"I had an islet transplant through UIC. May will be 4 years since my transplant and Sarni is correct in saying that it isn't an easy process. I"ve been insulin free since July 2006 but that was just a bonus, my ultimate goal was to…"
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YayIslets
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Halloween in the USA... if you had diabetes as a kid....
Started this discussion. Last reply by Doris D Sep 25, 2007. 3 Replies 0 Likes
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"I am on immunosupression meds and have been since the transplant.
I had my transplant at University of Illinois Medical Center at Chicago."
"you can find information about the effects of islet transplantation and the immunosupressants used at http://www.citregistry.org/ look under "reports", "exhibits". in the 2009 report, adverse events are listed in Chapter 7. This…"
"I have heard that the anti-rejection medication makes your numbers even higher. Hopefully changing dosages with your meds will work."
Profile Information
- Date diagnosed
- January 24, 1980
- Most recent HbA1C %, date of result (optional)
- 5.5
- Type of treatment/devices you use
- Diet and Exercise
- What pump model do you use, if any?
- Pre transplant I used a minimed paradigm 512.
- Enter your website, if any (blog, Facebook, Twitter)
- http://none
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Labs Labs Labs Labs
Posted on January 19, 2008 at 9:58am 1 Comment 0 Likes
My latest A1c was 6.2. Not bad. It's higher then I'd like it but given the holidays and having been sick for the three weeks prior to my last blood draw I'll take it.
My cholesterol however is another story 269. Good lord! it went up 100 points since October. They've upped my Lipitor dose and maybe that will help. High cholesterol has been a constant battle for me since high school when it was first diagnosed. Heart disease runs in both sides of my family so time to nip… Continue
My cholesterol however is another story 269. Good lord! it went up 100 points since October. They've upped my Lipitor dose and maybe that will help. High cholesterol has been a constant battle for me since high school when it was first diagnosed. Heart disease runs in both sides of my family so time to nip… Continue
crazy birds!
Posted on January 13, 2008 at 7:17am 2 Comments 0 Likes
There are geese flying north already! What's up with that? Crazy birds.
I handed out bread at the pond behind my home and counted carbs.
Sad for me. I still see every food item as a number, even if I'm not the one eating.
I handed out bread at the pond behind my home and counted carbs.
Sad for me. I still see every food item as a number, even if I'm not the one eating.
One small reason I'm glad I had the transplant
Posted on January 9, 2008 at 3:30pm 1 Comment 0 Likes
The past two days have been car maintenance days from hades. The roads here are full of potholes thanks to the nice thaw we been having and yesterday on the way to work we hit a giant crater. Thank the gods it was within walking distance of home because my partner, (we'll call her M) broke a bolt trying to loosen the nuts to put on the spare. Good times. Now mind you we both start work at 4:30am, so it was rainy, and dark and Michigan in January is just cold no matter how thawed… Continue
Happy Happy and all that jazz!
Posted on January 6, 2008 at 6:32am 0 Comments 0 Likes
Ok, so I'm a bit late on the Happy New Year, here's my resolution bit but I've had a cold so I've been asleep for oh that past week and a half!
sooo
Happy Happy!!
and you don't get to know my resolution! It's personal and I'm trying to be a better more positive me so I'm not even going to talk about the incredible crabby me that has inhabited my head for the past few months! I know, I know, you're thinking "its okay! you work retail, it was Christmas. its normal to… Continue
sooo
Happy Happy!!
and you don't get to know my resolution! It's personal and I'm trying to be a better more positive me so I'm not even going to talk about the incredible crabby me that has inhabited my head for the past few months! I know, I know, you're thinking "its okay! you work retail, it was Christmas. its normal to… Continue
Medical ID - Do you wear one?
Posted on December 4, 2007 at 7:41pm 4 Comments 0 Likes
I ordered a new ID bracelet today from www.roadid.com. Anyone that knows me, knows I'm a big fan of their product. I first found them about five years ago when I was searching for medical ID bracelets that were customizable and yet didn't have metal parts that would touch my skin. I've been hooked ever since! They have a new interactive ID (same idea as medic alert) and of course I had to have one!
I'm a dork what can I say? ;)
I'm often befuddled by people that… Continue
I'm a dork what can I say? ;)
I'm often befuddled by people that… Continue
Comment Wall (11 comments)
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- At 5:22pm on April 7, 2009,
SheyFey said…
- Thanks for the hotel information. I was a bit stumped when I saw the prices for the hotel close to UIC. I may have a job but I am not rich. I will keep your email address handy. I am coming up with all kinds of questions now that I am getting into the thick of it.
- At 7:20pm on January 10, 2009,
John Sangdahl said… - I heard that you got your transplant in Chico. I contacted the recruiting nurse yesterday. She sent me some paper work. How has your transplant worked? How many years have you had it? Are they trying new drugs to keep the islet cells working longer?
- At 9:54pm on June 22, 2008,
Jason Meadows said… - Yes parrot, I'm stalking you. ;) j/k
- At 11:18am on December 22, 2007,
Robin said… - Hey there...I also had an islet cell transplant. Mine however was different than yours. I had Chronic Pancreatitis so they removed my pancreas and harvested MY islets and then put them in the portal vein of my liver. They have taken up residence in my liver and are doing pretty well. I have severe hypoglycemia unawareness, which is why I wear a CGMS.
I hope you are doing well!
Robin
- At 5:50pm on October 30, 2007,
Judith said… - My dad instilled in me a layman's love of reading history and it spills over into all aspects of my life, including diabetes. I very much appreciate your trips down the lanes of history! I have read much, of course, but it is even better to get it from someone who lived it. Thank you!.....Judith in Portland
- At 6:06pm on October 21, 2007,
Manny Hernandez said… - I thought I received a message from you, but when I went to check there was nothing.
Can you write to me at manny at tudiabetes dot org with your choice for the prize?
- At 5:58am on October 9, 2007,
Amylia Grace said… - I just emailed the folks in Chicago to see about the islet cell transplants. I'm VERY curious about it. I'd love to talk to you about it in detail. Would you mind emailing me at amyliagrace@yahoo.com?
Thank you!
- At 5:57am on September 10, 2007,
Doris D said… - Oh goody another Type 1!!!! Nice to meet you! Welcome!!!!
- At 3:48am on September 10, 2007, Manny Hernandez said…
- I hadn't met anyone who had undergone Islet cell transplant before. It's now so common to see "shots" or "pump" for type 1's who join the site as answers to the question "type of treatment you use" that you could have passed "under the radar" as a prediabetic. :)
I am glad you found us, and I would like to welcome you to the growing TuDiabetes family!
- At 3:37am on September 10, 2007,
Luis E said…
- Hi there, welcome aboard!
Here are some tips on how to make the most of the site.
If you find the community useful, we'd be honored if you could link to us on your blog/site if you have one or invite family, friends, colleagues and anyone whom you feel may benefit from it.
And if you know of any other folks who only speak Spanish, please let them know about EsTuDiabetes.com our sister Spanish-speaking community.
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