All Blog Posts (14,488)

To bend, but not to break?

I've had some retinopathy in my left eye for a bit now, not too long, but more than a year. Laser treatments had worked until I got sick last year and threw up so hard that I must have ripped some more of those little suckers loose again. Long, aggravating story short, this newest bleed was getting better on its own until I had a coughing attack about a week ago and blew those vessels out again. I've gotta get a shot in my eye (like IN my eye...) and then get one every three months after…

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Added by Cara on March 5, 2015 at 9:57pm — 1 Comment

D puts me in my place. But only for today.

Today I read a blog on another site about a woman with T1 for 27 years, and her terrible experience with her endo. The issue was, in the middle of her appt, she felt drastically low, and tested. She was 177, and her endo rolled her eyes. She decided at that point her endo just didn’t “get it”. Stuff happens to us. Unexplainable stuff. Feeling low when you’re not. Being low and not feeling it. Highs from out of nowhere. And, sometimes, our D scares us. I had one of those days.

As a…

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Added by Dan P on March 5, 2015 at 9:00pm — 4 Comments

I Have a CGM!

On February tenth I started a little journey that I had been wanting to do for a long time but hadn't the means until now. I saw an endocrinologist (actually it was the endo's diabetes educator I saw) for the first time in, geez, almost eight years I guess. I thought it would take a while to get the OK to get a CGM (continuous glucose monitor) but instead my new doctor was as eager to get me on one as I was to get one. I left that first appointment so satisfied and excited for the…

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Added by Tamra on March 5, 2015 at 10:09am — 2 Comments

When I Grow Up – Aspirations in Endocrinology

When I was younger and all the way leading up to Sophomore year in high school, I wanted to be a Pediatric Endocrinologist. I also wanted to be a Fire Fighter, Figure Skater, Veterinarian/Zoo Keeper, Monkey Psychologist and a Racecar Driver. But I'm sure I could dig through some old school work and find a paper or two explaining exactly why I wanted to be a doctor.... …

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Added by Rachel Scott on March 5, 2015 at 9:00am — No Comments

Going Biking!!

Going Biking!!

Last week a blog I wrote  appeared on the site CreakyJoints (https://www.creakyjoints.org/). It is about the excitement I felt when the doctor…

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Added by rick (aka: #blankieboy) on March 5, 2015 at 3:00am — 11 Comments

Refreshing my skills

As a person with type one diabetes, I feel it is important to "recharge" and "fine tune" my care skills. It is a never-ending task and challenge.

I ordered a more recent copy of Gary Scheiner's book "THINK LIKE A PANCREAS" and read it in a couple of evenings. I am now rereading another favorite book of mine - PUMPING INSULIN by John Walsh and Ruth Roberts.

Last month, I made an appointment with a CDE and signed up for a program offered by my husband's employer called Good…

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Added by Susan Van Abs on March 4, 2015 at 4:39pm — 3 Comments

Gaining Control

Hi everyone!



I am a previous tudiabetes member from 2007 I believe. Since then I've decided to go back to school and focus my efforts on a degree that has always interested me! Needless to say I have let my health slip away and I hope I can reconnect with this community and gain new friends and perspectives :)



Recently just started the dexcom G4 system, which I love! Also am on the Animas Vibe. (Kind of missing my OneTouch Ping). My previous a1c was an eight and I am… Continue

Added by Denise on March 4, 2015 at 9:00am — 5 Comments

Verapamil Starts a Phase-II Trial

Soundtrack is "I'm Bad, I'm Nationwide" by ZZ Top:

http://grooveshark.com/#!/s/I+m+Bad+I+m+Nationwide/3OTEOT

Verapamil Starts a Phase-II Trial

Verapamil is a drug which has been used in the US since 1982 for high blood pressure, migraines, and heart problems.  It also lowers levels of a protein called TXNIP.  The researchers running this trial believe this…

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Added by joshualevy on March 1, 2015 at 8:36pm — 1 Comment

Sick days are impossible for me to control

Hi guys, I'm typing this now as im very frustrated at the obvious highs that result from being sick. I have a sinus infection and don't even feel that bad but my blood sugars won't go below 220. This has been an all day slope from 160-260. I have adjusted my temporary basil on the pump to give me 180% more insulin than normal still to no avail! I also haven't eaten supper because I know the first tiny carb I put in my mouth will make it even harder for the bs to go down. I've even tried… Continue

Added by Elyssia on March 1, 2015 at 3:58pm — 8 Comments

Yet Again another broken Belt Clip

So Back in May My Original Charcoal Belt Clip for my Medtronic Minimed Revel 723 Broke I called and got a replacement right away after I found out they replace them like they would if your pump breaks well Now a am just a little fed up because according to the rep I spoke with the clear resin is suppose to be stronger than the charcoal but yet I have replace 5 clear ones since April and the best part is I had to pay for my last one even though I told the rep that clip was broken here is a…

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Added by Stephanietype1 on March 1, 2015 at 9:52am — 2 Comments

Type 1 Diabetics in the San Joaquin Valley

I have lived right smack in the middle of California since not long after my diagnosis of type 1 diabetes 27 years ago. In all the years I've lived here, I have rarely been able to find any real support, activities, groups, etc., just for type 1 diabetics. There have been a few, usually through an insurance company or medical facility, and sometimes through charity organizations or even a small local group run by parents of diabetics. But these things were few and far between, and sometimes…

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Added by Tamra on February 28, 2015 at 10:24am — 1 Comment

hello

Just starting to be more active on this website. Need ideas for when my mindset becomes foggy or when I am stressed and turn to my former EAT FOR COMFORT mode.

Today I am feeling like I have a mindset to go the distance. But, it has been a great morning. No snow. It is West of us in Dallas. getting some energy, following a new plan with supplements, and trying to see more clearly.l

Looking for a group to join. I am newly retired from 43 years in education. I have a wonderful…

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Added by jrimmer on February 28, 2015 at 8:16am — 2 Comments

I'm in. the. hospital. again

This place is the worst when it comes to diabetes control. I've only had one low and they kept me on d5 and I'm constantly high. They won't give me insulin on an insulin to carb ratio and keep bringing me full plates of SUGAR for meals and i have to refuse it. No way in hell am i drinking 2 cups of juice and cream of wheat without properly dosed insulin when i woke up at 105 mgdl with tingly hands. This is the worst, i want this pancreatitis to heal so i can go home and control my diabetes.… Continue

Added by Sensorium139 on February 28, 2015 at 6:22am — 15 Comments

the feet that never hurt

I went on a little Diabetes vacation after my Second miscarriage where I stopped testing and didn't bolus I just ran on basil it wasn't Diabulimia and the Dr thought it was Depression but none of the Depression Medications worked well I put my train back on the rails and then found out I was pregnant with my son (this years new years baby) anyways that's not the point the point I am trying to get to is could my vacation be causing this what I think is random foot pain I get out of no where…

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Added by Stephanietype1 on February 27, 2015 at 9:29am — 5 Comments

It is all about information and doing it youself.

I am a do it yourself kind of person. I am probably a doctors worse nightmare. I like to try new things and I want things to be explained to me so that I know how to do it myself if needed. I often believe I know more than my doctors and sometimes I do. Do I really need a doctor to tell me what my pump was doing the last 3 months? Don't I have that software at home? Can't you tell me how to read it and adjust it?

The Internet is an amazing place. How do I determine my basal rate? Ask…

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Added by runner2002 on February 26, 2015 at 3:00pm — 3 Comments

I Needed Help – Letting Others Help with Diabetes Self-Care

Awaken by the horrible sound of the alarm clock. I reach over for my glucometer. As I squeeze my recently poked ring finger my own blood splatters all over my face and the wall in what looked like a scene from some B-rated horror movie. “What a way to start the day” I say to myself under my breath. Careful to not wake up my fiance next to me or the pups below my feet. 56 mg/dl the small lighted screen answers back in a matter-of-factly manner. I let out a loud audible sigh and I hear a voice…

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Added by Rachel Scott on February 26, 2015 at 1:55pm — 2 Comments

Just when you think you have it all figured out....

Having type one diabetes is like being in a science class sometimes. WE might have a hypothesis as to why our blood sugars are high or low and then sometimes the hypothesis does not pan out.

Just the other day, I had my usual oatmeal with chia seeds, skim milk, and almonds. I am sort of boring most days with my breakfast foods - because I love oatmeal in all its many forms. Most times, with the injected Victoza I use and my insulin dose, I can prevent my morning blood sugars from…

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Added by Susan Van Abs on February 26, 2015 at 11:33am — 5 Comments

Frustration at the Pharmacy

So I moved to this town back in may of 2014 and I don't know if anyone else goes through this if your on a pump but I had the Pharmacy asking me how much Insulin I use and such because my Rx looked odd to them I ALWAYS have my Doctor write Use as directed with insulin pump on the script so I gave them my numbers not thinking well I stopped by after work to pick up my insulin and I only got 2 vials um no!!! so the lady at the cash asks if something is wrong I said well yes you see I always…

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Added by Stephanietype1 on February 26, 2015 at 10:19am — 5 Comments

The Eyes, Burritos, and CGMs Have It

This morning I had my second round of laser surgery to get rid of scar tissue that had formed on my artificial lens in my right eye. The original treatment was supposed to be the only one needed but the scar tissue proved to be quite dense and so I was required to have a second round.

The doctor did his work which was fast and painless. I sat leaned forward at the desk with my head and chin resting on the head contraption. The doctor sat on the other side of the desk with his eyes…

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Added by Tamra on February 25, 2015 at 4:57pm — 4 Comments

Farxiga for Type 1

My doctor wants me to try a new drug that was made for Type II diabetics because she has had good results with Type I patients. I wanted to share what happens.

I am a Type I diabetic, diagnosed at the age of 9 in 1993. My control is good, but my A1C is now 7.2. I use a Medtronic insulin pump, but I don't use glucose sensors.

2/19/2015 I went to see my endocrinologist, and she told me about a new drug: Farxiga (dapagliflozin) is an oral diabetes medicine that helps control blood…

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Added by bDrew on February 25, 2015 at 10:39am — 6 Comments

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From the Diabetes Hands Foundation blog...

Helmsley Charitable Trust Renews Support for DHF

HELMSLEY CHARITABLE TRUST GRANTS SUPPORT TO DIABETES HANDS FOUNDATION FOR FOURTH YEAR  Funding in 2015 to support major transitions in programs and leadership at Diabetes Hands Foundation BERKELEY, CA: February 18, 2015 – The Leona M. and Harry B. Helmsley Read on! →

Spare A Rose, Save A Child for Valentines Day

Here’s a new way to celebrate Valentines Day: Buy a dozen roses, spare the cost of one (about $5) and donate to IDF’s Life for a Child program. By doing this, you will help children in need of life saving insulin. Those of Read on! →

Diabetes Hands Foundation Team

DHF TEAM

Melissa Lee
(Interim Executive Director, Editor, has type 1)


Manny Hernandez
(Co-Founder, has LADA)

Emily Coles (Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Director of Operations and Development, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator

Brian (bsc) (has type 2)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)

 

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