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All Blog Posts (14,373)

If And When I Go Blind

Do you remember as a child, or maybe even as an adult, being involved in little games where you had to choose between terrible things? The game may have been called "Would you rather...", or "Which would you choose if you had to...", or something of the like. They actually made a card game out of it now.

For instance, would you rather:

A. Go deaf

B. Become a paraplegic

C. Lose your sense of smell/taste

D. Go blind…


Added by Tamra on March 20, 2015 at 11:40pm — 5 Comments

Mom suffered a dangerous low and now she is slowly recovering from a diabetic coma

Hi all -

I have been lurking but not posting much. 2015 has not been kind to my family to date. Rheumatoid arthritis is kicking my butt and adversely affecting my diabetes.

However, Mom has suffered the most this winter with her osteoarthritic hips. February 27th she told me she not stand or walk when I woke her up to drive her to dialysis. I called EMS and she was promptly taken to the hospital for evaluation. Every test under the sun (especially stroke) was done. Finally, the…


Added by Kate on March 20, 2015 at 4:08pm — 10 Comments

The report of an UnAttendee at the UnConference

The report of an UnAttendee at the UnConference


Wow the UnConference is over and it looks like everyone had a great time, and learned a bunch. I did not attend,…


Added by rick (aka: #blankieboy) on March 20, 2015 at 11:30am — 7 Comments

More things I have learned.

The first time I ever posted here was a discussion on June 12, 2012 where I asked for opinions about the Animas and Omnipod pumps. I got some great information and eventually first got a Dexcom CGM in November 2012 and then an Omnipod pump in May 2013. Lately with the help of an amazing program from Diasend I am finally able to see a compilation of both my Dexcom and Omnipod PDM data. Using this program I have managed to set my basals exactly right and yesterday my A1C result was 5.8 which…


Added by Clare on March 19, 2015 at 4:01pm — 6 Comments

The High Cost Of Living

The High Cost Of Living

A few evenings ago on a twitter chat, the moderator asked a group of people who blog about diabetes, what is their annual cost of treatment for Diabetes. There were a variety of answers ranging from $2,000 to $10,000. The question had great ambiguity. For instance did the moderator mean the total cost, (the cost paid by the third party insurer Plus the cost…


Added by rick (aka: #blankieboy) on March 19, 2015 at 3:30am — No Comments

Please explain the logic, Oh Bureaucrats

Eric's healthcare is paid for by MaineCare's S-CHIP program, which (perhaps counterintuitively) is generally pretty high quality. They cover most of what I need covered, and the few things they don't cover, aside from CGM — which is another rant for another day — are inexpensive enough that I can foot the bill. Zofran, ketone strips, stuff like that. The company they contracted with to supply Eric's insulin pump supplies, Bedard Medical, is very conscientious, and I have absolutely no…


Added by Elizabeth on March 18, 2015 at 8:30am — 10 Comments

Update on "Mom has Cancer"

My previous post shared the stress I have been experiencing that my mom has cancer somewhere in her abdomen. It turns out that it is stage 4 colon cancer and she has a short amount of time left with us and the chemo is the only thing buying her that time.

We went to Denver to visit family shortly after finding this out and it was very bittersweet knowing that it may be the last time they all see each other. With that thought in mind I would not change the fact that we went and…


Added by Kate07 on March 17, 2015 at 8:13pm — 10 Comments

Frustration on using the Dexcom CG Monitor

My daughter, age 24, just started wearing the Dexcom CG Monitor 3 days ago and she is frustrated over the numbers (she understands how the sensory unit operates; she is a nutritional science major) and is flummox when it's time to eat and take Humalog. She is to take Humalog if her #'s are at 90 or above. Her readings varies so she feels uncertain when and how much of insulin she should take. I think the word that best describes her state of mind is extreme frustration and wanting to quit…


Added by Mom on March 17, 2015 at 7:29pm — 16 Comments

Here's to a Healthy Tummy

Today I saw my GI (gastroenterology) specialist for the first time since September 2013. It has been so long for two reasons:

1. I got caught up with heart surgery and then immediately after that I had a year-long adventure with four eye surgeries. And on top of all that I have been seeing a cardiologist, primary doctor, and now an endocrinologist. So I guess I just was overwhelmed with doctor visits, surgeries, and labs, etc..

2. All of my tummy troubles completely disappeared…


Added by Tamra on March 17, 2015 at 7:27pm — 2 Comments

New - Wife Type II (Not A New Wife) New Member

Would like to hear from others that are currently using Metformin and Onglyza as their type II treatment for diabetes. My wife currently began again.. Yes again, She didn't treat for over 2 years.. She was on Metformin about 2 years ago and it didn't really agree with her so she went off.. This time she built up real slowly to 3 Metformin and one Onglyza a day. Just would like to hear from others that take the same two medications. Thanks for any input.

Added by SDChargerfan on March 17, 2015 at 2:09pm — 2 Comments

Reflections on 20 Years with Type 1 Diabetes

I was diagnosed with Type 1 diabetes in April 1995, when I was 35 years old (yes, do the math, since it’s been 20 years that makes me 55 years old and eligible for the senior discount at my local public swimming pool). In March 1995, I had been trying to get in to see my doctor, because I knew something was horribly wrong with my health. My doctor’s office gave me an appointment one month out; however, I was going downhill rapidly, and although I did go to my doctor without an appointment, I…


Added by Melitta on March 15, 2015 at 8:27pm — 31 Comments

Tocilizumab (Actemra) Starts a Phase-II Trial

Tocilizumab (brand name: Actemra, often shortened to TCZ) blocks the action of IL-6 which is a part of the immune system. It has been approved in the USA since 2010 for use against Rheumatoid Arthritis, which, like type-1 diabetes, is an autoimmune disease.  The hope is that since it works on one autoimmune disease, it will work on another.  Usually the drug is given as an IV drip (which requires a clinic visit), but recently a subcutaneous injection was approved.  Subcutaneous injections…


Added by joshualevy on March 15, 2015 at 6:19pm — 1 Comment

The students got schooled

Today was the day! Our long-anticipated trip to the University of New England med student seminar on "Living with a Chronic Illness."

Eric got a half day of school and then he and I took off at noontime for UNE. He was excited, maybe a trifle apprehensive. I, having done this two years in a row, was pretty relaxed... right up till I realized that my brain-based navigation system was not as accurate as I thought, and I had to do a little fancy guesswork to get us where we needed to go.…


Added by Elizabeth on March 13, 2015 at 4:24pm — 8 Comments

For over a year my doctor has been telling me my blood glucose levels are high and I should watch what I eat. A few months ago I had my first A1C test and it was 6.1. Two weeks ago he gave me a scrip…

For over a year my doctor has been telling me my blood glucose levels are high and I should watch what I eat. A few months ago I had my first A1C test and it was 6.1. Two weeks ago he gave me a script for a meter and the PRICK unit..OUCH. Well for the past two weeks my levels have been from 81-246. I went to my Dr (GP) yesterday and he wrote the script for me after I passed the breathing test. I've been telling him about Afrezza for over a year. I am his first patient he has prescribed…


Added by Itellthetruth23 on March 13, 2015 at 3:28pm — 8 Comments

CGM Newb

It has been a whole week since I started using a continuous glucose monitor (CGM). Let me tell you, I LOVE IT! I used to scoff a bit at those who used CGMs and would say things like, "I don't know how I ever lived without it.". Now I find myself in total agreement with them. Really, how did I ever survive without this valuable tool?

I barely did; I was totally out of control. But that is a story I've talked about a lot. Just read my old posts. I am living proof.

So, how have I…


Added by Tamra on March 11, 2015 at 8:54pm — 4 Comments

Diabetes is like a wily opponent

I'm a senior citizen who happens to have type 1 diabetes. I say "happens to" because diabetes doesn't define who I am – it's just a nuisance which I have to keep close tabs on. I don't want to minimize this disease because it can be a killer but, to me, it's a wily opponent whom I'm constantly trying to outsmart. And it's been the motivation for me to write three upbeat books for children with diabetes to give them hope that they can live a normal life - just with a few adjustments.



Added by Goldfish on March 11, 2015 at 7:30pm — 1 Comment

Blogging on TuDiabetes is changing

As we move TuDiabetes to its new home we are changing the way blog posts appear in the community.  In the new design of TuDiabetes we will curate blog posts about life with diabetes from other sources, outside of the TuDiabetes website.  Blogs that are written by members of TuDiabetes who want to post them on the website will go…


Added by Emily Coles on March 11, 2015 at 1:30pm — 8 Comments

Oh The Problems that We run into

I called my medical supplier last night to Refill on my pump supplies Mio's and Reservoirs and was informed that now mt Medicaid Only covers a 30 day supply of each I didn't say anything to the customer service lady because it's not her fault but today I will be calling the insurance and asking them if they take into consideration that not everyone lives close to the medical supplier hints me who lives 5 1/2 hrs away what are we suppose to do if in that 30 days we A.) have a bad site B.)…


Added by Stephanietype1 on March 11, 2015 at 9:26am — 4 Comments

Have not been on in a long time...

Wow life has been something else the last few weeks, and haven't made it on much. Major life decisions have made their ways into my life that I was majorly unprepared for. Diabetes I noticed, where as it is a major part of my life, my own diabetes kind of took a back seat in the importance of the events. Have any of yall noticed when life gets busy, that you seem to just kind of take care of your needs just enough to get by?

Added by Mekenzie D on March 9, 2015 at 5:54pm — No Comments

So Pleased To Be On The Pump!

Looking over my Carelink reports last night. I glanced at the average blood sugar level since starting on the pump Jan 5th. I am so happy to report, drum roll please.... 118! That is an A1c level of 5.5!
Prior to going on the pump, the last A1c was taken in December, and that was a 6.2. The year before that, I was 8.5.

I am so pumped up now!

Added by Tim on March 9, 2015 at 9:15am — 2 Comments

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From the Diabetes Hands Foundation blog...

DHF Joins Diabetes Advocacy Alliance

Diabetes Hands Foundation is incredibly honored to join the Diabetes Advocacy Alliance, an organization with the drive and potential to affect a powerful, positive impact on diabetes and healthcare policy. Diabetes Advocacy Alliance is a 20-member coalition of leading professional Read on! →

Helmsley Charitable Trust Renews Support for DHF

HELMSLEY CHARITABLE TRUST GRANTS SUPPORT TO DIABETES HANDS FOUNDATION FOR FOURTH YEAR  Funding in 2015 to support major transitions in programs and leadership at Diabetes Hands Foundation BERKELEY, CA: February 18, 2015 – The Leona M. and Harry B. Helmsley Read on! →

Diabetes Hands Foundation Team


Melissa Lee
(Interim Executive Director, Editor, has type 1)

Manny Hernandez
(Co-Founder, has LADA)

Emily Coles (Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Director of Operations and Development, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


Lead Administrator

Brian (bsc) (has type 2)


Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)


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