I went to the Clinical Social Workers office today and she helped me push to get some answers. My MRI's of head and neck came out good. WooHoo! No blockages or aneurysms found. High Resolution CT Chest Scan found the Interstitial Lung Disease but they still don't think it's bad enough to be causing the problems I'm having breathing. Two more tests being ordered. For one I'll have to go to USC or someplace out East. Can't remember where he said. So, once again, I know what it's not, and some of…
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Added by Clayton Bruster on July 13, 2010 at 6:15pm —
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So it's been almost two weeks now since I had my MRI on my head and neck and my High Resolution CT Chest Scan. I've been calling since mid last week for results and called again today but still no call back. Geesh. I'm going nuts. They want me to limit stress as much as possible and then make me wait like this. MRI people said a week or less for results. The CT people said a couple of days for results.
I've been on 40mg of…
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Added by Clayton Bruster on July 12, 2010 at 7:07pm —
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OK, the doc seemed to have a sense of urgency about all of this. He said, Interstitial Lung Disease is when the Interstitiam (the microscopic fiber network in the lungs that extract the oxygen and put it in the blood) has become much thicker than it should be so you have trouble getting enough oxygen your blood. OK, what exactly can it be: Heart leaving water in the lungs so it could be a heart problem; Cancer; Infection, but since I was on a Z pack in the
past…
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Added by Clayton Bruster on May 23, 2010 at 2:00pm —
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So, as most of you know, since getting diabetes I have had a plethora of health issues. I'm type 2, insulin dependent diabetic, severe asthma, prostrate, allergies, sleep apnea and on and on. Well, last week they did a CT with Iodine Contrast on my chest to try and figure out why my asthma is so bad. Yesterday I get a call that the diagnosis is now
Interstitial Lung Disease. So, I'm no longer going to be treated by…
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Added by Clayton Bruster on May 5, 2010 at 9:35am —
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It was just another day in Southern California. I had a follow up visit to the doctor and a long list of things to talk to her about. Being a typical day I had a little chest pressure in the morning and was short of breath from all the moving around to get ready and get there and walk in to the doctors office. After the usual long wait, they took me into the preliminary area and weight, blood pressure, temp nd all that. They only thing that raised an interest was my pulse which was running at…
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Added by Clayton Bruster on January 18, 2010 at 10:08pm —
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Today I am going to the doctors to get my prescription for Xolair. It's an injection for allergic asthma. The side affects are pretty scary, 5% higher risk for cancer, 20% higher risk of bronchial infections and on and on. Not to mention a significant amount of people go into anaphylaxis when they are injected. They said to be sure to bring my epi pen and have it ready. It will take two weeks to get it in. It has to be special ordered. When they get it I will go in for my first injection. It…
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Added by Clayton Bruster on October 30, 2009 at 8:00am —
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Does anybody know what this is or have experience with it? I just got off the phone with my asthma doctor and they told me to come in and pick up papers for Allergy tests and IGE tests. They are trying to qualify me for Xolair injections. If I get them I will have to repeat the injections every 2 to 4 weeks. She said they have a lot of bad side affects and in fact when you get the injection you have to stay at the doctor office for at least an hour and they give you an epi pen when you get the…
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Added by Clayton Bruster on October 14, 2009 at 1:12pm —
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I'm still having a lot of problems with my breathing, asthma, so the doctor started me on using my nebulizer four times a day every day and using a new med called Cromolyn Sodium. I used it for the first time on Sunday. I could not stand up without feeling like I was going to black out for a couple of hours and my tongue and throat swelled up. It was not a good time at all. ;-)
Now I have to go in on Friday and get an Eppy Pen, have IGE tests and allergy tests set up. Why can't…
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Added by Clayton Bruster on October 6, 2009 at 8:30am —
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So the more I think about this, the madder I get. On my last visit I explained to the doctor that the prescription for 50 test strips at a time isn't enough. I have to refill them almost weekly. She told me test strips are expensive and I should just test once a day in the morning to save money. Then, when I get my new prescriptions, there is still all the syringes and Humulin R for me to use when I test before each meal to take on a sliding scale. Why would they give me the syringes and Rapid…
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Added by Clayton Bruster on September 11, 2009 at 9:00am —
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Mostly good news today. Doc said my sugar is being pretty well controlled right now and I must be eating right (What she doesn't know won't hurt her). My cholesterol is very good, diabetes is good but still going to run some more tests.I did get lectured on my choice of shoes. ;-) I also found out today that my asthma isn't doing so well ( I already knew that) so they are increasing my dosage of Theophyline. It always makes me wonder when they look at you and say things like, "Now if you get…
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Added by Clayton Bruster on August 18, 2009 at 4:39pm —
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My vision in my left eye has become much worse in the past 3 months. It's like looking through a diffusion panel with 15% opacity. Like looking through a fog or a cloud.
So I went to an ophthamologist and he tells me I have glaucoma in both eyes. My pressure is still low so all he is going to do is monitor it and I should come back in six months. Being skeptical I go on WebMD and look up glaucoma. Symptom: loss of peripheral vision. Well, it seems my peripheral vision is still OK…
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Added by Clayton Bruster on July 9, 2009 at 8:15am —
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I have had allergies and asthma all my life but it never really bothered me much. My allergies were the worst in the Spring and Fall of course and I could never breathe through my nose till I had sinus surgery about 11 years ago. Since then I've had two sinus surgeries and another one to open up my throat larger and remove my uvula.
I've also have some mild hypertension for the past 20 years easily controlled with meds.
Now I was diagnosed with diabetes type II about four…
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Added by Clayton Bruster on June 30, 2009 at 1:24pm —
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Hi everyone. I presume, since you got this far down my page, you have read that I am a photographer and artist and a diabetic. All the graphics and photos you see displayed here are done by me and are, as such, copyrighted material. I hope you enjoy it and check out more of my work but please don't take any. ;-)
I just got on this site about an hour and a half ago after learning about if from Jaimie Hernandez. Now, it's done. I think that may be record time. ;-)
I look…
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Added by Clayton Bruster on May 20, 2009 at 5:00pm —
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