like

A blog post by Cara at the JDCA raised a very good question I believe that will be interesting to see what people think about.Basically…Continue

Tags: cure, awareness, 1, type, research

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Stoyan's Page

Latest Activity

Stoyan commented on Micah's blog post 'Life...'

"It can get tough, that much is for sure. Diabetes especially, no matter how well we try, there will always be problems appearing on the way. I agree, however, that we need a cure. The JDCA always focuses on highlighting this point, because only a…"

Monday

Stoyan commented on TooSweet's blog post 'Cruise ship/Flight attendant'

"Hmmm. I'm afraid I can't be of too much help, but military ship/flight staff unfortunately are not accepted with diabetes. Maybe for commercial service the rules are different, but the only way to know for sure is to call companies and ask."

Monday

Stoyan posted a blog post

New JDCA Video: Donor Action

Hi all,Hoping everyone gets a chance to take a look at our brand new video, Donor Action, which is focused on the reasons why people should stipulate their intentions when giving money to the major diabetes non profits.It's a very important topic, so we very much appreciate any feedback.Have a good weekend!See More

May 25

0 Comments 0 Likes

Stoyan commented on Ariel Stephani Schielke's blog post 'JDRF Walk for the cure'

"It will be even more awesome if everyone donating also makes it clear what specifically they are giving their time and money for. For example, many people donate for a cure, but that isn't generally what the diabetes non profits follow. By…"

May 25

Stoyan commented on Tom Goffe's blog post 'I'm not "Diabetic" - I'm a "DiabetesSurvivor!"'

"I like that term - and I think it will be even more applicable when (yes, hopefully when) we have a type 1 cure. Because it will mean that we have truly survived diabetes and have nothing to fear anymore - not complications, not insurance questions…"

May 25

Stoyan commented on DrewG's group 'Juvenile Diabetes Cure Alliance'

"Hi guys, New video - take Action!!! http://jdca2025.wordpress.com/2012/05/24/jdca-new-video-donor-action/"

May 24

Stoyan replied to Stuart's discussion 'Yes or No: cured in your lifetime?'

"Unfortunately, although it would be great if a raw diet helped with something similar to a cure, we all know that we need the real thing, something we can rely on and feel confident that it really is a cure. Long-term, stable, and without further…"

May 24

Stoyan replied to Stuart's discussion 'Yes or No: cured in your lifetime?'

May 24

christopher g and Stoyan are now friends

May 22

Stoyan commented on Francie's blog post 'Labeled as a "BAD DIABETIC"'

"I agree, type 1 and type 2 are totally, completely different. Different treatments, different conditions, will have different cures. That's why I still actually prefer the name Juvenile Diabetes for type 1, it is distinctive at least."

May 22

Stoyan commented on Emmy's mom's blog post 'Thanks'

"Welcome from me too! Good luck to you and your daughter throughout this journey....hopefully we can find a cure for diabetes so that she and others can live freely."

May 22

Stoyan commented on TooSweet's blog post 'Being too sweet!'

"Haha...this magic elixir...wouldn't be a cure, would it? : p"

May 22

Stoyan replied to Kenny's discussion 'Cure For Diabetes?'

"Hi Kenny, I think we all want a cure, but at the same time realize no one knows when one is coming. I am a member of an organization called the Juvenile Diabetes Cure Alliance whose mission is to help find a cure within out lifetime - hopefully by…"

May 21

Stoyan replied to Doris D's discussion 'What My Dad told me when I became a diabetic'

"Things like this are beyond our control....the only thing we can decide is how to try and fix things. (advocate for cure and better life for diabetics)"

May 21

Stoyan replied to Unknown Diabetic's discussion 'T1 Who wants to come off insulin.'

"Not for type 1, unfortunately. The only thing that is going to work is if we find a cure for diabetes. This is what we have to push for and advocate."

May 21

Stoyan replied to christopher g's discussion 'Diabetic for 1 year and still struggling for control'

"Yep, 1 year is not that long. If you read around TuDiabetes, there are those struggling with it 5, or 10 or even more years after diagnosis. Unless we can find a cure, there will always be problems and complications."

May 21

Profile Information

Either I or a loved one have:: Type 1 or type 1.5 (LADA) diabetes

How do you hope to benefit from TuDiabetes?: Reach out to the type 1 community

Type of treatment/devices you use: Shots

Enter your website, if any (blog, Facebook, Twitter, etc.): http://jdca2025.wordpress.com/

Tell us more about you (optional): Hi everyone,

I am a type 1 diabetic, have been for 5 years now, ever since I was diagnosed upon graduating high school at 18 years of age. I would say that is far from the ideal age of getting a chronic disease, but then again, is there such a thing as a preferred age for getting diabetes? I would think not.

I would not have imagined that I would actually get to do something useful with my disease, but lately I have been doing just that. I work as an associate editor for the Juvenile Diabetes Cure Alliance, where I write for the organization's blog, I interview members of the diabetes community, and do my part in promoting a cure. It is an ambitious project, but it gives me hope, and I hope to share with everyone why I think the JDCA is something different and can make a difference.

Stoyan's Blog

New JDCA Video: Donor Action

Posted on May 25, 2012 at 1:49pm 0 Comments 0 Likes

Hi all,

Hoping everyone gets a chance to take a look at our brand new video, Donor Action, which is focused on the reasons why people should stipulate their intentions when giving money to the major diabetes non profits.

It's a very important topic, so we very much appreciate any feedback.

Have a good weekend!

What does a diabetes cure mean for you?

Posted on April 4, 2012 at 1:53pm 0 Comments 0 Likes

Hi everyone,

Wanted to share three accounts of what a cure for diabetes will mean from members of the JDCA team - myself included (we all have type 1): http://jdca2025.wordpress.com/2012/04/04/what-does-a-diabates-cure-mean-to-you/

So the question is - what will it mean to you? How differently will you live your life without type 1 diabetes? We'll get there - hopefully…

Continue

Who here thought they were "too healthy for diabetes"?

Posted on March 28, 2012 at 9:24am 2 Comments 0 Likes

Yep, that's what my 18 year old mind believed when I was first diagnosed with type 1....I go into detail about it on my blog post at the JDCA: http://jdca2025.wordpress.com/2012/03/23/too-healthy-to-get-diabates/

But I was wondering - anyone else really shocked and found it hard to swallow when you were told you have diabetes? I mean, obviously everyone is surprised when they are told…

Continue

The JDRF, ADA, DRIF, Joslin - How much and where is each foundation spending?

Posted on March 14, 2012 at 9:49am 1 Comment 1 Like

Hi everyone,

Making sure that you all got a chance to look at our newest report over at the JDCA, which examines how the four major non-profits: The JDRF, ADA, DRIF, Joslin spent the donation money they received for 2011. (Though the statistics for the ADA are mostly from 2010 since they are yet to release their info for this year)

A blog on our Review…

Continue

Comment Wall (21 comments)

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Join TuDiabetes - a community of people touched by diabetes

At 3:42pm on March 6, 2012, Natalie ._c- said…: Oh interesting! I'm in a folk dance group, and we do dances from Bulgaria and the other countries in that region. I don't know how much you've listened to your traditional music, but it's WONDERFUL! Beautiful harmonies and unusual
rhythms, and a way of using the voice that is very different from Western European folk singing. I wish I could understand the words, but just hearing the music and moving to it is really enough! :-) And I've seen pictures of the costumes the men and women wear, and they are beautiful and colorful -- the women of East Europe have a tradition of fine needlework that I was lucky enough to have passed down from my grandmother to my mother to me. :-) I hope you enjoy your heritage, because it is priceless! :-)

At 7:43pm on January 27, 2012, Jim Allison said…: thank you sir, nice to meet you

At 10:59am on December 30, 2011, Valerie said…: How did you get involved with this, do you have any epidemiologists?

At 10:56am on December 30, 2011, Valerie said…: I was reading a bit of your posts about JDCA... interesting!

At 5:02pm on December 9, 2011, Catherine Jane Vancak said…: Thanks for the friend add! Nice to "meet" you!

At 12:51pm on November 25, 2011, TaupeLime said…: hey there! i have a question. why dont NGOs like JDCA & JDRF all seeking a cure for type 1 diabetes unite? i mean otherwise it wastes time if each organization is going through its own process of finding a cure, (so long as theyre all non profit)?

At 3:21pm on November 22, 2011, Lara said…: Hi, Stoyan! I knew I recognized your name... from JDCA blog of course. Thanks for commenting on my blog post and thanks for the friend add!

At 9:08pm on October 21, 2011, andrea said…: its 3 miles long and there were 99 kids in my graduating class. So small! If you tell me how old you are i bet i can guess his last name

At 9:20pm on October 17, 2011, andrea said…: thats crazy, glen ridge is such a small town, most people have never even heard of it. But yes, its a really great place to live. Who is your friend?