ryryguy392
  • 27, Male
  • Pennsville, NJ
  • United States
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ryryguy392's Discussions

Vision Loss - Vitrectomy - Questions

Started this discussion. Last reply by ryryguy392 Dec 8. 13 Replies

Hi all,(This got long, so I'll ask the question here, feel free to read the story below if you wish.)*I've lost a ton of vision, am struggling to function, and would like suggestions for adapting and…Continue

Tags: vitrectomy, retinopathy, impaired, visually, vision

Vitrectomy, an update, and not so impressed by new doctor

Started this discussion. Last reply by Zoe May 18. 10 Replies

It has been a while since I have been on here. Most of you that have read my past postings know that I have struggled with anxiety and sugar control for a long time now. In August of 2012 I had laser…Continue

Tags: retina, eye, vitrectomy

Somethings gotta change

Started this discussion. Last reply by ryryguy392 Nov 8, 2012. 6 Replies

I had another not so great eye appointment today with the retina specialist. Where I had the focal laser treatments done the leakage has calmed down, but other areas have gotten quite a bit worse,…Continue

Tags: uncontrolled, T1D, anxiety, eye

Eye Problems

Started this discussion. Last reply by Cinderfella Aug 17, 2012. 4 Replies

I think at this point I just need to vent. I saw my regular eye doctor a few weeks ago and based on what he saw, he wanted me to go have a dye injection test done to see if any blood vessels in my…Continue

 

ryryguy392's Page

Latest Activity

ryryguy392 replied to ryryguy392's discussion 'Vision Loss - Vitrectomy - Questions'
"I know what you mean about correcting them and moving on. Its not worth eating up the time to dwell on. I definitely look forward to seeing what help these services can offer me. If I can break away from my study group long enough today, I will be…"
Dec 8
ryryguy392 and Jen are now friends
Dec 8
Jen replied to ryryguy392's discussion 'Vision Loss - Vitrectomy - Questions'
"Hi Ryan, My family has known me for over 30 years, and I still think they sometimes get confused by my vision. It used to bother me that no one else truly understood how I saw the world, and that everyone who saw me using a white cane assumed I had…"
Dec 6
ryryguy392 commented on Tamra's blog post 'What Goes Up...'
"Sorry to hear of your troubles. If it helps any, around here, a half an hour is about normal for travel to a doctor's appointment. Especially a specialist. My retina specialist is an hour and fifteen minute ride with traffic. I spent 3 weeks…"
Dec 6
ryryguy392 replied to ryryguy392's discussion 'Vision Loss - Vitrectomy - Questions'
"Jen, I was hoping if I only got one reply here, that it would be from you. I've read some of your past posts, and seen how well you manage with vision impairment. I appreciate the tips you gave. I knew there had to be a way for doing things, I…"
Dec 6
Cinderfella replied to ryryguy392's discussion 'Vision Loss - Vitrectomy - Questions'
"Jen is a wealth of information."
Dec 6
Cinderfella replied to ryryguy392's discussion 'Vision Loss - Vitrectomy - Questions'
"Jen is a wealth of information."
Dec 6
twinchick replied to ryryguy392's discussion 'Vision Loss - Vitrectomy - Questions'
"Jen gave an excellent response. Learning school to be able to do things makes life easier. I have the same disease Jen has ROP. Do you have a prodigy meter that you can test with? See your CDE to get assistance in dosing your insulin. Good luck, I…"
Dec 6
ryryguy392 replied to ryryguy392's discussion 'Vision Loss - Vitrectomy - Questions'
"Cinderfella, I had a single Avastin shot in my right eye a week before surgery to calm things down. It was much less of a big deal than I had worked myself up for it to be prior to having it done. I would say it hurt enough for me to wince a little,…"
Dec 6
ryryguy392 replied to ryryguy392's discussion 'Vision Loss - Vitrectomy - Questions'
"Kathy, While my doctor didn't mention cataracts, I had done a lot of reading before the surgery, and understood that there was a high probability for them. I just didn't realize it would be so soon after. I'm ok with that part, though…"
Dec 6
ryryguy392 replied to ryryguy392's discussion 'Vision Loss - Vitrectomy - Questions'
"Tamra, I seem to have lost central vision and what I have left is peripheral. My left eye is my better eye right now. I'm a little uneasy about the laser in that eye, as I feel like I lost some vision with the last session, and I worry how much…"
Dec 6
Tamra replied to ryryguy392's discussion 'Vision Loss - Vitrectomy - Questions'
"Ryan, I am sorry you are going through such hard times. I also have vision problems much the same as you have described. I have had four surgeries on my right eye this year, and a couple laser treatments on my left. I have lost all the peripheral…"
Dec 6
Kathy replied to ryryguy392's discussion 'Vision Loss - Vitrectomy - Questions'
"Great responses below. 10 years ago I had a detached retina, surgery and vitrectomy. The doc said there was an 80% chance of vitrectomy patients getting a cataract, which I did, and it was popped out in 1/2 hour. I also had the bubble. I can see…"
Dec 6
Jen replied to ryryguy392's discussion 'Vision Loss - Vitrectomy - Questions'
"Hi Ryan, I am sorry to hear about your vision loss and struggles with retinopathy. I hope that your vision improves, but I will respond with resources that you can use now and in the future if your vision continues to be impaired. Please know that…"
Dec 6
Cinderfella replied to ryryguy392's discussion 'Vision Loss - Vitrectomy - Questions'
"Hi Ryan. Sorry to hear about all your problems. I have vision problems too so I know your pain. I have had tons of lasering and vitrectomies in both eyes. I currently take shots of Avastin every couple of months to keep things clear. It's no…"
Dec 6
ryryguy392 posted a discussion

Vision Loss - Vitrectomy - Questions

Hi all,(This got long, so I'll ask the question here, feel free to read the story below if you wish.)*I've lost a ton of vision, am struggling to function, and would like suggestions for adapting and or getting by day to day from others with vision loss.It has been a while. I'm struggling with visual impairment and looking for some advice. I have had retinopathy for the last few years. Two years ago I had laser done on both eyes. In April of this year, I started having severe pain in my left…See More
Dec 6

Profile Information

How do you hope to benefit from TuDiabetes?
Not really sure yet...
Date diagnosed
January 1, 1993
Type of treatment/devices you use
Shots

Comment Wall (9 comments)

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At 11:26pm on January 18, 2013, Megasaurus_Rex said…

Hey Ryan. While I'm sorry to hear that you've been experiencing a similar problem as me, I'm glad you got into contact. It is helpful to know that I'm not the only person experiencing this sometimes irrational and overwhelming anxiety. I'm definitely interested in talking!

At 4:44pm on July 29, 2012, Jill Marie said…
Hope you have a good day at work and you didn't stress to much about your blood sugars...is that even possible?! ;) anytime you want to chat or talk let me know! Did you have anything happen to you that set off your fear of being low?
At 9:27pm on July 28, 2012, Jill Marie said…
Ryryguy-
I was browsing some of the forums and came across yours an I wanted to just comment on your situation. I am new to tudiabetes, just been on a few days, and mainly looking for advice and support from others.
I know there are many diabetics and ends and nurses and others that can tell you "of course it is only natural the be fearful of lows" yes of course I also agree but to a point, that fear can become almost irrational once you add anxiety...which I have been battling now for 5 years.
I never used to be afraid of lows through middle and high school. In fact, diabetes never really stopped me and I just took shots, or counting carbs as well and ended up doing just fine. Once I hit college, I followed the same routine and it was working for me, just guessing and over or underestimating.
I was living in an apartment with two other girls, of which didn't work the best, we ended up to having any kind of close relationship at all. One night, I went to take insulin for my meal and my BS was around 400. Since I didn't really carb count and was feeling very frustrated with myself, I gave myself 14 units of insulin. Keep in mind I probably had about 40 grams of carbs, I have a 1:13 carb ratio and sensitive of 1:70. Needless to say, 3 hours later I dropped. I treated like I always do but then I realized I was still dropping...and dropping...and dropping. Alone, with my friends and future husband gone for the weekend, parents 2 hours away I was terrified about passing out and having no one to help me. It was a very long night, with 911 on my phone ready to press go but eventually I did come back up to 70 an hour later. Of course I felt horrible and was then just terrified. Since then, although I know what I did wrong, I STILL cannot get my irrational fear of going low out of my mind. I have purposefully not taken enough insulin and have put myself into DKA many times. It has been a constant struggle between my rational mind and my anxiety. I wish I could forget that night! My husband and family have née supportive and will say take the certain amount of insulin...or..you will be fine...or if you get low you can treat and come right back up. Of course they are always right and I usually end up going higher but I completely understand your fear as I live with it everyday and it is in my thoughts all the time I need to shoot up...so to speak.
I used to get physically I'll from my anxiety before taking insulin, shaking, crying, just everything. I am now doing better with support and talking about it, however this is no easy fix. It has been 5 years since then and I still continue to struggle. Anxiety does run in my family and can impact people really starting in their mid 20s (looking at your profile, you are 25)?
I guess I just wanted to share my story to let you know you are not alone and many things are 'easier said then done'. Diabetes is not just about eating carbs and insulin. It is completely a mindset thing and if you are struggling with anxiety, as I have, it can so very frustrating. I would love to talk more about it if you want as I completely understand what you are going through...plus...I just got a pump so imagine knowing you always have short acting insulin being pump into you allll the time and being fearful of lows, yep, just awesome for anxiety! Haha, but am doing okay, just keep telling myself you will be fine. I guess it is better then the alternatives...complications and feeling like crap all the time since you're high in the sky! Hope this helped.
At 8:21pm on April 18, 2010, Jim Roach said…
Welcome to Tudiabetes Ryryguy392!
At 12:33pm on April 16, 2010, Marie B said…
At 11:02am on April 16, 2010, Doris D said…
WELCOME TO OUR REALLY BIG FAMILY RYRYGUY392!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
At 5:01am on April 16, 2010, Robyn said…
Hello and Welcome to TuD.
At 3:05am on April 16, 2010, Osob said…

At 3:02am on April 16, 2010, Martina H Milligan said…
Welcome aboard if you need anything please let me know
 
 
 

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