T1Naomi'sMommy
  • Female
  • Portland, OR
  • United States
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T1Naomi'sMommy's Discussions

End of honeymoon? Celiac? Just typical changing T1D? HELP!

Started this discussion. Last reply by Type1Gal Jan 6. 17 Replies

Sorry if it gets lengthy. I'm at a loss of what to do lately.My Naomi started pumping in late May and control was great all summer. We made a few changes once school started and then again in late…Continue

 

T1Naomi'sMommy's Page

Latest Activity

T1Naomi'sMommy commented on Manny Hernandez's group 'Animas Insulin Pump Users'
"It's Naomi's 1 YR PUMPIVERSARY! A1C went down .8!!"
May 24
T1Naomi'sMommy posted a status
"IT'S NAOMI'S 1 YR PUMPIVERSARY!!"
May 24
T1Naomi'sMommy is now friends with Jake, Robyn and NatalieHodge
May 24
T1Naomi'sMommy replied to Jack's Mom's discussion 'New Dexcom This Year' in the group Dexcom Users
"SO EXCITED!!! Thank you for sharing!! Please if you hear about when it's available and shipping please post! Since we've reached our out of pocket for our insurance it would be covered at 100% of us and I will do backflips and all sorts of…"
May 24
T1Naomi'sMommy shared Jack's Mom's discussion on Facebook
May 24
T1Naomi'sMommy liked Jack's Mom's discussion New Dexcom This Year
May 24
T1Naomi'sMommy joined Michelle Reinhardt's group
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Gastroparesis

For those who has gastroparesis. Needing more information or just here for support.See More
Apr 2
Roark replied to T1Naomi'sMommy's discussion 'Basal or I:C which is the culprit?' in the group Animas Insulin Pump Users
"Based on what you are telling us, I do not agree that Naomi needs more basal at this point. She DOES need more data however. I personally won't make a programming change on my son unless I have two clear indications that: 1). It is actually…"
Mar 4
Jay replied to T1Naomi'sMommy's discussion 'Basal or I:C which is the culprit?' in the group Animas Insulin Pump Users
"BEST ADVICE - CHANGE ONE THING AT A TIME - with a week between. Variables outside the math formula come into play - emotions, sickness (sub-clinical infections), fat-protein content of meal, etc. As I understand DP, it is the liver dumping sugar…"
Mar 4
T1Naomi'sMommy replied to T1Naomi'sMommy's discussion 'Basal or I:C which is the culprit?' in the group Animas Insulin Pump Users
"Naomi's never gone 4.5 hours after a morning bolus without a snack so I don't know what her bg would do in that situation. On the few occasions where breakfast was eaten at a later time Naomi's bg actually went on the lower side and…"
Mar 3
Roark replied to T1Naomi'sMommy's discussion 'Basal or I:C which is the culprit?' in the group Animas Insulin Pump Users
"Out of curiosity, what does her BG look like at 4.5 hours after her AM bolus? Is it in her target range, or does it continue to go high? Next question: What happens to her BG if she skips breakfast? A few more: How long post-diagnosis are you? Are…"
Mar 3
dxclancy replied to T1Naomi'sMommy's discussion 'Basal or I:C which is the culprit?' in the group Animas Insulin Pump Users
"Seems reasonable. You could choose a day when her BG is good at 7-7:15 and skip breakfest. Then see what it does until 10a when she would normally eat a snack. If it goes up, it's a basal adjustment. If it holds steady, it's a morning I:C…"
Mar 1
T1Naomi'sMommy replied to Andrew's discussion 'Accidental bolusing' in the group Animas Insulin Pump Users
"Strange! Might be a good idea to call Animas and report it- no harm can come from that!"
Feb 17
T1Naomi'sMommy replied to abbygirl1's discussion 'Animas Ping vs. Omnipod for 3 year old' in the group parents of kids with Type 1
"My daughter is 7, almost 8. I debated between the same two pumps and 8 months ago we started pumping with the Animas Ping. We love it. Not once has the tubing been an issue. I'd say it took a couple days to a week for her to get used to the…"
Feb 8
paul replied to T1Naomi'sMommy's discussion 'Basal or I:C which is the culprit?' in the group Animas Insulin Pump Users
"I had a similar issue of my BG spiking more than 2 hours after eating breakfast. I needed to increase the basal a little, but what made the biggest difference was changing what I ate first thing in the morning. I changed from eating cold cereal…"
Feb 7
jodiiiii replied to T1Naomi'sMommy's discussion 'Basal or I:C which is the culprit?' in the group Animas Insulin Pump Users
"The only thing I would suggest is change one variable at a time. Try it a few times to get to a solid consistent number. but i would definitely tweak the basal. good luck!"
Feb 6

Profile Information

Either I or a loved one have:
Type 1 or type 1.5 (LADA) diabetes
How do you hope to benefit from TuDiabetes?
Support and answers to my questions
Date diagnosed
October 28, 2010
Most recent HbA1C %, date of result (optional)
7.5, 7.7%, 7.0%, 6.9%
Type of treatment/devices you use
Pump, CGM
What pump model do you use, if any?
Animas Ping

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Comment Wall (31 comments)

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At 1:56pm on March 27, 2011, Doris D said…
Hope you and your family made the best of it!
At 11:59pm on March 25, 2011, Kristin said…
Happy birthday!!!
At 3:04pm on March 25, 2011, Linda Gauvin-Miller said…
How's your little angel doing??

Greetings Naomi'sMommy....
Best Wishes on your Special Day....and on the next 364 days!
How's it all going? Do you have any questions or comments?
At 9:51am on March 25, 2011, Doris D said…
At 4:23am on March 25, 2011, lotsofshots said…
Hi there, I hope that you have a super fantastic Hanppy Birthday today!
At 9:29pm on March 3, 2011, Clinitest said…
Hi Alissa,

Glad to hear that Naomi is a trooper for sure. It does make a child grow up quick dealing with some responsibilities. She will soon learn on her own what foods don’t make her feel good and that eating wrong things doesn’t make you feel good. This is good! Taking her own shots now is very good! I have mixed feelings on the CGM myself. I tried the Medtronics one and didn’t like it. Now, I am exploring the Dexcom. But, you are right, all we need is another gadget attached to us now. I have hard enough time finding fresh places to use my pump! Great on going to Gales Creek. That is the camp that I should have gone too as a kid. I was a recluse. I wish I did go so that I could have met some other kids with diabetes. It wasn’t until I was 35 until I met another diabetic. Sad. But, my very first Endo who started the Portland Diabetes Center (Dr. John Stephens…super Doctor he was) also started that camp. It is great. My Endo now attends the camp (Neifing). I actually volunteer at one near Spokane. It’s a good camp too called Camp Fun in the Sun. I know a lot of CDE’s there in Spokane and help them out on troubled cases. Neifing wanted me to go to Gales one of these times to help. I may see if they need help there this summer too! Anyway, nice to make your acquaintance. Ken
At 8:40pm on March 3, 2011, Clinitest said…
Hi, I noticed your daughter just recently being diagnosed. I hope she is doing ok. Young kids who get this have a long road a head for sure. I was 4 when I got it. But, I just wanted you to know that things will be ok. Parents at this age definitely set the stage for setting good rules for how they deal with this in the future. My parents were awesome. I have them to thank for setting me on the right path. I volunteer at diabetic camps in the summer now. Try and get her to one of those if you can. She will meet some friends. I was stupid and didn't go to them when I was younger. Feel free to ask questions if you need to. I am in Beaverton. Ken
At 12:27am on December 4, 2010, Kristin said…
Of course you can print it! How cool that you keep a box! That's good idea :) We'll have to do it for our kids.
At 2:05pm on December 2, 2010, Kristin said…
Have you heard of DaVinci Sugar Free syrups? They are great ways to give flavor to cookies, muffins, jogurts, etc. without adding any carbs. They also have a zero carb pancake syrup, which I think tastes great. They are made with Splenda, which I prefer to other sweetners.

I usually order them from Netrition.com (http://www6.netrition.com/cgi/prices.cgi?manu_id=121), but they are available online many places and even in some stores.
At 1:39pm on December 2, 2010, Kristin said…
Thanks :) This site opened up a new world for me. I was diagnosed with diabetes when I was 21 and did a lot of self-education. I moved abroad on my own one year after diagnosis and took full responsibility for my care. At that time, I didn't know about any online communities and although I learned a lot from books, internet, and my doctor (before I left the USA), I now realize how terribly alone I was. I was SO excited when I found this site that for more than a year I spent A LOT of time here (at least an hour a day). So I replied to A LOT of discussions. :)

I hope that despite the daily struggles that you are all now facing, you can keep in mind that Naomi will grow up to be a wonderful woman despite of or maybe even partially because of type 1 diabetes. I wish that no child and parents had to face this lifestyle, but your little girl will dream big and follow those dreams. Diabetes can't change that! I tried to keep a blog about diabetes (but never kept up with posting), but click here to read one of my posts about how I struggled with this.

I'm a big muffin fan! I send you a couple of my favorite recipes. I don't know if she likes cinnamon and nuts (I don't think that I did as a kid), but I just tried this one out this week. I used whole grain flour and made 16 muffins (instead of 12) and it worked out to 10g per muffin, which is a nice snack. I'll send you a chocolate muffin recipe in a message.
 
 
 

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