Welcome to Katie's page :)

Latest Activity

Mario replied to Katie I.'s discussion 'My T-Slim leaks insulin :(' in the group Tandem T:Slim Users
"Katie, If you still have issues after they get you the new batch of cartridges, give them a call and ask them if it is possible for them to send you a loaner pump. You can ship them yours once it arrives and they can fully inspect the pump for any…"
Dec 15
Katie I. replied to Katie I.'s discussion 'My T-Slim leaks insulin :(' in the group Tandem T:Slim Users
"Yeah, I know what you mean- thanks for your feedback. I have used Humalog since it first came out and I never noticed any skin problems with it. Only a small red dot when I remove a site, which I understand to be normal. I told my endo that I…"
Dec 15
Katie I. replied to Katie I.'s discussion 'My T-Slim leaks insulin :(' in the group Tandem T:Slim Users
"Thanks for your help! I talked to a customer service guy from Tandem today. They are sending me a new box of cartridges and I'm going to send them my existing box back so they can test it. Yes, I thought of all the things you've…"
Dec 15
niccolo replied to Katie I.'s discussion 'My T-Slim leaks insulin :(' in the group Tandem T:Slim Users
"One other thought: Are the rashes close to where your infusion set is located? Because a localized rash is often an indicator of an allergic reaction to the insulin you're injecting. Is it possible you switched insulin, for example from humalog…"
Dec 15
niccolo replied to Katie I.'s discussion 'My T-Slim leaks insulin :(' in the group Tandem T:Slim Users
"I'm curious, when you say you wear your pump touching your body, what do you mean? In other words, if we're just talking about the pump itself, how does it stay in place alongside your body? Or do you mean inside the case with the clip? I…"
Dec 15
Mario replied to Katie I.'s discussion 'My T-Slim leaks insulin :(' in the group Tandem T:Slim Users
"Things to try: Call Tandem and request a new batch of cartridges. Give them the lot number on yours and tell them how many you have had issue with. They will replace them. They are an excellent company in all respects and will try their best to help…"
Dec 15
niccolo replied to Katie I.'s discussion 'My T-Slim leaks insulin :(' in the group Tandem T:Slim Users
"The odds of multiple cartridges being defective in the same way, even within a particular batch, should be very, very low, albeit not zero. You mentioned yanking, can that be avoided? Are you perhaps putting pressure on your tubing in other ways? If…"
Dec 14
megninjapow replied to Katie I.'s discussion 'My T-Slim leaks insulin :(' in the group Tandem T:Slim Users
"Sounds like you might have gotten a few bad boxes of cartridges. I would call Tandem they are great about replacing them really quickly."
Dec 14

Profile Information

The PRIMARY person in my life who has diabetes is
me
The PRIMARY person in my life who has diabetes has
Type 1 or type 1.5 (LADA) diabetes
How do you hope to benefit from TuDiabetes?
A nice community with no judgment. :)
Date diagnosed
January 10, 1986
Most recent HbA1C %, date of result (optional)
5.7%
Type of treatment/devices you use
Pump
What pump model do you use, if any?
Minimed Paradigm 723; soon to be the T-Slim!!
Enter your website, if any (blog, Facebook, Twitter)
http://www.flickr.com/photos/14369422@N04/

A little bit about me (this is long, so bear with me!)…

My diagnosis: I have had T1 since I was 6 years old. My mom, who is a nurse and now a CDE (among other certifications) noticed that I was dropping weight, throwing up, and drinking tons of water. Apparently my brother (who is two years older than me) and I had both been sick with a virus, but my mom figured that it was normal—after all, it was January and we were kids. My brother got better, but I never did. My mom brought home a ketone strip from work and held it while I sat on the toilet and urinated on it. She took one look at the strip and then looked back at me, and, I swear, if I live to be 100, I will NEVER forget the look on her face. She did not cry or do anything to scare me, but she immediately went into the next room and grabbed the phone, telling me I was sick and needed to go to the doctor. My dad later met us at the hospital, and I remember my mom standing up holding me (even though I was 6 years old and she is a tiny lady!) next to a window at the end of the hospital hallway. We felt so alone. My mom tried to explain to me that I would never be the same, but I was unable to grasp what she was talking about, as I was only 6 years old. I didn’t think it was a big deal.
My childhood with T1: I remember a nurse in the hospital giving me my first injection, in my right leg. She brought the needle close to me very slowly, and I freaked out and cried. I remember she was very callous, not at all sympathetic, and told me that I would have to get used to shots, because I’d be giving myself plenty. That made me freak out even more. What no one prepared me for was the fact that I was different from everyone else, and I came to absolutely hate that, because I had always been shy and just wanted to fit in. Here's a photo we came across recently of me giving myself an injection. I was probably in the second grade or so:

The shortcomings of the health care community: Another nurse in the hospital tried to make me feel better by saying, “don’t worry, you won’t have this for long. They are working on a cure right now, and you will be cured by the time you’re 12 years old.” What an idiot. I am still angry at that woman for telling me that. I truly believed that what she said was true, and I was obviously sorely disappointed on my twelfth birthday. I honestly thought I just had to hang in there for six years, and then be cured. When I was 11, news of islet transplants made headlines, and we thought that was a cure. Boy, were we wrong. Another big shortcoming of the medical community was the emotional beating I took from my endocrinologist every time I visited him. Back then, the adage, “don’t blame yourself, blame the disease” was non-existent. My endocrinologist blamed my family and me whenever my A1C was high, and when my logbook had “bad” numbers. But he was the only endo in my town who treated children. For years I wished that he would be diagnosed and know how it felt to battle numbers constantly, even though I knew that was an evil thing to wish!! I’m so glad that medical professionals are finally trending away from placing so much blame on patients; blaming the patient only leads patients to feel daunted and powerless, so it discourages them from even trying to maintain good control. Thankfully, I now have a FANTASTIC endo, and after my first visit with her, my A1C dropped over 1%. That’s proof that an endo who doesn’t blame the patient can be more effective.
Will there ever be a cure? I know it’s a controversial topic, but I’ll go ahead and add my $0.02. I am convinced that islet/beta cell transplants will not result in a permanent cure for T1. T1 occurs because of an autoimmune attack on the beta cells. This autoimmune tendency, virus, or whatever you want to call it will always be present in those of us with T1. So the immune system will always attack beta cells, whether those cells are from our own bodies, from embryonic stem cells, or from organ donors. In my opinion, there is no way to cure the disease without getting rid of the autoimmune attack. I believe the media has acted almost unethically by spinning the embryonic stem cell issue to make everyone believe that stem cells can cure T1. In my opinion, the best hope us T1’s have is the research of Dr. Denise Faustman, who has cured T1 in mice by halting the autoimmune attack. She is now attempting to translate this research to humans. Although it may not work, at least her research is finally opening the eyes of the scientific research community to the fact that they need to take care of the autoimmune element of T1, rather than simply replacing beta cells and expecting the immune system to refrain from attacking them. For more on Dr. Faustman, go to The Iacocca Foundation website.
My treatment: I have been on an insulin pump (Minimed) since 1992. I cannot imagine treating my diabetes any other way. I love the flexibility of the pump, with regard to diet, exercise, and scheduling. I still eat low-carb and tons of vegetables, but can’t imagine following a set meal plan or schedule! I also keep my A1C’s low by running (or doing some other type of cardio) at least 4 days a week. Overall, though, I have my family and husband to thank for my health. My parents took excellent care of me when I was growing up, even through the times when I was a teenager and went through the notorious rebellion stage. I don’t know if they will ever know what a blessing they have been to me. My mom constantly researched new therapies and asked tons of questions of doctors and other nurses she knew; even before we knew to count carbs, and before anyone said the term, “insulin-to-carb ratio,” we were already doing carb counting, thanks to my mom being smart and innovative. I also thank my older brother for helping; he used to go and find me under the bed or in the closet when it was time for my injections or finger sticks. My family always encouraged me, and never allowed me to believe that diabetes would limit me. Without my parents' encouragement, I would not have made it through college, law school, the bar exam, my judicial clerkship, practicing law, running races, and a host of other challenges. They truly empowered me. And I have my husband to thank for helping me through the lows and being an excellent emotional support system. I rarely ever tell people I have T1, and sort of live “in the closet” with it, and he is understanding, nonjudgmental, and offers me hope when I feel hopeless. When I first told him I had T1, he was very interested and intrigued; he almost made me feel like it was “cool.” I had never felt that way before; many relationships I’d had ended because the guy made me feel like a freak. Here is a wedding photo of us. :)

I don’t know what I ever did to deserve such a great husband, but I thank God every day for him. The other thing that has helped me is the diabetes OC. It is amazing how motivating and uplifting it is to know that you’re not alone!
Best Diabetes Resources (in my opinion): By far, the best book on diabetes I have ever read is James Hirsch’s Cheating Destiny: Living with Diabetes. The author and his son both have T1, and it’s full of true stories of the history of diabetes, those living with diabetes today, and researchers. It’s excellent; anyone who has diabetes or cares about diabetes MUST read this book. I also love the blogs www.diabeticrunner.com, www.diabetesmine.com and www.sixuntilme.com, although I don't always have time to visit them as often as I'd like! I also believe the magazine Diabetes Health is helpful, although a lot of the information it usually contains concerns products on the market, and I do not find that information as helpful, because I am somewhat wedded to my OneTouch Ultra, my Minimed pump, and my Humalog insulin!
Last, but most importantly… Why do I have T1? I don’t think I’m the only one with diabetes of any type who has ever asked, “WHY ME? Why can’t I be like everyone else? What did I do to deserve this?” I have struggled with this question for a long time, and it’s difficult for me because I am a Christian and believe that God is in control of every aspect of my life. And knowing how powerful He is, and knowing that, with the snap of His fingers, He could cure me, I wonder why He doesn’t. I believe I finally found the answer a few months ago, when I was listening to a podcast that brought me to tears while riding the Metro. The podcast is entitled, “The Great Physician,” and is part of the Diabetes Without Complications series. I agree with the podcaster’s take on the “Why Me?” question, which is found in a really short passage, at John 9:1-3: 1. As Jesus walked along, he saw a man who had been born blind. 2. His disciples asked him, “Rabbi, why was this man born blind? Did he or his parents sin?” 3. Jesus answered, “Neither this man nor his parents sinned. Instead, he was born blind so that God could show what he can do for him.”
I believe I have T1 so that God can show His power in me. Maybe it will be in running my first marathon, even though years ago, doctors would have thought it would be impossible for someone with T1 to run a marathon. Maybe I will one day be cured, so that God can show His power in me. Or maybe God will exhibit His power in me by keeping me free of complications over the years, or having a baby one day. I leave it up to Him, but submit myself to being a tool that God can use to demonstrate His power.

Katie I.'s Photos

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Katie I.'s Blog

Would having a low blood sugar make you shoot someone?

Posted on June 10, 2011 at 11:45am 1 Comment

Check out this opinion the 8th Circuit Court of Appeals just published: http://tinyurl.com/3oupqg2



The 8th Circuit remanded the case back to the District Court, saying the District Court should determine whether a police officer - who was experiencing a bad low and discharged his gun several times at a gas station - had the intent to effect a seizure under the Fourth Amendment when he fired his weapon. My guess is the District Court will find… Continue

Artificial Pancreas Project- Phase 2

Posted on May 9, 2011 at 11:13am 5 Comments

I have to apologize this post is a couple months overdue. My husband, daughter, and I moved to a new house in February and we've been really busy ever since!

Before we moved, though, I finished up Phase 2 of the Artificial Pancreas Project at the University of Virginia. The research coordinator for Phase 2 said they really wanted my data, because they needed to measure insulin resistance during the time of a woman's menstrual cycle, and I was one of the few volunteers who had a cycle.… Continue

Artificial Pancreas project- I finished Phase 1 and am on to Phase 2!

Posted on November 14, 2010 at 5:38pm 1 Comment

I completed Phase 1 of the artificial pancreas project a few weeks ago! Phase 1 lasted 10 weeks and involved wearing a Dexcom 7 and an OmniPod, and logging certain information in the OmniPod at least four times per day (more on that below).

The study started with a visit to UVA, where the study coordinator drew blood for an A1c and pregnancy test (study participants are not eligible if they're pregnant). Then, I had to complete a LONG questionnaire that took almost 45 minutes…

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Volunteering for the Artificial Pancreas Project

Posted on August 17, 2010 at 8:53am 4 Comments

I recently agreed to donate my "data" to the JDRF artificial pancreas study at UVA in Charlottesville, Virginia. I'm excited! I'll be heading down to Charlottesville in a couple of weeks to get started on the Dexcom 7. I'll wear it for one week to get used to it, and then get hooked up to an Omnipod. After that, the researchers at UVA will download my data from the Omnipod and the Dexcom each week. They won't be making any adjustments or suggesting any changes-- that's still my endo's job--…

Continue

Checking my daughter's blood sugar

Posted on April 29, 2010 at 6:51am 3 Comments

The entire time I was pregnant, I never thought I'd be so worried about my daughter getting T1. I was diagnosed when I was 6 years old, and got pregnant when I was 29, so, according to the ADA chart, her risk of getting T1 is 1 in 50. Here is the link to the ADA page on "Genetics of Diabetes": http://www.diabetes.org/diabetes-basics/genetics-of-diabetes.html And here's the excerpt from the page that I used to… Continue

Comment Wall (60 comments)

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At 2:47pm on August 21, 2011, Kathy said…
Katie, your comment made me cry.
I went to a small family reunion yesterday and got very emotional re all the people who were no longer there. I have 2 uncles and one auntie left and all three looked very fragile.
I know I have to cherish the memories and commit to living with gratitude in the present moment.
BTW, please put up more pics of the baby. I bet she has grown a ton!
At 6:36pm on June 16, 2011, Kim3 said…
I would so appreciate if you could put the word out for me w the Dex. He is want to play football and I'm a nervous wreck because is goes low fast w exercise! Thank you so much!! Your a sweetie:):)
At 4:55pm on June 16, 2011, Kim3 said…
Wow...that is awesome!! I will def have to check that out!! Did they totally pay for your dex and sensor's?
At 4:46pm on May 24, 2011, Kathy said…
Hi Katie - thanks for the comment on my pedometer step post. Yes, every step counts and I am proof..
At 4:21pm on January 24, 2011, Chef Robert The Happy Diabetic said…
Kate, yes they are great!
At 5:56am on April 21, 2010, Pamela1977 said…
Hi Katie! Yes, I'm on DM also! :-) Thanks for recognizing me! It's great to see you on this site as well. I hope you're doing well. Your page is fabulous!
At 12:18pm on March 24, 2010, Christi P said…
Thanks Katie! It's so great to connect with another T1 mommy. Your little girl is precious. Yes, the time goes by very quickly! But it's so much fun. I'm going to have to look into all the books and blogs you reference here on your page. I'm new to the DOC so there are so many resources I'm unaware of. And I love your thoughts on Why Me? That bible verse from the podcast - amazing! I think that will be my motto. I so truly hope God shows His power in me too!
At 7:21am on January 12, 2010, Jenny Fiorenzo said…
Hi Katie...well I actually ended up running Richmond too! I totally forgot you were running that one as well but I am glad it went so well for you. My boyfriend actually proposed at the finish line there! The Pittsburgh one fell through so we already signed up for the one there the first wknd of May. I am running the St Patricks day 8K and the Cherry Blossom 10 miler and they are all a little close to that DC half! But good luck as running in DC is the best b/c its so flat and theres so much to look at! Take care. Jenny
At 9:48am on June 25, 2009, Elouise Davila is a Happy Mommy! said…
Hey Katie! Thanks for all you help. Thanks to your advice the last you wrote to me, I became more optomistic about getting pregnancy. When I got diagnosed w/ T1 D I was devasted and the doctors I would see would make me feel like having a baby was not an option for me. But once I got over the shock of the diagnosis, I began to take care of myself and went from an A!C of 13 to now 6.4. I really have alot to thank my friends from Tu Diabetes because seriously you guys have helped me. When I went to the doctor's appointment, they couln't believe that I was in such good control of my D. And I was even counting carbs by the time I went for me appointment. They we shocked because they hadn't even showed me how to carb ount yet. LOL!! God is Good!! I'm now 9 weeks along and freakin out a little bit. I just want to at least get to the 12 weeks mark. I tend to freak out easily. Gotta tell you that keeping track of everything is hard. I'm not use to such tight regimens. But I guess I'm doing good. I've noticed, maybe it's just me, that I keep going Low. I don't know if I may be doing something wrong, but I sometimes don't take my food insulin because I will be going low very quickly. This just started happening like 1 weeks ago, so I'm looking out for that. Other than that, just normal preggo stuff. I was feeling really sick but I'm all better now. Just peeing like crazy and being very tired. I love it though. Those symptoms just re-assure me that I'm still preggo. I'm super excited about being pregnant and soon to seeing what my husband and I have created. By the way, your baby girl is gorgeous...God bless her!! She's just precious! Enjoy your lil one! (sorry for mis-spellings! ) :)
At 3:22pm on June 24, 2009, YoGI said…
love all ur pics katie..
hey u hv banana in ur fruit bowl..still u look happy to eat them..
great ..u must be maintaing ur blood sugar good.. :)
 
 
 

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