Apparently I am not the only person who is fed up with JDRF and other charitable organizations pissing away over a billion dollars with no tangible results. Enter the JDCA: the Juvenile Diabetes Cure Alliance.
The JDCA is building on the content of Joshua Levy’s fabulous blog
and creating a formal not-for-profit organization that will track the current state of research for a cure for Type 1 diabetes. This group was founded by parents of children with Type 1. According to the JDCA website
, “We aim to become the recognized leader in providing objective and independent research on the Type 1 landscape and will conduct ongoing analysis of several major Type 1 research organizations. Future reports will analyze the individual charities, progress toward a cure, and related Type 1 issues.”
JDCA will not be a fundraising organization, but they intend to advise big donor$ on how to allocate their money to the research opportunities that provide the best chance of curing Type 1 by 2025.
I love this idea! The JDCA’s website needs work, and I would like to see them promote their mission more aggressively, like The Gateway for Cancer Research
’s tagline: “Demand Cures Today”. Right now, JDCA’s tagline is: “The Voice of the Donor for a Cure”. Ugh.
As an Old Schooler, I’ve had enough of JDRF after hearing their fundraising spiels for 35+ years with no results to show for it. I’m impatient. I’m disgusted at the wasted funds. And I’m thankful that a group of like-minded parents are creating a business approach to curing Type 1.