Comment by Teena on March 8, 2011 at 7:45am

I wish you all the best Susie! Would love to see you tap dance =)
Please keep us posted with your progress...

Comment by Kathy on April 11, 2011 at 4:55pm

Hi Susie,
I had an islet cell transplant in Minneapolis in 2008. It has made a tremendous difference in my life. I was able to be insulin free for 2 years and now take only a very small dose. No lows to worry about. It has been a great experience for me.

There is a facebook page called Pancreatic Islet Cell Recipients that is a sharing page for anyone who has had the procedure or is just interested. Its a great place to ask questions of others who have been through this. There are a few people who just had their transplant is we all enjoy living it with them. Here is a link to it: http://www.facebook.com/group.php?gid=113713851975220&v=wall

Best of luck to you, I hope you will keep in touch,

Kathy

Comment by Susie on August 30, 2011 at 7:28am

Kathy, This goes to show you I need to check my mail on Tu Diabetes more often. I haven't had my transplant yet but am heartened to read your e-mail. The fact that after you went back on insulin, it was a very small dose. I'm assuming you can tell when you have a low?

Comment by Kathy on August 31, 2011 at 4:05am

Hi Susie, I can tell when I have a low now. It really only happens if I over exercise. Going back on insulin was disappointing at first, but it really hasn't been that bad. Its not like going all the way back to where I was pre-transplant. Now, I take only a small dose and have good control. This time around, things work like they should. If I take one unit to cover lunch, it works. That part is almost rewarding because it shows that I actually do know what I am doing. Before the transplant, it seemed like i was a constant failure at trying to control my BGs. Hope you are doing well. Are you on the waiting list?

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