Our mission is to connect people touched by diabetes (people who live with type 1, type 2 and other types of diabetes, as well as their loved ones).
As our community continues to grow, I thought it would be useful to share our values as a community, so that we can all refer to them whenever we participate. In the past, as a part of other groups and organizations, when in doubt, I've found it useful to know what the values were that I was supposed to abide by,…
I want to tell you about what happened during the insurance payers' panel at the DiabetesMine Innovation Summit back in November. I've been meaning to write this up for some time now.
TL;DR version: some patients stood up and yelled at some insurance executives and then I had to share a plane ride home with one of them.
We were asked to politely write any questions on a post-it. A post-it.
We listened as each of the five panelists…Continue
I know Diabetes Alert Dogs are all the rage right now however I am curious to know if anyone else out there has experienced their normal pet dog reacting to their diabetes. My boyfriend's parents have a dog who many years ago when I has experiencing a rather high blood sugar reacted and starting whining and wouldn't leave me alone. Now I have my own dog, an American Bulldog/Collie mix, who is 2 years old and has started showing signs of being anxious when my sugars aren't quite right. It…Continue
I’m Elizabeth Rowley and I am the founder of the site T1International. I've created a space where Art, education, and giving come together to (hopefully) make change and help others.
I was diagnosed with type 1 at the age of 4 (almost 22 years ago). Early on, I found my passions of humanitarian work and diabetes around the world – particularly related to access to insulin and diabetes education. It is hard for me to accept the…Continue
I like a good joke. I can even take a good joke about myself. And I know that I've laughed at inappropriate jokes. I know most of us have. But we need to talk about what's at the root of some types of our humor.
Even comedians have started to admit that there are realms of humor that should be handled differently. Not off limits, per se, but with the subject of the punchline in mind. Patton Oswalt wrote last summer about his complete 180° in understanding why he was…Continue
Just got my latest A1c = 6.4%. That makes 4 quarters under 7 (6.4, 6.6, 6.0, 6.5). In 43 years as a T1 these are the only time I had a value in the "sixes." TuD was a big part of this, pointed me in the direction of ultra low carb diet. I hope nobody reads this because I am not really bragging just happy, happy, happy! Maybe I'll shoot for a 5?
It still seems surreal. She was here and then she wasn’t. It seems I was in one universe and have suddenly moved to a different one -- a poorer one, and permanently, with no way back. I never had sisters, but now I know how it would feel to lose one. Because I have.
I know this is real because it hurts too much not to be. And yet, it’s still surreal and jarring in many ways. I log on to the chat room, fully expecting her to be there; but she isn’t. I come across a pithy comment in a…Continue
Relax, we got this!!
Those were the last four words I said to Barbara, that I think she understood. On the Tuesday evening January 21, 2014 before that awful Thursday, Barbara messaged me and started listing all the things that needed done last week and this. She was pretty sure she would be in the hospital and wanted someone to know her opinion of all the things that would…Continue
The Worth of People
Yesterday January 27, 2014 was International Holocaust Remembrance Day as designated by the United Nations. The day was marked by celebrations around the world in places ranging from London, Istanbul, Moscow, and Washington DC among others. The day of Remembrance was established by the United Nations on November 1, 2005. It is designed to remember the awful events of the Nazi regime from 1938 to 1945…Continue
Universal Screening for GDM at 24 Weeks
According to DiabetesinControl.com web site, there is a new recommendation for universal screening of Gestational Diabetes Mellitus (GDM)between 24 and 27 weeks of pregrancy ("Task Force Recommends Universal Screening for GDM at 24 Weeks," 2014). The recommendation comes from the U.S. Preventive Services Task Force (USPSTF)…Continue
There once was a time when I was the best diabetic I could be. I was on top of my game all the time. I was so in tune with my body. I was able to make minor adjustments to my pump on my own. If I saw a bad blood sugar on my meter I would get upset at myself. If it was high, I would think "kidney-failure" or "blindness". If my blood sugar was low I would eat exactly 15 grams of carbohydrates. I tried so hard to take care of myself. Then I don't know what happened...
Maybe it's because…Continue
Drug Maker Advertising and Social Media
On November 12-13, 2009, the Federal Food and Drug Administration (FDA) held a series of hearings to gather opinions regarding how drug makers should be held accountable for advertising on social media sites (Draft Guidance for Industry on Fulfilling Regulatory Requirements for Post marketing Submissions of Interactive Promotional Media for Prescription Human and Animal Drugs and Biologics;…Continue
hi all my first post here. i just read this article and found it interesting and thought id share.
A few years ago I made the acquaintance of a new LADA diabetic who was diagnosed at age 32. When I met him he was most distraught for himself and his changing life situation. I cannot say that I know him well but I have been able to talk to him a few times over the years.
When diagnosed the gentleman was 32. He had become extremely ill losing weight and shedding energy at a high rate. When he checked…Continue
Whether you physically sat in the room at the Diabetes Advocates Forum or joined us there in spirit, I tell you now. It ends with us.
We will be the ones to end the feelings of frustration with diabetes, the barriers to affordable access, the misconceptions of…Continue
Latent Autoimmune Diabetes in Adults (LADA) is a term coined by Tuomi et al in 1993 (Footnote 1) to describe slow-onset Type 1 diabetes. The NIDDK (U.S. National Institute of Diabetes and Digestive and Kidney Diseases) says LADA is “a condition in which Type 1 diabetes develops in adults.” The WHO (World Health Organization) includes LADA in the category of Type 1 diabetes. The Expert Committee on the Diagnosis and Classification of Diabetes Mellitus (Footnote 2) does not…Continue
I send my son to school with the confidence he is safe at all times. I have no idea what it feels like to be a teenager in a classroom today. Even less, I can't begin to imagine what it must feel like to have Type 1 Diabetes and go to school daily with so many things happening in your body and mind.
My heart is…Continue
I often find myself using the term "essential wholeness" and have been contemplating it all day. I think it's the first thing I think of during the holiday season.
Our essential wholeness is that part of us that always remains - the core of our soul - that which nothing, not even diabetes, can destroy. Nor can it be depleted by difficult emotions such as fear, shame and anger (that often come along with us for the ride.)
It surfaces in the tiniest acts of faith and kindness -…Continue
As the year comes to a close, and our families come together for a merry good time near the warmth of the fire, our attention turns to those who have made our progress possible. In the spirit of the holidays and sending virtual hugs, we want to say sincerely, thank you.
Thank you for supporting the work we do.
Thank you for participating.
Thank you for showing up when it counts.
Thank you for sharing our mission.
Thank you for being open…Continue