Susan S
  • Female
  • Milwaukee, WI
  • United States
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Susan S's Discussions

Type 1 Mom with newly diagnosed 4 year old...

Started this discussion. Last reply by MyBustedPancreas Jun 7, 2012. 3 Replies

How do you know when it is time for a pump?

Started this discussion. Last reply by Stuart Aug 19, 2011. 5 Replies


Susan S's Page

Latest Activity

Susan S joined jessica's group

Oh! BABY!!!

A group for those of us who are hoping, wishing, praying, wanting to be pregnant one day. A source of pregnancy web links, helpful tips. frustration, support, happy thoughts, etc.See More
Apr 22, 2013
Susan S joined Tracy Baker's group

Families with Multiple Members with Type 1

A group for families that have more than one member with Type 1.
Aug 13, 2012
JustLookin replied to Susan S's discussion 'Type 1 Mom with newly diagnosed 4 year old...'
"Hello, Diabetes is something that happens. Unfortunatley they don't know why. Probably a combination of a genetic predisposition and some environmental trigger. Firstly diabetes can be managed and managed well, if you have the knowledte and the…"
Jun 7, 2012
gigem99 replied to Susan S's discussion 'Type 1 Mom with newly diagnosed 4 year old...'
"I don't think your doctors were wrong. There is an excellent book called 'Diabetes Rising - How a Rare Disease Became a Pandemic and What to Do About it' by Dan Hurley, where he discusses the odds of getting type 1 diabetes if your…"
Jun 6, 2012
Susan S posted a discussion

Type 1 Mom with newly diagnosed 4 year old...

Hi,My 4 year old daughter was just diagnosed as a T1. I was diagnosed 3 years ago as a T1. No one else in my family has diabetes. My doctors all told me that the chances of my children having diabetes was very low. Obviously they were wrong. I am wondering if there are others in my same situation and can provide any advice, support, etc. I am worried about my younger 2 year old daughter as well rethinking the third child my husband and I were trying to have. I have found this community so…See More
Jun 6, 2012
Susan S joined Penny R.'s group

parents of kids with Type 1

This is a group for the parents of kids with diabetes.
Jun 6, 2012
christy replied to Susan S's discussion 'Question about high blood sugar in 4 year old daughter...'
"Well before putting a kid through a blood draw, as I know I dont particularly enjoy it as an adult, there are a few other questions I'd ask myself first. First of all, are they showing signs of diabetees...frequent urination, frequent thrist,…"
May 28, 2012
Jen replied to Susan S's discussion 'Question about high blood sugar in 4 year old daughter...'
"If you are truely concerned, you could always ask for an A1C test on her. Just depends if you want to put her through a blood draw."
May 28, 2012
christy replied to Susan S's discussion 'Question about high blood sugar in 4 year old daughter...'
"I think its probably a very good chance, she just had sticky fingers. I'd suggest testing again pre meal and post meal(2 hours after eating)and make sure her hands are good and clean and go from there."
May 26, 2012
Gerri replied to Susan S's discussion 'Question about high blood sugar in 4 year old daughter...'
"I hope it was just sticky little fingers. If you repeat the experiment, anything close to 200 or above is extremely high. Not normal BG for a non-diabetic even give a huge amount of carbs, especially 3.5 hours later. Disagree with Elizabeth.…"
May 26, 2012
Elizabeth replied to Susan S's discussion 'Question about high blood sugar in 4 year old daughter...'
"Unclean hands can cause this sort of trouble, but I am curious to know why, if she isn't diabetic, were you testing her BG postprandially? I do understand the impulse to keep tabs on whether your child may have inherited the disease--I test my…"
May 26, 2012
Marie B replied to Susan S's discussion 'Question about high blood sugar in 4 year old daughter...'
"my dad, who was type 2, called me once and said his bg was 400 or something. I told him to wash his hands and test again, he was in normal range. I've heard just handling grapes can give you a wacko bg."
May 26, 2012
Susan S replied to Susan S's discussion 'Question about high blood sugar in 4 year old daughter...'
"Thanks, I hope you are right:). I will follow-up with very clean hand testing."
May 26, 2012
Zoe replied to Susan S's discussion 'Question about high blood sugar in 4 year old daughter...'
"Sorry about my misreading of your post, Susan. I agree with Brunetta. Don't panic (and that syrup on finger thing is definitely a possibility I had that happen once with spreadable fruit). But that is quite high for a non-diabetic, and like I…"
May 26, 2012
Brunetta replied to Susan S's discussion 'Question about high blood sugar in 4 year old daughter...'
"Susan, I do not want to alarm you, but 230 is a pretty high post-prandial for a non-diabetic person, child or adult, even with a high carb intake. Actually it is high for a diasbetic if they are on meds or other treatments to prevcent hyperglycemia,…"
May 26, 2012
Tim replied to Susan S's discussion 'Question about high blood sugar in 4 year old daughter...'
"Most likely this indicates: your daughter still had traces of the syrup on her fingertips :-)"
May 26, 2012

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Date diagnosed
August 13, 2010
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Comment Wall (7 comments)

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At 8:59am on November 3, 2010, rachel said…
Hi Susan! Well, I gradually increased my Lantus by 2 units until I was all the way up to 20 units. I had to go to split dosing (10 units in the morning, 10 units at night) because it seemed to be wearing off by 6pm or so and I was getting really high dinner numbers. I did go low on Lantus - a lot. I have since switched to a pump, and having the ability to adjust my basal rate has made all the difference in the world to me.

Personally, I am of the thinking that a fasting between 100-120 is good. I don't like to go under 100, but that is because I've had a few "near death" experiences with lows at night and in the middle of the night while I'm sleeping. I feel like if I go to bed around 150 with a little residual insulin from dinner and wake up in the 100-teens or 120's, then I'm okay.

I hope that helps answer some of your questions and I hope you are doing well!

Take care,
At 9:02am on August 17, 2010, rachel said…
Hi Susan! I'm sorry for your diagnosis, but I am also happy for you to have some answers and at least be able to go down the right path now... I can't say that I really honeymooned, except that I had what I call a "slow burn" and was basically chasing my basal rate blood sugars in tiny increments - increasing my basal dose of lantus by 1-2 units every few weeks. I finally settled in to a total burnout of my pancreas and a steady basal insulin dose after about a year of tweaking. I hope you like your endo and that it is someone who understands LADA well - I wish you the best and please feel free to ask any question you'd like! - Rachel
At 9:11am on June 26, 2010, rachel said…
I haven't heard of pregnancy skewing those labs and c-peptide is a direct measure of your pancreas' ability to function. Ironically, my c-peptide was .3 also... Let me know what the end says!
At 10:42pm on June 25, 2010, rachel said…
Hi Susan,

Follow Aquarius's path and get checked! Even if it is just for "peace of mind", Get GAD, c-peptides, insulin levels as well and see what they say...I was "misunderstood" after pregnancy and I think we all deserve the simple lab tests it takes to be sure.

Let me know how it goes!
At 6:09pm on June 21, 2010, Bitter-Sweet said…
Continuation....I suggest that you also get tested for GAD and c-peptides. I'm still in shock, but I have changed my lifestyle and eating habits completely anyway, I want to do everything I can to avoid complications and remain as healthy as I can for my 2 girls. Please keep in touch so we can exchange more information, it could be helpful for both. Good luck and take care!
At 6:06pm on June 21, 2010, Bitter-Sweet said…
Hi Susan, I read the message you sent me about your situation being similar to mine. I was also in doubt about what type of diabetes I have, so I insisted to get the tested for GAD antibodies and also for C-peptides (upon recommendation from other diabetics on this group) and my doctor finally agreed to give me "ease of mind". I went last week for my results and I tested negative for GAD antibodies and my C-peptides were fine, so the doctor said that I am not LADA, which I was suspecting after reading about it. I am considered type II, I still find it hard to believe due to no history of diabetes in my family, no obesity, and relatively young compared to other patients.
At 1:34pm on December 2, 2009, Christina Luis said…




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