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Lorraine's Blog (53)

#Nightscout | Harboring Autonomy #WeAreNotWaiting #CGMintheCloud

My number one reservation about starting Nightscout was the size and weight of the rig. It's a definite price to pay. It's not ideal, but Caleb's been able to manage, and the benefits are currently worth the price.

My next concern was taking a step backward in the progress we had made in Caleb's…


Added by Lorraine on February 4, 2015 at 6:58am — 11 Comments

OmniPod UST400 | User Review Update

Caleb has been using OmniPod for almost as long as he's been living with T1D - 7 years. A few years ago, a parent asked me write a user review on the UST200 system. Caleb's been using the UST400 system for six months now and this is an update to our original review. - Lo

Executive summary of our review of the UST400 system: lighter, more discreet, better performance, improved range, minor annoyances of new ID screen and multiple confirm screens. Negligible…


Added by Lorraine on December 12, 2013 at 6:20am — 15 Comments

What I Need You to Know, Caleb

This is Caleb...

Dear Caleb,

Before your brother was born, your dad and I led very similar lives. We met in college and each started working with an accounting firm after we graduated. We spent years working long hours and advancing our…


Added by Lorraine on April 6, 2013 at 1:38pm — 4 Comments

Diabets and School | Caleb Speaks

Part two of our interview with Laura from Sanofi is all Caleb. He talks about celebrating World Diabetes Day, what he's learned over the years and who is heroes are.

For the complete interview, please visit Discuss Diabetes.

Our best to all those students already or soon to be headed back to school!

Lorraine and Caleb :)

Added by Lorraine on August 21, 2012 at 5:46am — No Comments

Diabetes and School - From a Mom | Discuss Diabetes

I was given the opportunity to "Discuss Diabetes", how to plan for school, and how things have changed over the five years that Caleb has been living with diabetes in a school environment.

There are a couple of things that I feel strongly about when it comes to Caleb's care. I've learned much in the past five years through research, experience and talking with…


Added by Lorraine on August 20, 2012 at 6:30am — 1 Comment

Riding On Insulin | Wachusett Mountain with Sean Busby

This is Caleb...

We first met Sean and his wife, Mollie, last year at Friends for…


Added by Lorraine on July 31, 2012 at 5:55am — No Comments

TriCamp with Coach Cliff | TriRidgefield

This is Caleb...


Last summer, Colin had a very exciting and fun week at TriRidgefield's Kids Camp. For about a year before, Colin had great interest in running and that extended to triathlon training the more…


Added by Lorraine on July 24, 2012 at 6:30am — 3 Comments

Caleb’s OmniPod® PDM & DexCom™ Carrying Cases

This is Caleb...

When Caleb is at school, he keeps him PDM with him wherever he goes. Over the years the way he transports it from place to placed has changed. When he was younger it was the sole responsibility of the teachers to make sure that it was with him at all times they carried it. During this past year that organically changed to him being responsible for it - not…


Added by Lorraine on July 17, 2012 at 11:30am — 3 Comments

Diabetes Waits for No One, Not Even God

Caleb had his first communion this weekend. He was excited. A little nervous. I had to drop him off in the hall of the church with the other communicants about a half hour before the mass. Family waited in the church. Before dropping him off, Caleb checked his blood sugar. He was around 100 but with some insulin on board…


Added by Lorraine on May 9, 2012 at 9:12am — 4 Comments

The Prospect of Fixing Things

This is Caleb...


I was in fourth grade when I became four-eyed. I wore glasses every day until eighth grade when I got my first pair of contacts. I wore contacts for more than half my life until my eyes couldn't bear the irritation and then started wearing glasses again almost every day.

For years I dreamed of getting my eyes corrected surgically. I discussed it…


Added by Lorraine on April 26, 2012 at 5:30am — 11 Comments


I think I may have mentioned how wonderful the people from Team Type 1 are. They are positive, kind, thoughtful, respectful, encouraging, inspirational...

On and on I could…


Added by Lorraine on January 11, 2012 at 10:45am — 1 Comment

The Other Lisa

She came to my aide.

Several years ago, I posted a question on a forum.

Sound familiar?

My question was interpreted differently than I intended by many - by most - or at least those…


Added by Lorraine on January 7, 2012 at 8:30am — 2 Comments

Lisa and Lilly

Lisa and I met on a forum. I posted about some oddity we were experiencing and Lisa contacted me offline with some suggestions. I remember hitting it off with her immediately. We were like-minded. I was comfortable sharing every last detail of how we managed diabetes with no fear of being judged.

Comfort + acceptance = great friendship.

Lisa has a daughter, Lilly who is a year older than Caleb and was diagnosed about a year after Caleb. At the time of our meeting she was an…


Added by Lorraine on January 5, 2012 at 7:30am — No Comments

Family of Friends

This is Caleb...

Meri and I worked together - more a…


Added by Lorraine on January 3, 2012 at 6:50am — 2 Comments

School Blue-Nity - Plans for Year Three


This is Caleb...…


Added by Lorraine on November 3, 2011 at 6:13am — No Comments

"It felt like you were my brother."

This is Caleb...

An event in Central Park to raise awareness for diabetes? Sure, let me check my schedule. It includes a bike ride with Phil Southerland and Team Type 1?! Clear the calendar; we're there!…


Added by Lorraine on October 10, 2011 at 10:30am — 6 Comments

"How I Take Care of My Diabetes" | by Caleb

This is Caleb...

Thanks to the You Can Do This Project, Caleb and I were able to talk about some things on his mind. Though is original submission was very upbeat, there was a portion of the discussion at the end that I made into…


Added by Lorraine on July 30, 2011 at 9:09am — 5 Comments

10 Things, by Caleb | #dblogweek

The prompt for today is “Ten things I hate about you, Diabetes”.

Caleb was quite eager to respond to this, but he started to struggle for ideas after number five.


1. Changing my Pod

2. Changing DexCom

3. Having to wake up in the middle of…

Added by Lorraine on May 12, 2011 at 2:00pm — No Comments

Diabetes Blooper, by Caleb | #dblogweek

Background – This happened at the beginning of the school year last year. We started the year with a new nurse and a new protocol regarding Caleb’s diabetes. All of Caleb’s teachers were on high alert. For a couple of weeks in a row, Caleb had to check his blood sugar during art class due to feeling low. The event he writes about happened shortly thereafter.

One day at school when I was in art, I raised my hand and my teacher, Miss P, asked, “Do you have to go??” I said,…

Added by Lorraine on May 12, 2011 at 4:58am — 1 Comment

Dear Diabetes, by Caleb | #dblogweek

As I did last year, I am letting Caleb author the Diabetes Blog Week posts.

Since Caleb has no appreciation or lack of thereof, for that matter, for the differences among people living with diabetes, there isn't much to say on yesterday's topic. He just simply isn't aware enough about what is different about being type 1 versus type 2 or being an adult versus a child versus a caregiver. He doesn't really care. I see that as a good thing. At his age he's just living life, not focusing… Continue

Added by Lorraine on May 11, 2011 at 6:13am — 2 Comments

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From the Diabetes Hands Foundation blog...

DHF Joins Diabetes Advocacy Alliance

Diabetes Hands Foundation is incredibly honored to join the Diabetes Advocacy Alliance, an organization with the drive and potential to affect a powerful, positive impact on diabetes and healthcare policy. Diabetes Advocacy Alliance is a 20-member coalition of leading professional Read on! →

Helmsley Charitable Trust Renews Support for DHF

HELMSLEY CHARITABLE TRUST GRANTS SUPPORT TO DIABETES HANDS FOUNDATION FOR FOURTH YEAR  Funding in 2015 to support major transitions in programs and leadership at Diabetes Hands Foundation BERKELEY, CA: February 18, 2015 – The Leona M. and Harry B. Helmsley Read on! →

Diabetes Hands Foundation Team


Melissa Lee
(Interim Executive Director, Editor, has type 1)

Manny Hernandez
(Co-Founder, has LADA)

Emily Coles (Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Director of Operations and Development, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


Lead Administrator

Brian (bsc) (has type 2)


Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)


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