". . . and I have, indeed, tried to "send an email to the team." So far, dead silence. Still trying."
-
TuAnalyze Team
- Boston, MA
- United States
- Blog Posts (10)
- Discussions (2)
- Events
- Groups
- Photos
- Photo Albums
- Videos
TuAnalyze Team's Discussions
Published Report: Experiences of Hypoglycemia Among TuDiabetes Members
Started this discussion. Last reply by Elissa Weitzman Mar 8. 29 Replies 12 Likes
We are pleased to announce the publication of a new report about hypoglycemia, based on the experiences of TuDiabetes members: Using data from the…Continue
TuAnalyze Team's Page
Latest Activity
AngelaC liked TuAnalyze Team's discussion Published Report: Experiences of Hypoglycemia Among TuDiabetes Members
wutdiabeticseat liked TuAnalyze Team's discussion Published Report: Experiences of Hypoglycemia Among TuDiabetes Members
CJ liked TuAnalyze Team's discussion Published Report: Experiences of Hypoglycemia Among TuDiabetes Members
David (dns) replied to TuAnalyze Team's discussion 'Published Report: Experiences of Hypoglycemia Among TuDiabetes Members'
sweety1691 liked TuAnalyze Team's discussion Published Report: Experiences of Hypoglycemia Among TuDiabetes Members
acidrock23 replied to TuAnalyze Team's discussion 'Published Report: Experiences of Hypoglycemia Among TuDiabetes Members'"As. Dr. Weizman explained: "The article will be freely available through PubMed in one year. This is a long delay and I have submitted a request to the journal to allow us to make the report available to the community and will keep you posted.…"
bewest replied to TuAnalyze Team's discussion 'Published Report: Experiences of Hypoglycemia Among TuDiabetes Members'"Thanks for confirming that the data from TuAnalyze will be used to develop copyrighted materials with limited access. This is a significant dis-incentive to participating.
Can you reproduce the raw data somewhere so that someone who has paid can…"
Tess liked TuAnalyze Team's discussion Published Report: Experiences of Hypoglycemia Among TuDiabetes MembersDavid (dns) replied to TuAnalyze Team's discussion 'Published Report: Experiences of Hypoglycemia Among TuDiabetes Members'"I get all of that, and it's all true, much good will undoubtedly result from it in a great many ways and many people will benefit. It's a very good thing.
My gripe is that WE were the test subjects, we provided the data, without us there…"
acidrock23 replied to TuAnalyze Team's discussion 'Published Report: Experiences of Hypoglycemia Among TuDiabetes Members'"That's a great way to put it!! Scientists only believe stuff they can quantify and the report, at least from the precis, appears to do that and leaves the door open for more research. I was thinking it'd be pretty low cost to so a study on…"
Emily Coles replied to TuAnalyze Team's discussion 'Published Report: Experiences of Hypoglycemia Among TuDiabetes Members'"I get that some folks are disappointed that they can not access the full paper themselves, but here's some good news: this report is getting lots of attention! This means it is reaching people who probably didn't already know…"
shoshana27 replied to TuAnalyze Team's discussion 'Published Report: Experiences of Hypoglycemia Among TuDiabetes Members'"i test often to prevent lows but sometimes it hits me so fast that my vision goes & glucose is always in my mouth ...by myself when i was a child i remember my mother pouring sugar water in my mouth & of course spilling all over me
that is…"
TV liked TuAnalyze Team's discussion Published Report: Experiences of Hypoglycemia Among TuDiabetes MembersTV liked TuAnalyze Team's discussion Published Report: Experiences of Hypoglycemia Among TuDiabetes Members
Manny Hernandez replied to TuAnalyze Team's discussion 'Published Report: Experiences of Hypoglycemia Among TuDiabetes Members'"Zoe, I really wish that we could publicly post the PDF for the paper (I really do). Unfortunately, this has everything to do with the way these academic journals work.
It is my understanding, and something that makes me feel very happy, that…"
Zoe replied to TuAnalyze Team's discussion 'Published Report: Experiences of Hypoglycemia Among TuDiabetes Members'"This is very interesting, because the whole idea of this research was based on the contributions of the DOC, and the strongest principal of online communities is open access to, and sharing of, information. A bit contradictory imho."
Profile Information
- How do you hope to benefit from TuDiabetes?
- To share the TuAnalyze project and results with TuDiabetes users
Welcome to the official page for the TuAnalyze application!
The mission of TuAnalyze project is to empower people touched by diabetes to track, share and compare their health information for research advancing diabetes care and public health response. Beyond that, we want to be able to provide meaningful feedback to our users for contextualizing their experience with diabetes. The TuAnalyze map already provides a real-time display of A1c within the TuAnalyze community; in our blog, we will be posting more detailed findings from the survey responses.Follow our blog to be updated whenever new results are posted. And if you have any questions, comments or suggestions for what you want to see out of TuAnalyze, please let us know!
TuAnalyze Team's Blog
CGM and insulin pump malfunctions: results from the TuAnalyze Device surveys
Posted on January 24, 2012 at 8:00am 0 Comments 1 Like
On our recent blog post sharing data from the hypoglycemia survey, we noticed a number of comments about problems with continuous glucose monitors and…
Continue Published results from the TuAnalyze Hypoglycemia survey!
Posted on January 9, 2012 at 7:00am 26 Comments 2 Likes
Thank you to everyone who has taken the TuAnalyze hypoglycemia survey! We presented results from the survey at the International Society for Disease Surveillance meeting this past December.
At the meeting, we reported on the frequency of severe hypoglycemia and the…
Early TuAnalyze Survey Results Show Members Having Serious Problems with Devices
Posted on November 1, 2011 at 8:00am 0 Comments 3 Likes
Last week we launched two new surveys in TuAnalyze, on insulin delivery systems and blood glucose monitors. A big thank you to everyone who has taken these surveys—so far each has been completed over 200 times!
The purpose of these surveys, which were developed in…
Take our new survey on device use!
Posted on October 27, 2011 at 12:07pm 0 Comments 2 Likes
Today the TuAnalyze team launched two new surveys to learn about your device use experiences, problems and malfunctions. These surveys respond to a compelling need to create direct channels of communication between consumers—who individually and collectively have insight into…
ContinueComment Wall (7 comments)
You need to be a member of Diabetes community by Diabetes Hands Foundation: TuDiabetes to add comments!
Join Diabetes community by Diabetes Hands Foundation: TuDiabetes
- At 7:56am on October 24, 2011,
Elissa Weitzman said… - Thank you for your note: we agree this would be very helpful. Our development cycle for the TuAnalyze application has this type of functionality available only at a later date--this type of reporting back is computation intensive for automatic display and in some small sample sites, breaking down participants by characteristic can be quite revealing. We will try to pick these ideas up for analysis and feedback through other mechanisms (we have in the past blogged to the community and shared research findings including by posting tables and graphs and even slide decks of results). Please continue to share questions and ideas--your ideas are valuable.
-Elissa Weitzman and the TuAnalyze team
- At 10:44pm on October 22, 2011,
Stuart said… - Can MORE data be added to your TuAnalyze map?
Can "Diabetes Experience": be another table that can be analyzed? My state for example provided a fairly small sample size. But I for one would LOVE to know who my peers are who provided that data in terms of their diabetes experience(s).
How old are we in my state?
How many years have we been diagnosed and achieved these A1C percentages.
Under 1 year?
Under 5 years?
5-10 years?
10-20 years?
20-35 years
Etceteria. Can this kind of data be added/priovided to the state tables?
- At 4:03pm on May 2, 2011,
Doris D said… - I wanted to thank all of you guys for being here for us!
- At 7:58pm on March 17, 2011,
Terrie said… - Thank you for explaining who the Team consists of Elissa. I just didn't feel comfortable talking to a "wall", so to speak. I'll read the rest.
- At 6:40pm on March 17, 2011, Elissa Weitzman said…
- Hi Terrie, You can learn more about the project if you click the "About TuAnalyze" link under the TuAnalyze menu (TuDiabetes homepage). I'm one of the leaders of the project and am faculty at Children's Hospital Boston and Harvard Medical School. The team includes doctors, public health scientists and developers (software). TuAnalyze is a research project run in collaboration with the Diabetes Hands Foundation. Funding is from the US Centers for Disease Control and Prevention (CDC). Feel free to email us (team), or send me a note here or to elissa.weitzman@childrens.harvard.edu). Best wishes, Elissa W.
- At 6:11pm on March 17, 2011, Terrie said…
- Hello!
May I ask who exactly is(are) TuAnalyze Team?
- At 12:25pm on October 21, 2010, Doris D said…
- other's on our Forum.WELCOME TO OUR BIG LOVING & CARING FAMILY!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Here's a link to help new member's get to know more "About Us: http://www.tudiabetes.org/notes
Also please put up a picture of you or something related to you so we can tell you from
Advertisement
REsources
Groups
From the Diabetes Hands Foundation blog...
Together, We Can Get Diabetes Co-Stars to 10,000 Views!
Above is a photo of Diabetes Hands Foundation’s own Manny Hernandez with the stars of the Diabetes Co-Stars Video, “Strength in Numbers.” In case you haven’t heard the news yet, there is a new video making it’s way through the …Continue Reading
Congratulations Diabetes Advocates Scholarship Recipients!
The Diabetes Hands Foundation and Diabetes Advocates Program is proud to announce and congratulate the members of DA who were granted scholarships to attend diabetes conferences in 2013! Thanks to a generous grant from Novo Nordisk, in 2013 we were …Continue Reading
TuDiabetes Team
DHF STAFF
 Manny Hernandez(Co-Founder, Editor, has LADA)
|
DHF VOLUNTEERS
Lead Administrator
 Bradford (has type 1) |
Administrators
 Lorraine (mother of type 1) |
 Marie B (has type 1) |
|
|
|
|
|
|
LIKE us on Facebook
Spread the word
This site complies with the HONcode standard for trustworthy health information: verify here.
© 2013 A community of people touched by diabetes, run by the Diabetes Hands Foundation.
