jlin1024
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  • Draper, UT
  • United States
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Pre-Diabetes Testing - Type 1 Diabetes Trial Net Screening

Started this discussion. Last reply by jlin1024 Jan 16, 2012. 6 Replies

Being a T1 diabetic and having my oldest son diagnosed as an infant, I always feared for my 2 other children getting diabetes. I had my 10 year old daughter tested in the Type 1 Diabetes Trial Net…Continue

Tags: Net, Trial, Diabetes, Pre

 

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Profile Information

The PRIMARY person in my life who has diabetes has
Type 1 or type 1.5 (LADA) diabetes
How do you hope to benefit from TuDiabetes?
I hope to benefit by learning from others and there experiences.
Date diagnosed
April 7, 1983
Type of treatment/devices you use
Pump
What pump model do you use, if any?
Animas
Enter your website, if any (blog, Facebook, Twitter)
http://www.epp-ecase.com
Tell us more about you (optional)
Facebook
http://www.facebook.com/profile.php?id=1070277709

Hello! My name is Jennifer Lindley. I have always been passionate about diabetes as I have had Type 1 for over 28 years and my son, Jordan is Type 1 too. He has had diabetes most of his life (19 years – he is 20). We have been very fortunate thru our lives to be able to use the most advanced technology to monitor our diabetes. I have always believe in quality of life while we wait for a cure.

I am the owner of Essential Preparedness Products (EPP). We are a new Utah based company. We launched our first product – Diabetic Ecase August 2011. I developed this product based upon the events that took place from Hurricane Katrina. As I watched the events of Hurricane Katrina unfold, I remember a news clip of a person stranded on his rooftop. He had spray painted the word “DIABETIC” on the roof. I knew at that moment what his needs were and felt helpless. We are also in production of an Asthma Ecase that will launch this year.

My vision and mission are simple...
Vision: To revolutionize emergency preparedness for people living with chronic illnesses.

Mission: To prepare people living with chronic illnesses to be their own personal hero through the receipt of a Diabetic Ecase, preparedness education and community inclusion.

I have also had the privilege to serve on the BOD for JDRF – Juvenile Diabetes Research Foundation - Utah Chapter.

Latest Activity

Manny Hernandez and jlin1024 are now friends
May 29, 2012
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Jan 16, 2012
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JDRF Salt Lake Tri-County Walk to Cure Diabetes Aug 2011

Emma (my sweet niece - just diagnosed a month earlier with T1) and my sweet Julia (Trial net studies show positive for auto-antibodies)We have many reasons to walk for a cure
Jan 16, 2012
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Diabetics Business Network

An international network of diabetics who wish to help each other with business information, ideas, contacts and interaction.
Jan 16, 2012
jlin1024 replied to jlin1024's discussion 'Pre-Diabetes Testing - Type 1 Diabetes Trial Net Screening'
"Thank for the info! Jennifer"
Jan 16, 2012
jlin1024 replied to jlin1024's discussion 'Pre-Diabetes Testing - Type 1 Diabetes Trial Net Screening'
"Hello Capin101! Thanks for the comments. I am not doing weekly BG checks at this point. She is not interested in this and I don't want to make her think I am worrying about this. So we check about one a month just to see where it is. We have…"
Jan 16, 2012
Brian (bsc) replied to jlin1024's discussion 'Pre-Diabetes Testing - Type 1 Diabetes Trial Net Screening'
"Riva Greenberg just blogged about the upcoming T1 research summit. They will be doing TrialNet screening at the summit if you sign up beforehand."
Jan 13, 2012
Capin101 replied to jlin1024's discussion 'Pre-Diabetes Testing - Type 1 Diabetes Trial Net Screening'
"I had my 2 year old tested at Trial net within the last 6 months. I was very anxious for the results and luckily they cam back negative. All the antibodies have been linked (at least loosely) to the future development of T1, but there are some which…"
Jan 13, 2012
jlin1024 replied to jlin1024's discussion 'Pre-Diabetes Testing - Type 1 Diabetes Trial Net Screening'
"Thank you for the quick reply. I am thinking along the same lines as you are. I don't feel that she should have to take on the worry that she may get diabetes. My doctor has been great to work with on this. My daughter is already very…"
Jan 11, 2012
bobnominous replied to jlin1024's discussion 'Pre-Diabetes Testing - Type 1 Diabetes Trial Net Screening'
"Depending on age, I would not tell my daughter until it became necessary. You can already push a healthy eating style by example, and you know the signs to watch for, so she is unlikely to be in any immediate danger. By not saying anything, you…"
Jan 11, 2012
jlin1024 posted a discussion

Pre-Diabetes Testing - Type 1 Diabetes Trial Net Screening

Being a T1 diabetic and having my oldest son diagnosed as an infant, I always feared for my 2 other children getting diabetes. I had my 10 year old daughter tested in the Type 1 Diabetes Trial Net Screening because she was showing some crazy blood sugars when she was sick a while back.From what I understand on this test... they are tested for 3 particular autoantibodies. If the test is negative, then no diabetes showing at this point of life. If 1 or more autoantibodies are present then there…See More
Jan 11, 2012

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Comment Wall (6 comments)

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At 6:44pm on January 7, 2012, acidrock23 said…

Pretty much visiting and kibbitzing and exchanging information, stories, sympathy, etc.? I don't bother too much with groups as there are so many of them, I mostly hang out on the forums and bit on the blogs and that's it. A lot of people only hang out in the groups and that's ok too. I also do the TuAnalyze reporting up at the top and like tossing my numbers into their pot as it feels like I'm doing something?

At 5:34pm on January 7, 2012, acidrock23 said…

Thx for the friend add and nice to meet you!

At 5:18pm on November 16, 2011, Linda G said…

Welcome home jlin.....
This is a great place to share, to learn, and to grow...all the while meeting new people world wide, and making friends ♥
Take a peek at some the groups when you get a chance. Just go to the top of your page, and click on "Groups".
Once in, you can either peruse the wide array of available groups....or simply type a specific interest in the space provided.
Take in some of the blogs/discussions as well.
-------------------------------------------------------------------------------------------------
Hope you find the support and information you came looking for.
Here is a useful link to get you on your way:
http://www.tudiabetes.org/notes
--------------------------------------------------------------------------------------------------
Take care....and keep in touch!

At 4:29pm on November 16, 2011, Donna H said…

Welcome to TuDiabetes! Check out some of the groups -- it's a great way to get to know the community.

At 9:28am on November 16, 2011, brokenpole said…

Welcome to the family!! On this forum you will learn so much. Most of all you will learn that you are not alone. Everyone here is supportive and will provide answers to your questions. Search the site for answers. Read the discussions and blogs for information. There are videos to help you understand diabetes and its treatment. Most of all there is family to talk to and even to vent to, if needed. Welcome home.

At 8:16pm on November 15, 2011, Doris D said…

WELCOME TO ONE OF THE GREATEST FAMILIES YOU WILL EVER MEET MY FRIEND!!!! WE'RE GLAD YOU JOINED US!!!!!!!!!! Please introduce yourself on our forum. Questions??? Just ask one of us or post it on our forum and you will get many answers there.

Here's a link to help our new member's get to know us better: http://www.tudiabetes.org/notes

 
 
 

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Manny Hernandez
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Emily Coles
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