Jms1313's Friends

  • Jacob's mom
  • Emily Coles
 

jms1313's Page

Latest Activity

jms1313 replied to yousof's discussion 'low blood sugar 3am treatment for 2.5 child' in the group parents of kids with Type 1
"We have found carbs and fat at bedtime and our daughter going to bed at about 160 to 170 will bring her in at 110 to 120 in the morning. It takes a little testing. Fats cause the foods to digest slower so if he has milk be sure it isnt low fat."
Feb 26
jms1313 replied to Jennifer's discussion 'Doing this by myself' in the group parents of kids with Type 1
"Here is a mans perspective. Shame on any man who does not take the time to understand their kids health. I travel as well and am recently divorced - from the start I read every book I could find about diabetes so I could understand what is best…"
Jan 4
jms1313 replied to Graeme Swift's discussion 'OmniPod Customer Care Line Issues' in the group OmniPod Users
"I was on hold for over 2 hours steady today - never picked up. I called yesterday and was on hold over an hour and left a message with no call back."
Aug 9, 2013
jms1313 replied to rpwils's discussion 'High morning numbers' in the group parents of kids with Type 1
"There are so many variables - Placement of pump, stress, growth etc... My daughter is the same age and has been diabetic for 3 years - the only thing we find that helps us is consistency - routine - and we still have swings in BG - but 85% pretty…"
Aug 4, 2013
jms1313 replied to meh_mtl's discussion 'OH Canada! I have news!' in the group OmniPod Users
"They only care about new business and new money for their business not the clients that have helped get them there. I've been hearing that since last year. I hope that it works out for you."
Jul 16, 2013
jms1313 replied to Kate's discussion 'Great CS Experience!' in the group OmniPod Users
"If we have any left when we transition we would be glad to send them to you."
Jul 9, 2013
jms1313 replied to john's discussion 'Omnipod PDM Wishlist: A list of changes like to see in the PDM software!' in the group OmniPod Users
"Free Market and free speech - I have written letters and been as diplomatic as anyone can be to no avail - I logged 31 phone calls - 3 letters and have offered to buy the system outright and bypass insurance - their response is they do not have…"
Jul 2, 2013
jms1313 replied to john's discussion 'Omnipod PDM Wishlist: A list of changes like to see in the PDM software!' in the group OmniPod Users
"Lots of companies start out with pure motives and morf and grow into things not originally intended - Im sure his intentions were good but actions speak louded than words"
Jul 2, 2013
jms1313 replied to john's discussion 'Omnipod PDM Wishlist: A list of changes like to see in the PDM software!' in the group OmniPod Users
"They don't have a soul - it's all about the money - they wont even allocate the new smaller PODS for kids and infants that are currently on the system - the ones to whom the smaller pods mean the most until they gain all the new clients…"
Jun 30, 2013
jms1313 replied to Jacob's mom's discussion 'Do you check your blood sugar 1.5 hours after putting on a new pod?' in the group OmniPod Users
"I guess we do it backwards - we check BS before removing the old pod - then adjust to where her BS would be around 80 to 100 - change pod and call that good. We have never had a problem in 3 years or had her run high. A1C's in the mid 6's."
Jun 26, 2013
jms1313 posted a blog post

Does Insulet Have a Soul? Like most big corporations - NO!

I have been trying for months to get my Petite 8 year old a new smaller pump. She is very tiny and it would make a significant difference in her day to day life. I called Edgepark Medical - they told me that Insulet had instructed them to NOT sell anymore PDM's (controllers) for the new smaller pods. I have offered to just buy one out right as my insurance will cover the new PODS no problem but I need the controller. I then called Insulet and was informed that all new pod production was being…See More
Jun 20, 2013
jms1313 replied to vickim1970's discussion 'question before i call insulet' in the group OmniPod Users
"I called Insulet and Edgepark- Im sure Insulet stands for-the company without a soul. I asked them if I could just buy the new PDM because my insurance would supply the new PODS. They said they wouldn't even sell me one that I had to wait until…"
May 26, 2013
jms1313 replied to cat's discussion 'bad absorption in all the right places :(' in the group OmniPod Users
"On my daughter we rotate each side of her stomach and then each leg. The legs always run higher so we started adjusting her basil when it is on her leg. This has worked - we bumped it .05 each time until we found the right number. Talk with your…"
May 2, 2013
jms1313 replied to tebbemae's discussion 'FastIng basal working-bolus is not' in the group OmniPod Users
"I would call your Endo as this is a serious question. Doubling Bolus could be dangerous - I would never double anything - small increments and see the results each time - MAYBE - but not double. My daughter reads different when on her legs - she…"
Apr 16, 2013
jms1313 replied to EVIESMOM's discussion 'Looking for the a pump for my 3 yr old.' in the group parents of kids with Type 1
"My Daughter has the omniPod aswe did not want to deal with tubing."
Apr 7, 2013
jms1313 replied to EVIESMOM's discussion 'Looking for the a pump for my 3 yr old.' in the group parents of kids with Type 1
"The pump is the way to go. 1- for control 2 - flexibility - 3- less pokes by needles. My daughter still cringes when we have to change the pump but she would never consider going back. She can resume a closer to normal lifestyle. Still have to count…"
Apr 7, 2013

Profile Information

The PRIMARY person in my life who has diabetes has
Type 1 or type 1.5 (LADA) diabetes
How do you hope to benefit from TuDiabetes?
Lean others experiences and challenges and how they have dealt with them as well as any solutions found to common issues
Date diagnosed
October 26, 2010
Most recent HbA1C %, date of result (optional)
6.4
Type of treatment/devices you use
Shots
Tell us more about you (optional)
I have a 7 year old daughter that was just diagnosed a little over a year ago. Trying to figure it all out - She has been on Lantus and Novalog - we just switched to Levimere as I read an article on Lantus being linked to certain types of cancer in children. A study was done in Germany. She seems to go lower on Levimere - trying to figure out dosage. It sucks not to be able to just fix things. I dont think I have slept a full night since she was diagnosed - I get up once or twice a night to check on her.

Jms1313's Blog

Does Insulet Have a Soul? Like most big corporations - NO!

Posted on June 20, 2013 at 10:20pm 0 Comments

I have been trying for months to get my Petite 8 year old a new smaller pump. She is very tiny and it would make a significant difference in her day to day life. I called Edgepark Medical - they told me that Insulet had instructed them to NOT sell anymore PDM's (controllers) for the new smaller pods. I have offered to just buy one out right as my insurance will cover the new PODS no problem but I need the controller. I then called Insulet and was informed that all new pod production was…

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Comment Wall (10 comments)

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At 6:56pm on July 22, 2012, Michael said…

FYI when the new pods come out the PDM change is manditory and there is no charge as I understand from there investor statement. They make up the cost of the new PDM in the first shipment of pods. I struggle with the cost but love the system. Hope all is well with you.

At 2:37pm on February 27, 2012, aliceclones said…

First off, your girls are beautiful!
I didn't want to post this on the public boards, since i know that discussing such personal things infront of the whole world can be painful. I don't know your personal situation, or if you are even interested in checking into this, but based on some of your comments, you may be able to push for more than 60/40 custody. My brother started with that, and now they are more at 85/15. None of my nieces and nephews have any chronic health problems (just more mental and emmotional scarring from an off balance mother). The courts take it very seriously when one parent wont follow through on medically necissary care. I will be praying for you and your girls. D is hard enough to deal with when you have 2 parents on board and in agreement. Doing it on your own, and against a reluctant parent has got to be extremely tough.

At 6:26am on February 27, 2012, Jacob's mom said…

Hi jms, i just want to let you know i feel your pain, i can't imagine handling diabetes and divorce it is so important to be on the same page when caring for your D child, we have our family struggles and just this weekend we had some highs and my husband and i were discussing things and jacob said you wouldnt be arguing if i didnt have diabetes ( meanwhile i was thinking we might not be still married if you didnt have diabetes!) it is so important for me to instill in him normalcy and support so he can better learn and deal with his D as just another part of his life. i would have a serious talk with your ex about her ego and it's effect on her precious daughter, she needs to leave the drama behind and work on making her daughter feel safe and supported, this site is awesome for support and information you are obviously a good dad, doing your best one day at a time is probably the best way to get through this tough time hang in there! amy

At 5:34pm on February 22, 2012, Jacob's mom said…

Hi jms , it sounds like she is going in the the right direction, it might take another day or so for her bs's to settle out but as long as ketones are almost gone you are probably out of the woods, lots of fluids is the best action when they are under the weather and ketones are on board, glad she is doing better, hang in there, this is a great site for support and info. all the best, amy

At 5:06pm on January 31, 2012, Donna H said…

Welcome to TuDiabetes! Check out some of the groups -- it's a great way to get to know the community.

At 5:05pm on January 30, 2012, Linda G said…

Welcome home jms...
This is a great place to share, to learn, and to grow...all the while meeting new people world wide, and making friends ♥
Take a peek at some the groups when you get a chance. Just go to the top of your page, and click on "Groups".
Once in, you can either peruse the wide array of available groups....or simply type a specific interest in the space provided.
Take in some of the blogs/discussions as well.
The resource boxes at the top of the home "Home" page, and
"About us" at the very bottom of your page and every page (the footer), offer you more information still.
-------------------------------------------------------------------------------------------------
Hope you find the support and information you came looking for.
Here is a useful link to get you on your way:
http://www.tudiabetes.org/notes
--------------------------------------------------------------------------------------------------
There are also groups here for parents of children with D., such as....
"Parents of Kids with type 1" and "Kids with Diabetes"
--------------------------------------------------------------------------------------------------
Take care....and keep in touch!

At 9:17am on January 30, 2012, Doris D said…

WELCOME TO OUR LOVING, CARING, AND UNDERSTANDING FAMILY MY FRIEND!!! Great to have you here with us!!!!Please feel free to check out our Forum, Blogs and Groups here!!! If u have any questions please feel free to ask any of us or put it on our forum. To answer any of us back just hit the "comment back "bar under our comments and you will go to our page where you can leave a comment to us and also read abit about us.

Here's a link to help you get to know more about us: http://www.tudiabetes.org/notes

At 6:18am on January 30, 2012, Marie B said…

hello and welcome! please join our group for parents

http://www.tudiabetes.org/group/parentsofkidswithtype1

At 5:52am on January 30, 2012, SEAGATOR said…

Welcome to our wonderful family. We are a very caring and supportive group. Questions? Please feel free to ask us, Please read the BLOGS the FORUMS and check out the many GROUPS for much valuable advice and information. WELCOME!!!

At 1:39am on January 30, 2012, brokenpole said…

Welcome to the family! On this forum you will learn so much. Most of all you will learn that you are not alone. Everyone here is supportive and will provide answers to your questions. Search the site for answers. Read the discussions and blogs for information. There are videos to help you understand diabetes and its treatment. Most of all there is family to talk to and even to vent to, if needed. Welcome home.

 
 
 

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