"Hey, Wendi. Noticed you haven't signed on in much lately and that you're still using the default "welcome - upload your photo" hand image as your profile image. If you'd like to add some kind of picture to be your profile…"
"I have attached the initial clinical trial results for the drug teplizumab, which is the subject of the Protege study. Be aware that while it sounds very promising, it is not without adverse events. For example, in the attached journal entry, the…"
"I don't have an omnipod for my daughter, but am obsessed with it and follow all your guys discussions here, you have a great, brigt, supportive group.
fyi, we have a minimed paradigm, I had to buy a cheap pc to run her software, it is also not…"
I would love for you to e-mail me and be glad to answer any questions you might have about my experience. As for the side effects, here's a brief description of what I experienced. Note I did not begin experiencing any side effects…"
I am now looking at the DELAY study at Yale. It is Teplizumab for recent onset, 4-12 months. it is 50/50 that you get the placebo. It is at Yale, 1 hour away. It is for my 11 year old daughter. so the scheduling is somewhat more…"
"I was diagnosed last December at age 27 and made the decision to participate in the Protege study (http://www.protegediabetes.org/), a clinical trial of the monoclonal antibody teplizumab. I am not familiar with abate, but based on your question and…"
"I have been looking into this.
I think that Chromium, Magnesium and vitamin D3 are important. Someone told me about insul-opt. It has a huge list of ingredients. I have looked each one up and I am not so sure. they sound great on the insul-opt…"
"Thank you for the website. It's all very interesting. some of it seems so promising. Our center has the GAD trial but my daughter was too young. By the time it opens up to her age, she will be past eligibility for new onset. but we will try the…"
"Thank You. I tried to go to that website, but it has nothing about diabetes on it?
My daughter is 11, she weighs 90 lbs. I sent them an email (Herold) he sent one back, we will see, it's a recent onset, not new onset, so she might qualify.
"Check out joshualevy.com "Cures for Diabetes". He lists all the trials, what phase they are in, and has links to the research papers. You will be able to go to one web site and get tons of information. Good luck. We did try to get my niece…"
Hey, Wendi. Noticed you haven't signed on in much lately and that you're still using the default "welcome - upload your photo" hand image as your profile image. If you'd like to add some kind of picture to be your profile photo, look for the "Settings" link in the upper right portion of each page (next to the little silver gears). The very first option in Settings will walk you through changing your profile image. Good luck!
I think that it is a good idea to check out pumps right away! Learning to use the pump well does require time and energy, but it is a worthwhile investment for the flexibility that it will give your daughter (and you)!
I would HIGHLY recommend checking out the Cozmo pump. That was the first pump that I used and I really like it. I think that it is the most kid-friendly pump. Many doctors only work with Minimed because it is the biggest pump provider on the market. I use the Minimed now and I like it, but I see some real advantages in the Cozmo pump for kids (more user friendly, more alarms, more fool-proof in my opinion). You can contact a Cozmo representative directly and they will usually come to your house (or doctor's office) and show you the pump. You could also contact the Animas pump company.
Does the doctor want your daughter to start on a continuous glucose monitor as well? That is one advantage on the Minimed pump-- it already has an integrated continuous blood glucose monitor.
In my opinion, it is not important that your doctor knows how to re-program the pump. Your doctor will offer advice, but you need to learn how to program everything on the pump. So I would not see it as a problem if your daughter uses a different pump than the doctor usually uses. I suggest researching all your options. I have heard that some LOVE the Omnipod and others really didn't like it. But you should have a chance to see all and choose!!
Above is a photo of Diabetes Hands Foundation’s own Manny Hernandez with the stars of the Diabetes Co-Stars Video, “Strength in Numbers.” In case you haven’t heard the news yet, there is a new video making it’s way through the … Continue Reading
The Diabetes Hands Foundation and Diabetes Advocates Program is proud to announce and congratulate the members of DA who were granted scholarships to attend diabetes conferences in 2013! Thanks to a generous grant from Novo Nordisk, in 2013 we were … Continue Reading