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type1moms's Discussions

Seventeen high school students - in a high school of 1700 students - have Type 1.

Started this discussion. Last reply by Jamie Dee Feb 8, 2013. 2 Replies

As a follow up to my discussion on the incidence/prevalence of Type 1 in children and adolescents, my research has revealed that in a regional high school there is a 1% incidence. When confronted…Continue

Not counting you, how many people does your mother know who live with Type 1?

Started this discussion. Last reply by Teowyn Feb 10, 2013. 15 Replies

You can just answer with a number or a detailed explanation. As the parent of a type 1 child, I don't know another parent (except in online forums).Continue

Incidence/prevalence of Type 1 in the US - looking for reliable numbers

Started this discussion. Last reply by rick (aka: #blankieboy) Feb 17, 2013. 33 Replies

I've done some research on the epidemiology of Type 1 in the US. I can't seem to find a reliable number that reflects either the entire population of Type 1s (children and adults) or, especially ,…Continue


type1moms's Page

Latest Activity

Adam Kaye and type1moms are now friends
Nov 17, 2014
type1moms replied to red1studio's discussion 'How Low Can You Go?'
"My son, 17 yo, can get to 35 without becoming symptomatic. It's crazy. We haven't found the point where he becomes symptomatic - and I would prefer not to - when he runs outside his target zone it is high 99% of the time."
Jun 19, 2013
type1moms replied to Nosweettea's discussion 'New possible T1.5 feel horrible advice pls'
"I would be concerned with any physician that lost blood work for even 24 hours. It may seem unimportant or incidental but it is symptomatic of a problem that needs to be addressed."
Jun 19, 2013
type1moms replied to Paul Patten's discussion 'Statins and children with type 1 diabetes'
"I would ask the physician to produce clinical data on usage in people under the age of 18. It may exist but unlikely. It is even less likely there is data for statins and diabetes. Physicians can prescribe off-label but, if the doc has the clinical…"
Jun 19, 2013
type1moms replied to Kervinator's discussion 'Rock and a hard place...'
"I think she was talking to herself more than she was talking to you. It's clear she needed a context that allowed her to understand the situation and the only context she had was the six year old child - especially after she continued with the…"
Jun 19, 2013
type1moms replied to Sarah's discussion 'F BOMB at Endo's Office'
"It is unacceptable for a professional to drop an f-bomb in that setting - always - unless you are friends. I have been with my primary care physician for 25 years, I call him by his first name and we talk very frankly with each other. We can drop…"
Jun 19, 2013
type1moms replied to Diabetes News and Interest's discussion 'Adult Stem Cells Could Hold Key to Cure Type 1 Diabetes'
"Is the researcher suggesting a prophylactic course of treatment using the drug in combination with stem cells?"
Jun 19, 2013
type1moms replied to dino's discussion 'Are you the chosen one? ... Type 1, that is.'
"My 17 year old son is the first and only. Diagnosed 4 years ago. type1moms.org"
Jun 2, 2013
type1moms and Barbi are now friends
Apr 28, 2013
type1moms commented on Penny R.'s group 'parents of kids with Type 1'
"Barb - thank you for the link to the research study. The science reinforces and experience we all have in one way or another. Thanks again."
Mar 31, 2013
type1moms commented on Penny R.'s group 'parents of kids with Type 1'
"Garry, Perhaps, even more simply, if you weren't angry at the disease you should be concerned. It places huge demands on those who live with the disease - kids and families. You are not alone and this is a great place to connect with people who…"
Mar 7, 2013
type1moms replied to Jack's discussion 'T1 and marijuana'
"Truly interesting topic. I don't have much to offer in the way of experience or opinion and, as a result, would not have thought about the munchies. T1D truly effects every part of the T1D's life."
Feb 21, 2013
rick (aka: #blankieboy) replied to type1moms's discussion 'Incidence/prevalence of Type 1 in the US - looking for reliable numbers'
"well I am familiar with a HS of 1600 that had 6, but two of those were twins. Another HS I worked with 1700 in an impoverished claimed 2. The later was wrong though I have no idea were actually there and the former was abnormally high due to the…"
Feb 17, 2013
type1moms replied to type1moms's discussion 'Incidence/prevalence of Type 1 in the US - looking for reliable numbers'
"Thank you for your efforts. Your numbers are the closest to the numbers I've found. If correct, the incidence is actually.0026. My research shows that this number or, more specifically,.00249 is the incidence in the entire population - adults…"
Feb 17, 2013
rick (aka: #blankieboy) replied to type1moms's discussion 'Incidence/prevalence of Type 1 in the US - looking for reliable numbers'
"and Diagnosed Diabetes among People Younger than 20 Years of Age, United States, 2010 About 215,000 people younger than 20 years have diabetes—type 1 or type 2. This represents 0.26 percent of all people in this age group. Estimates of…"
Feb 16, 2013
rick (aka: #blankieboy) replied to type1moms's discussion 'Incidence/prevalence of Type 1 in the US - looking for reliable numbers'
"ok well here is the answer but not the percentage About 215,000 young people under 20 years of age have diabetes. Most of them have type 1 diabetes. As obesity rates in children continue to soar, type 2 diabetes, a disease that used to be seen…"
Feb 16, 2013

Profile Information

The PRIMARY person in my life who has diabetes has
Type 1 or type 1.5 (LADA) diabetes
How do you hope to benefit from TuDiabetes?
Date diagnosed
February 20, 2009
Type of treatment/devices you use
Tell us more about you (optional)
My youngest son, now 16 years old, was diagnosed when he was 12. As a parent, the experience has required a great deal of learning...with much more to come.

Comment Wall (5 comments)

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At 3:02pm on January 27, 2013, Joanne said…

Hello. Just wanted top say welcome to the group. I see you are from Willow Grove. My middle son & family live there but not for long. They are in the process of moving to Long Island. =( I am from Allentown. Much rather drive to Willow Grove. Hope you find lots of help here. Hope your son is doing well.

At 9:48pm on January 20, 2013, Linda G said…

Hello! Thank you for having me as a friend type1moms!!!
Is the profile photo of your son? Very cute :)
Pennsylvania....a distance away, but it feels like you're right here! That's one of the appealing factors of tu.diabetes. I'm in Canada...in the southwestern part of the province of Ontario...a city named Kitchener-Waterloo. I'm a wife of 33 years (hubby is also diabetic), mom to two grown children, a grandma to 3 lovable little boys, a teacher, and before that an illustrator (still do some) and graphic designer....I speak French fluently, I read, history fascinates me, I paint, sing, walk, garden, ski, ride my bike....did I mention "read"? I love having friends over, I bake/cook, am an eclectic music lover, an animal lover...the ocean...ah the ocean...it speaks to me! Oh...and I have diabetes (and a few other things).
Nice to have you as a friend!!! Tell me a bit about yourself!
Your son is in high school now, how is it all going?
Keep in touch, ok?

At 2:10pm on December 2, 2012, brokenpole said…

Welcome to the family! On this forum you will learn so much. Most of all you will learn that you are not alone. Everyone here is supportive and will provide answers to your questions. Search the site for answers. Read the discussions and blogs for information. There are videos to help you understand diabetes and its treatment. Most of all there is family to talk to and even to vent to, if needed. Welcome home.

At 10:57am on December 1, 2012, Linda G said…

We're so happy that you're finally here!
Welcome home type1moms....
This is a great place to share, to learn, and to grow...all the while meeting new people world wide, and making friends.
Take a peek at some the groups when you get a chance. Just go to the top of your page, and click on "Groups". Once in,
click on "all groups". You can either peruse the wide array of available groups....or simply type a specific interest in the
space provided.
Take in some of the blogs/discussions as well.
The resource boxes at the top of the home "Home" page, and
"About us" at the very bottom of your page and every page (the footer), offer you more information still.
Hope you find the support and information you came looking for.
Here is a useful link to get you on your way:
Hey, why don't you come join us in the TuD chat room?
You'll see us at the bottom of the home page.
We have a great time getting to know each other, sharing info and lots of laughs :)
It's on right now!
Take care....and keep in touch!

At 6:05am on December 1, 2012, SEAGATOR said…

WELCOME to our wonderful family. We are a very caring and supportive group. Questions? Please feel free to ask us. Please read the BLOGS the FORUMS and check out the many GROUPS for much valuable advice and information. WELCOME!!!




From the Diabetes Hands Foundation blog...

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Diabetes Hands Foundation is incredibly honored to join the Diabetes Advocacy Alliance, an organization with the drive and potential to affect a powerful, positive impact on diabetes and healthcare policy. Diabetes Advocacy Alliance is a 20-member coalition of leading professional Read on! →

Helmsley Charitable Trust Renews Support for DHF

HELMSLEY CHARITABLE TRUST GRANTS SUPPORT TO DIABETES HANDS FOUNDATION FOR FOURTH YEAR  Funding in 2015 to support major transitions in programs and leadership at Diabetes Hands Foundation BERKELEY, CA: February 18, 2015 – The Leona M. and Harry B. Helmsley Read on! →

Diabetes Hands Foundation Team


Melissa Lee
(Interim Executive Director, Editor, has type 1)

Manny Hernandez
(Co-Founder, has LADA)

Emily Coles (Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Director of Operations and Development, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


Lead Administrator

Brian (bsc) (has type 2)


Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)


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