jojo
  • Female
  • Cresskill, NJ
  • United States
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jojo's Discussions

Too good to be true, funny Omnipod fail story

Started this discussion. Last reply by Gerri Aug 4, 2011. 4 Replies

So, I am reading last night on Tudiabetes,in the Omnipod Users group about all the omnipod fails everyone has, etc etc, how truly disillusioned people are with this and upset, and Im thinking to…Continue

Omnipod at the Beach/waves/sand

Started Jul 17, 2011 0 Replies

Hi posted this on the omnipod group also. New to pumping with my 13 year old daughter.Going to the beach in cape cod in 2 weeks. Have been doing well with swiming in the poolConcerned about the ocean…Continue

omnipod start

Started this discussion. Last reply by acidrock23 Jun 20, 2011. 7 Replies

I am so excited and scared. Thursday is our Omnipod Saline start for my 13 year old daughter almost on the 1 year anniversary of her diagnosis. Is this going to be hard for us? I just got the whole…Continue

omnipod and freestyle strips

Started this discussion. Last reply by Kate May 11, 2011. 7 Replies

woo hoo!! found our today that my insurance will cover the omnipod start up and pod supplies 100% for my 13 year old daughter. She is so excited. I am slightly anxious because of the learning curve…Continue

 

jojo's Page

Latest Activity

jojo replied to dalajosa's discussion 'Controlling BG after hard work-out in evening in 12 yr old' in the group OmniPod Users
"agree with above. My daughter usually has to be at least 150 before she starts intense exercise and stay on temp basal -25% for at least 4 to 5 hours after sometimes longer , otherwise she wakes me up at like 2am with a BG of 50."
May 3
jojo replied to ENDSwME's discussion 'pdm - 400' in the group OmniPod Users
"doesn't seem right that they cant help. Lots of reasons to drop PDM by accident, what about kids on omnipod who drop it? good luck."
May 3
jojo replied to Mike777's discussion 'Abbot/Omni-Pod - Both NEED to be held accountable!!!!' in the group OmniPod Users
"They put out an updated press release on March 13 on Abbott Diabetes Care that said they hope to have strips to suppliers in 30-60 days. I called them again after I got my free 400 strips and told them I had 900 strips I just got and paid for…"
Mar 20
jojo replied to Kate's discussion 'Test Strip Recall' in the group OmniPod Users
"Totally agree with you clare. What is weird though is that my supplier , Express Scripts a mail order pharmacy, finally has the recall on their website and they say they will not reimburse for recalled strips and going forward if I need more strips…"
Mar 9
jojo replied to Kate's discussion 'Test Strip Recall' in the group OmniPod Users
"same thing happened to me and I called them twice this week. Told them due to insurance issues they cannot be "my supplier""
Mar 1
jojo commented on Emily Coles's event 'Live Interview with Bennet Dunlap: D-Advocacy and the FDA'
"HOW timely in light of the massive Abbott Freestyle strip recall for 3 meters, including intergrated meter in Omnipod Insulin pumg"
Feb 25
jojo is attending Emily Coles's event
Feb 25
jojo replied to Kate's discussion 'Test Strip Recall' in the group OmniPod Users
"SueSue, Im with you. I agree that Insulet has to recall and insert newer technology into its PDM's, Its a shame that we were all converted over to the new smaller pods over the last 8 months with the new PDM and now to find out it was really…"
Feb 24
jojo replied to Natasha Bowlds's discussion 'Results of my very scientific test strip experiment. :)' in the group OmniPod Users
"I have a question. I never understood why people took it upon themselves to change the code to 17 . If I get strips that say 16 and the meter reads it as 16 where did it start that people thought it was better to change code to 17 on strips that are…"
Feb 24
jojo replied to Natasha Bowlds's discussion 'Results of my very scientific test strip experiment. :)' in the group OmniPod Users
"theres a group on FB called Omnipod Users, thats where I got my info 4 days ago about the recall."
Feb 24
jojo replied to Jack's Mom's discussion 'Express Scripts Formulary Changes - Appeals / Process / Approval?' in the group OmniPod Users
"I got the same letter last month . I decided I wouldnt fight the Humalog switch over since its very similar to novalog, but I did talk to the my Human Resource department about the freestyle strips telling them that omnipod has to use freestyle and…"
Dec 9, 2013
jojo replied to NatalieHodge's discussion 'type one teen noncompliance' in the group parents of kids with Type 1
"She should try to switch to doing all her boluses herself. Its gonna be a bumpy ride but its best for her. The diabetes center we go to in NYC tells us at 12 they should be responsible for all their testing and boluses thats their goal. My daughter,…"
Dec 9, 2013
jojo replied to Jack's Mom's discussion 'Express Scripts Rejection of Insulin for Four Year Old' in the group parents of kids with Type 1
"I think you should get a lawyer , this is ridiculous. I have express scripts also and got a letter a month ago telling me 1. we have to switch over to Humalog and 2. they will only approve one touch meter and strips , no other. My daughter is on…"
Dec 9, 2013
jojo commented on Penny R.'s group 'parents of kids with Type 1'
"My 15 year old was on steriods last winter when her asthma flared up, we had to up her basal by 50%, she is on a pump and we tested frequently, if your son is miserable , I dont know why they wont give him a small sliding dose (5-7 days)worth of…"
Dec 9, 2013
jojo replied to Graeme Swift's discussion 'OmniPod Customer Care Line Issues' in the group OmniPod Users
"was told the same exact thing"
Sep 5, 2013
jojo replied to Graeme Swift's discussion 'OmniPod Customer Care Line Issues' in the group OmniPod Users
"Had the same exact issue over the last week, including leaving 2 voice mails , where no one got back to me. I finally waited till 8pm last night and called and pressed the option which for customer care when you have and issue. waited on hold for…"
Sep 5, 2013

Profile Information

How do you hope to benefit from TuDiabetes?
support of other parents
Date diagnosed
July 22, 2010
Most recent HbA1C %, date of result (optional)
12.6
Type of treatment/devices you use
Shots

Jojo's Blog

Finesse Insulin Patch Pen

Posted on October 5, 2010 at 11:17am 4 Comments

Hi
Has anyone seen or used this? It like a cross between a pump and a pen. My 12 year saw this and said this is what she would like. She is not into pumps , and is off put by the Insulin pens. This looks like a good thing. Its very small stays on for 3 days , is not electrical, and can be used to bolus for meals with Novolog or humalog. You squeeze 2 buttons on the side to dispense a bolus of Insulin. I cant find out if its available yet and how much.
Jojo, mom of Sarah

Comment Wall (9 comments)

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At 5:22am on January 23, 2013, Jacob's mom said…

yikes! i saw your post about the pms spikes, my son is 14 obviously i cant offer up to much info other than support, i have heard this can happen but didnt realize it could be so extreme, i would try posting that question on the main type 1 page and you could probably get a good discussion going with women with years of experience, maybe it settles out a bit as the years go on, i certainly hope so i would worry about her crashing down after, i think a call to your endo might not be a bad idea to to help with a strategic plan, i think i would encourage low carb eating that week. in an case just wanted to let you know you were thought of today, hope things get better! amy

At 12:30pm on October 5, 2011, NatalieHodge said…
OH No!! I can see how that would happen. Yes, you can see the + and - on it as you dial it! we have just been lowering the dose using the exact dose since she is only on .1u of basal, our only choices are .05 or .1!! She did three hard hours of choreography today with that and started at 109 and ended at 119. AMAZING!!
At 12:27pm on October 5, 2011, NatalieHodge said…
Thanks!! Have heard of them, will get a few, do they stay on well?
At 8:20am on October 5, 2011, NatalieHodge said…
I am SO glad to hear that! Today is Kennedy's first day of choreography with the pod. She's a competitive dancer and pretty routinely does 5 hour stints of class, technique, today is choreography with a guest choreographer, so we are hopeful she can get through it without a major mishap! We bolused for breakfast 1.2 units, then started a temp basal of .05 down from .1 for the duration. I told her just go for it! She's got the pod on her belly with some purple coban wrap, which is sufficiently cool appearing for her! I wish your daughter the best, Kennedy would love to catch up with her sometime.
looking forward to learning with you and troubleshooting! ( Did I read you are a nurse? I am a pediatrician! www.personalmedicine.com www.personalmedicineofkentucky.com and most recently blogging at www.healthergy.net
Best,
Natalie
At 11:42am on September 4, 2010, Jim Roach said…
Welcome to TuDiabetes Jojo!
At 5:16pm on July 28, 2010, catlover said…
Hi jojo- Welcome to TuD. We are a very friendly and supportive community. We hope you like it here. We have lots of moms that have T-1 kids, you will definitely get support and your questions answered.
At 10:06am on July 28, 2010, Doris D said…
WELCOME TO OUR REALLY BIG FAMILY JOJO!!!!!!!!!!!!!!!!!!!!!!

Check out the Groups Linda told you about. Not only am I a Type 1 (for soon to be 37 years, but am the mom of a TYpe 1) We got threw it and YOU CAN TOO!
At 7:54am on July 28, 2010, Marie B said…
hi jojo, glad to have you with us. I live in far NW NJ. let me know if you have any questions about the community.
At 7:24am on July 28, 2010, Linda G said…

Welcome home jojo, c'mon in out of the rain!.....This is so very new to you. How's it all going? So glad that you're here.
Take a peek at some the other groups when you get a chance. Take in some of the blogs/discussions as well.
-----------------------------------------
Hope you find the support and information you came looking for. Here are a few useful links to get you on your way:
http://www.tudiabetes.org/group/minimedparadigmusers
http://www.tudiabetes.org/notes/New_Member_Guide
and I also wanted to invite you to enter your A1c through the TuAnalyze application:
http://www.tudiabetes.org/profiles/profile/apps
so we can light up the TuAnalyze map:
http://www.tuanalyze.org
There are also more groups here for parents of children with D., such as....
"Diabetes Civil Rights-School", Children of Tomorrow" and "Kids with Diabetes"
----------------------------------------------
Take care....and keep in touch!
 
 
 

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