Jms1313's Friends

  • Jacob's mom
  • Emily Coles
 

jms1313's Page

Latest Activity

jms1313 replied to cat's discussion 'bad absorption in all the right places :(' in the group OmniPod Users
"On my daughter we rotate each side of her stomach and then each leg. The legs always run higher so we started adjusting her basil when it is on her leg. This has worked - we bumped it .05 each time until we found the right number. Talk with your…"
May 2
jms1313 replied to tebbemae's discussion 'FastIng basal working-bolus is not' in the group OmniPod Users
"I would call your Endo as this is a serious question. Doubling Bolus could be dangerous - I would never double anything - small increments and see the results each time - MAYBE - but not double. My daughter reads different when on her legs - she…"
Apr 16
jms1313 replied to EVIESMOM's discussion 'Looking for the a pump for my 3 yr old.' in the group parents of kids with Type 1
"My Daughter has the omniPod aswe did not want to deal with tubing."
Apr 7
jms1313 replied to EVIESMOM's discussion 'Looking for the a pump for my 3 yr old.' in the group parents of kids with Type 1
"The pump is the way to go. 1- for control 2 - flexibility - 3- less pokes by needles. My daughter still cringes when we have to change the pump but she would never consider going back. She can resume a closer to normal lifestyle. Still have to count…"
Apr 7
jms1313 replied to Mom 2 Kyle's discussion 'Pod fell off after shower ...' in the group OmniPod Users
"I buy this tape Kineseo or something like that for my daughter - I get it on Amason - it's not over sticky but really help to keep it on during swims and showers. You do use the prep wipes before - right?"
Apr 5
jms1313 replied to k's discussion 'new pods here!' in the group OmniPod Users
"Did you receive the letter letting you know they were coming? I called last week and they said they would be notifying us when it was time and we have received nothing??"
Apr 5
jms1313 replied to NatalieHodge's discussion 'Pod alarm during field trip' in the group OmniPod Users
"The school will follow to the letter what the 504 says to dodge any liability. Get with your Doc and see if they can modify 504 order to give your daughter a little more freedom. Our doc wouldn't due to liability reasons of their own Best…"
Mar 14
jms1313 replied to michelle13's discussion 'recently diagnosed with T1. please help.' in the group parents of kids with Type 1
"I can remember the feelings you are describing - sleepless nights worrying and second guessing. Just know that it does get better and with knowledge and time you both will become more comfortable with the routines. I would recommend getting Dr.…"
Mar 9
jms1313 replied to aimeeh2oski's discussion 'What happens to IOB after a pod change?' in the group OmniPod Users
"My understanding of IOB is based on the absorption time of the insulin - it does not remain in the pump. Wait 10 min and the insulin is injected and you should not have to compensate for pump change? Please correct me if this isn't correct but…"
Feb 24
jms1313 replied to Momtomad's discussion 'Help! Huge sugar spike for no reason!' in the group parents of kids with Type 1
"My daughter goes high when she is cutting new teeth- there are so many things that can affect BG - the important thing is to not panic and realize there are no bad numbers you are controlling the best you can. You don't want your daughter to…"
Feb 7
jms1313 replied to Mom 2 Kyle's discussion 'OmniPod Pros and Cons' in the group OmniPod Users
"OK - I know this is totally unrelated - but for those of you that have kids with small toys - I have been opening up the pods before I throw them away and have collected hundreds of batteries that fit many of my kids smaller toys. This size battey…"
Feb 5
jms1313 replied to Mom 2 Kyle's discussion 'OmniPod Pros and Cons' in the group OmniPod Users
"This is true - however my daughter has gone from preferring her shots in the bum to having her pump on her stomach - I have to make her move it around. I think they tend to find where they are most comfortable wearing it and want to use those spots…"
Jan 24
jms1313 replied to Mom 2 Kyle's discussion 'New, smaller Pods - order now or wait?' in the group OmniPod Users
"My daughter is very active and does have a problem with the pump malfunctioning from time to time when she jars it too much - try buying some Kinesio tape - it secures the pod and comes off very easy without any mess."
Jan 24
jms1313 replied to Mom 2 Kyle's discussion 'New, smaller Pods - order now or wait?' in the group OmniPod Users
"The PODS are great - my 8 year old had one fail today so I went to get her at school - even when we were changing it a day early she said she was so glad to have the pump and never wanted to have to do shots again. Knowing what I know now I would…"
Jan 23
jms1313 replied to TC's discussion 'Finding Friends with T1D for your Child' in the group parents of kids with Type 1
"We have had great luck with JDRF activities in our area. See if thee is a local chapter there.God Luck."
Jan 23
jms1313 replied to Mom 2 Kyle's discussion 'OmniPod Pros and Cons' in the group OmniPod Users
"My 8 year old loves the OmniPod as much as anyone can. She did not like the tubing either. There is the occasional BAD pod but hey - it happens and we just change it and move on. Insulet has been great about replacing them so I just save them up…"
Jan 21

Profile Information

The PRIMARY person in my life who has diabetes has
Type 1 or type 1.5 (LADA) diabetes
How do you hope to benefit from TuDiabetes?
Lean others experiences and challenges and how they have dealt with them as well as any solutions found to common issues
Date diagnosed
October 26, 2010
Most recent HbA1C %, date of result (optional)
6.4
Type of treatment/devices you use
Shots
Tell us more about you (optional)
I have a 7 year old daughter that was just diagnosed a little over a year ago. Trying to figure it all out - She has been on Lantus and Novalog - we just switched to Levimere as I read an article on Lantus being linked to certain types of cancer in children. A study was done in Germany. She seems to go lower on Levimere - trying to figure out dosage. It sucks not to be able to just fix things. I dont think I have slept a full night since she was diagnosed - I get up once or twice a night to check on her.

Comment Wall (10 comments)

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At 6:56pm on July 22, 2012, Michael said…

FYI when the new pods come out the PDM change is manditory and there is no charge as I understand from there investor statement. They make up the cost of the new PDM in the first shipment of pods. I struggle with the cost but love the system. Hope all is well with you.

At 2:37pm on February 27, 2012, aliceclones said…

First off, your girls are beautiful!
I didn't want to post this on the public boards, since i know that discussing such personal things infront of the whole world can be painful. I don't know your personal situation, or if you are even interested in checking into this, but based on some of your comments, you may be able to push for more than 60/40 custody. My brother started with that, and now they are more at 85/15. None of my nieces and nephews have any chronic health problems (just more mental and emmotional scarring from an off balance mother). The courts take it very seriously when one parent wont follow through on medically necissary care. I will be praying for you and your girls. D is hard enough to deal with when you have 2 parents on board and in agreement. Doing it on your own, and against a reluctant parent has got to be extremely tough.

At 6:26am on February 27, 2012, Jacob's mom said…

Hi jms, i just want to let you know i feel your pain, i can't imagine handling diabetes and divorce it is so important to be on the same page when caring for your D child, we have our family struggles and just this weekend we had some highs and my husband and i were discussing things and jacob said you wouldnt be arguing if i didnt have diabetes ( meanwhile i was thinking we might not be still married if you didnt have diabetes!) it is so important for me to instill in him normalcy and support so he can better learn and deal with his D as just another part of his life. i would have a serious talk with your ex about her ego and it's effect on her precious daughter, she needs to leave the drama behind and work on making her daughter feel safe and supported, this site is awesome for support and information you are obviously a good dad, doing your best one day at a time is probably the best way to get through this tough time hang in there! amy

At 5:34pm on February 22, 2012, Jacob's mom said…

Hi jms , it sounds like she is going in the the right direction, it might take another day or so for her bs's to settle out but as long as ketones are almost gone you are probably out of the woods, lots of fluids is the best action when they are under the weather and ketones are on board, glad she is doing better, hang in there, this is a great site for support and info. all the best, amy

At 5:06pm on January 31, 2012, Donna H said…

Welcome to TuDiabetes! Check out some of the groups -- it's a great way to get to know the community.

At 5:05pm on January 30, 2012, Linda G said…

Welcome home jms...
This is a great place to share, to learn, and to grow...all the while meeting new people world wide, and making friends ♥
Take a peek at some the groups when you get a chance. Just go to the top of your page, and click on "Groups".
Once in, you can either peruse the wide array of available groups....or simply type a specific interest in the space provided.
Take in some of the blogs/discussions as well.
The resource boxes at the top of the home "Home" page, and
"About us" at the very bottom of your page and every page (the footer), offer you more information still.
-------------------------------------------------------------------------------------------------
Hope you find the support and information you came looking for.
Here is a useful link to get you on your way:
http://www.tudiabetes.org/notes
--------------------------------------------------------------------------------------------------
There are also groups here for parents of children with D., such as....
"Parents of Kids with type 1" and "Kids with Diabetes"
--------------------------------------------------------------------------------------------------
Take care....and keep in touch!

At 9:17am on January 30, 2012, Doris D said…

WELCOME TO OUR LOVING, CARING, AND UNDERSTANDING FAMILY MY FRIEND!!! Great to have you here with us!!!!Please feel free to check out our Forum, Blogs and Groups here!!! If u have any questions please feel free to ask any of us or put it on our forum. To answer any of us back just hit the "comment back "bar under our comments and you will go to our page where you can leave a comment to us and also read abit about us.

Here's a link to help you get to know more about us: http://www.tudiabetes.org/notes

At 6:18am on January 30, 2012, Marie B said…

hello and welcome! please join our group for parents

http://www.tudiabetes.org/group/parentsofkidswithtype1

At 5:52am on January 30, 2012, SEAGATOR said…

Welcome to our wonderful family. We are a very caring and supportive group. Questions? Please feel free to ask us, Please read the BLOGS the FORUMS and check out the many GROUPS for much valuable advice and information. WELCOME!!!

At 1:39am on January 30, 2012, brokenpole said…

Welcome to the family! On this forum you will learn so much. Most of all you will learn that you are not alone. Everyone here is supportive and will provide answers to your questions. Search the site for answers. Read the discussions and blogs for information. There are videos to help you understand diabetes and its treatment. Most of all there is family to talk to and even to vent to, if needed. Welcome home.

 
 
 

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