Samsmom's Blog – January 2011 Archive (3)

Fighting Every Step

Many on TuDiabetes suggested it, just as I was reading it in my Diabetes for Dummies book: thyroiditis commonly goes hand-in-hand with Type 1, especially in women. So today Sam is starting on Synthroid because she is "developing low thyroid." So -- that doesn't make us happy, but at least there's a reason that she has been feeling so drained. I kept asking everyone, "Was your child tired?" It didn't make any sense to me that Sam was playing field hockey and running around the basketball court… Continue

Added by samsmom on January 28, 2011 at 5:28pm — 2 Comments

Defend 2 Screening

We just got back from a screening visit for Samantha to participate in the Defend 2 clinical trial at a hospital in Indianapolis. She took a meal tolerance test and had lots of blood drawn. This is a phase 3 trial of the drug otelixizumab, which may possibly preserve some of her ability to produce insulin. (DEFEND stands for Durable-response therapy Evaluation For Early or New-onset type 1 Diabetes). She has a 2/3 chance of receiving the drug if she is accepted for the study. If she doesn't… Continue

Added by samsmom on January 17, 2011 at 3:25pm — 10 Comments

Hate the Term "Honeymoon Phase"

Seriously. "Honeymoon Phase" brings to mind a picturesque scene: paradise following a beautiful commitment ceremony. In reality, the setting was the ICU and we certainly didn't consent to this lifetime relationship.



"Is she honeymooning?" Well, she's not staring out at blue-green tropical waters, but her blood glucose levels are bouncing all over the place, so maybe we can liken that to nonstop h--ping.



Right now, we have a very limited time period to get onboard with an… Continue

Added by samsmom on January 15, 2011 at 2:28pm — 6 Comments

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REsources

From the Diabetes Hands Foundation blog...

#OpposeAB1893: California Bill that Burdens People with Diabetes on Insulin

A couple of days ago I learned that the California State Assembly is considering AB-1893 Sharps waste, which in (if approved) will mandate that: “Sharps sold to the general public in California shall be sold with a sharps waste container Read on! →

FDA Docket Extended! We Need You.

If you are new to diabetes advocacy in the traditional sense of the word, you may be thinking, “What the heck is a docket!?” I certainly was the first twenty times I heard it (yes it took that long). For Read on! →

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Emily Coles
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