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Jojojovich's Blog (6)

Advice to staying "even" using a pump?

I realize that I'm pretty outside the norm, among type 1s, I think anyway. I assume that most have an endo who they turn to (and I am assuming, as such, feel like they actually *can* get advice from them, or help to get everything "under control" or "even" (as I call it, while using / watching Dex/cgm.

I don't have one who I feel like I can use for advice, especially starting. True, I started the pump by myself, or, with a friend here that weekend who helped me set up the initial basal… Continue

Added by jojojovich on September 14, 2010 at 11:56pm — 2 Comments

Pump: How many basal rates do you rotate between?

I *just* started using a pump (Omnipod), and had a good basal rate established in the first 4 days or so, then my friend who came to town as I began left, throwing it all into question.

Then I started to wonder about how many basal rates people vary between, at various times? (I have two so far: with and sans [friend])

Given that you can switch between them without suspending, I am guessing that people may have several set up in advance for various "times", like stressful… Continue

Added by jojojovich on September 11, 2010 at 9:50pm — 2 Comments

The effects of people, on your "control" ?

I feel super curious if others have encountered any oddities as I have, having just recently started using a pump (Omnipod), just a week ago.

I had used only Humalog MDI-ing for 5 days while basically fasting, eating only <5g carb with any food, then used those findings as my basal rates.

Before really starting the pump, I actually met with the pump educator and she advised starting way lower, but, over the first 4 days, I was high at most times and have ended up at… Continue

Added by jojojovich on September 10, 2010 at 2:22pm — 4 Comments

Fasting + initial pump settings -- does anyone do this when first using a pump?

I think I may finally be close to using / receiving an insulin pump. And in preparation I just early this morning (2am ish) decided to start using only Humalog to see if I could see basel rate patterns. (Long story, but the nutritionist / CDE I have been seeing all summer won't give me settings in spite of my almost killing myself documenting absolutely everything I have been doing, so I can get just that -- their settings).

So, I ended up thinking hey, I can do this…


Added by jojojovich on August 11, 2010 at 9:00am — 8 Comments

Listing somewhere of endocrinologists who have Type 1 ?

I recently wrote some regarding my difficulty being prescribed devices, both [Dexcom] cgm, and now a pump (want Omnipod). I have heard this often, though I am being made to jump through incredible hoops, and along the way, have been told that I am:

- struggling

- cannot drive a Maserati (referring to pump) when I don't even have the basics down

- not documenting things correctly (even though I am taking more than an hour each day documenting times, bg results, units of which insulin… Continue

Added by jojojovich on August 2, 2010 at 11:00am — 3 Comments

Devices -- does anyone feel like they are told to jump through hoops to get devices?

I've had a lot of difficulty getting devices from Docs. First, it was

Dexcom. Long story. I finally have one.

Next, I've been trying to get an Omnipod. I am diabetic 35 years. GoodA1Cs. My endo in Chicago told me I need to attend 2-3 carb-counting classes, and then other classes. I didn't have time to get to them all before I left town for a summer job.

Summer, and I'm jumping through another doc's hoops, seeing them for everything they say they need from me, even… Continue

Added by jojojovich on July 24, 2010 at 8:30am — 5 Comments



From the Diabetes Hands Foundation blog...

DHF Joins Diabetes Advocacy Alliance

Diabetes Hands Foundation is incredibly honored to join the Diabetes Advocacy Alliance, an organization with the drive and potential to affect a powerful, positive impact on diabetes and healthcare policy. Diabetes Advocacy Alliance is a 20-member coalition of leading professional Read on! →

Helmsley Charitable Trust Renews Support for DHF

HELMSLEY CHARITABLE TRUST GRANTS SUPPORT TO DIABETES HANDS FOUNDATION FOR FOURTH YEAR  Funding in 2015 to support major transitions in programs and leadership at Diabetes Hands Foundation BERKELEY, CA: February 18, 2015 – The Leona M. and Harry B. Helmsley Read on! →

Diabetes Hands Foundation Team


Melissa Lee
(Interim Executive Director, Editor, has type 1)

Manny Hernandez
(Co-Founder, has LADA)

Emily Coles (Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Director of Operations and Development, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


Lead Administrator

Brian (bsc) (has type 2)


Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)


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