"We're so happy that you're finally here! Welcome home to the patchwork sparklyredshoes.... This is a great place to share, to learn, and to grow...all the while meeting new people world wide, and making friends. Take a peek at some the…"
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sparklyredshoes
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sparklyredshoes replied to sparklyredshoes's discussion 'Hello' in the group Monogenic Diabetes (aka MODY)"There does seem to be such a huge variation between individuals that it's certainly difficult to predict when you might need to move on to medications! The impression I get from what I've read is that most (all??) patients do need them…"
Doris D left a comment for sparklyredshoes"WELCOME TO OUR LOVING, CARING, AND UNDERSTANDING FAMILY MY FRIEND!!! Great to have you here with us!!!!Please feel free to check out our Forum, Blogs and Groups here!!! If u have any questions please feel free to ask any of us or put it on our…"
Knightshade replied to sparklyredshoes's discussion 'Hello' in the group Monogenic Diabetes (aka MODY)"Your the first person that I've talked to with the HNF4α form of MODY as well... Guess that we are a rare breed :-)
So far, my HbA1c has always been in that 5-6 range as well... even without medications. Going to a moderate carb diet…"
sparklyredshoes replied to sparklyredshoes's discussion 'Hello' in the group Monogenic Diabetes (aka MODY)"Hello Knightshade, nice to meet you! I think you're the first 4α I've "met" who wasn't my family :-)
Re. control I've been pretty lucky so far (I'm still young...ish!), HbA1C generally between 5 & 6. I…"
Knightshade replied to sparklyredshoes's discussion 'Hello' in the group Monogenic Diabetes (aka MODY)"Welcome!
I'm also MODY-1, with a transcription of HNF4α. I was diagnosed a little later in life than you - mostly because my doctors relied on fasting blood sugars far too much (and ignored symptoms that I reported.)
I was the first in my…"
brokenpole left a comment for sparklyredshoes"Welcome to the family! On this forum you will learn so much. Most of all you will learn that you are not alone. Everyone here is supportive and will provide answers to your questions. Search the site for answers. Read the discussions and blogs for…"
sparklyredshoes replied to spirit7's discussion 'Medications that work for MODY' in the group Monogenic Diabetes (aka MODY)"Hello Azurah,
On the subject of sulfonylureas vs insulin for MODY, it's probably worth noting that beta cell burn-out is not the only thing to take into consideration when thinking about the long-term effects of different treatment options;…"
sparklyredshoes replied to Garethc's discussion 'Have you been diagnosed with Maturity onset diabetes of the young'"Hello -
I see you're in the UK too! I have MODY type HNF4α, confirmed by genetic testing, and I live in Glasgow, Scotland. Happy to chat if it's any help to you :-)
Re. treatment, I'm currently treated with 40mg Gliclazide which…"
sparklyredshoes replied to Brian (bsc)'s discussion 'Resources for Monogenic Diabetes' in the group Monogenic Diabetes (aka MODY)"There was a good overview article in the British Medical Journal in October: http://www.bmj.com/content/343/bmj.d6044.extract
I use this one to point doctors at when I meet one that hasn't heard of MODY (which happens quite a lot!)."
sparklyredshoes added a discussion to the group Monogenic Diabetes (aka MODY)
Hello
Hello folks -I was invited over here via Twitter, thought I'd say hello and introduce myself :-)I'm one of those rare creatures…an actual confirmed MODY patient! I have HNF4α (also known as MODY 1, although doctors in the UK tend not to use that terminology) - I had the genetic testing done by the lab in Exeter, along with several of my family members.I was diagnosed as "type 2" aged about 25, not overweight and with a very strong family history of diabetes - my Mum and both of her sisters were…See More
sparklyredshoes joined Brian (bsc)'s groupMonogenic Diabetes (aka MODY)
Monogenic Diabetes, sometimes called Maturity onset diabetes of the young (MODY), refers to one of several forms of hereditary diabetes. This group is specifically oriented towards those interested in Monogenic Diabetes.See More
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- Was invited via twitter!
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- MODY type HNF4α
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- At 4:39pm on June 14, 2012,
Linda G said… 
We're so happy that you're finally here! Welcome home to the patchwork sparklyredshoes....
This is a great place to share, to learn, and to grow...all the while meeting new people world wide, and making friends.
Take a peek at some the groups when you get a chance. Just go to the top of your page, and click on "Groups".
Once in, you can either peruse the wide array of available groups....or simply type a specific interest in the space provided.
Take in some of the blogs/discussions as well.
The resource boxes at the top of the home "Home" page, and
"About us" at the very bottom of your page and every page (the footer), offer you more information still.
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Hope you find the support and information you came looking for.
Here is a useful link to get you on your way:
http://www.tudiabetes.org/notes
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Take care....and keep in touch!
- At 10:48am on June 14, 2012, Doris D said…
WELCOME TO OUR LOVING, CARING, AND UNDERSTANDING FAMILY MY FRIEND!!! Great to have you here with us!!!!Please feel free to check out our Forum, Blogs and Groups here!!! If u have any questions please feel free to ask any of us or put it on our forum. To answer any of us back just hit the "comment back "bar under our comments and you will go to our page where you can leave a comment to us and also read abit about us.
Here's a link to help you get to know more about us: http://www.tudiabetes.org/notes
- At 6:07pm on June 13, 2012,
SEAGATOR said… Welcome to our wonderful family. We are a very caring and supportive group. Questions? Please feel free to ask us. Please read the BLOGS the FORUMS and check out the many GROUPS for much valuable advice and information. WELCOME!!!
- At 12:40pm on June 13, 2012, brokenpole said…
Welcome to the family! On this forum you will learn so much. Most of all you will learn that you are not alone. Everyone here is supportive and will provide answers to your questions. Search the site for answers. Read the discussions and blogs for information. There are videos to help you understand diabetes and its treatment. Most of all there is family to talk to and even to vent to, if needed. Welcome home.
- At 9:26am on June 13, 2012,
Teena said… Welcome to TuDiabetes community sparklyredshoes!
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