What does sitting in a hotel room in Saigon on a weekend do to one who has a recently cyclical obsession over their state of health after 32 years of Type 1?
First and foremost the internet is not always your friend. It will cause heart palpitations if you do not filter the info you read. It will cause you to look for counter info. For example, I found a sentence in my research into progression rates for Type 1 diabetics from NPDR to PDR in their lifetime. Why? Because I am afraid and a masochist at the same time.
It stated something along the lines : 72% of Type 1 Diabetics will get PDR over their lifetime....
Wait... what? This does not jive with the current info I have elsewhere, where it is said that PDR has gone from a rate of 25% down to 9% from 2005-2007 studies.
By putting this line into a search I found the original article it was cited from,which said:
WITH POOR CONTROL 72% of Type 1 Diabetics will get PDR over their lifetime.
Ok... I am in NO way saying PDR is a result of poor control only because it is obvious to anyone with a brain that genetic factors play a huge role as well. As do a number of other factors we do and don't have control over. BUT it is things like this that cause me to wonder why there is not a definitive website out there that could filter all the general stats we find and dissect it to understandable, objective and usable info for those of us who simply want the knowledge without the trauma.
Comment by Colette Henry on December 10, 2011 at 7:49am I have not investigated like you have; probably do to the trauma factor. Besides knowledge I gather at TuD and in books about complications that can arise, isn't something I share (in detail) with my son, is enough to know it could be a possibly in his future. He knows having good control is paramount, in keeping healthy. We have some advantage here, he was diagnosed at an age that he understands good BS management techniques and young enough to follow instructions without rebellion. Also having the tools, resources and access to the latest developments that can help facilitate tight control so close to his diagnoses we hope it will be the key to prevention of the complications.
Saying that, I to wish diabetes stats could have a definitive website. I would be helpful to relay the actual stats when I'm talking to people about Type 1. Have to check out TuAnalyze, I haven't yet.
Comment by acidrock23 on December 10, 2011 at 8:06am PDR= Proliferative Diabetic Retinopathy. I think that in striving for control, it makes it more likely that you will run into stuff if only because you will live longer? The broad "over their lifetime" is sort of a misnomer as the longer you live, the more you are "winning" one game but you can also be setting yourself up for losing other stuff?
Comment by Brunetta on December 10, 2011 at 8:25am I understand thaat there is a major study ( help me folks, I read it on this site) treports if you live over 17 years with diabetes without major comolications ( kidney disease, heart disease, retinopathy, significant neuropathies), the incidence of compplications actually decreases. I am 43 years type one with no sighnificant complications, Just mild leg and feet "buzzing", back aches which may be a result of diabetes plus spinal stenosis , arthritis induced nerve impingement, which runs in my family... So do not think just because you are a diabetic it HAS to happen.. You are listenng to a happy, healthy, faithfilled "Pollyanna" and proud to be one.
Is it the rainy season jn Saigon, Josh?..Get out take a walk, and leave that internet research alone for now.. Or is it the middle of the night there?..At any rate.."Keep your head to the Sky".. ( an old Earth, Wind, and Fire song)
God Bless,
Brunetta

Comment by jrtpup on December 10, 2011 at 9:44am Josh I agree with Brunetta- take a break, take a walk or watch an old movie or something.
When I was dx with breast cancer, I spent close to 24/7 on line. I eventually had to make limits for myself - only so much time a day. Difficult, but doable.
It seems as if everyone who puts up a page on the 'net is convinced they're 'right'. Usually there's not enough background information or evidence to substantiate their right-ness, which makes it easier to get sucked in. 'A study shows bla bla' sounds good until you find out that the study only included 10 people, etc.
Comment by Josh F on December 11, 2011 at 4:02am Haha, Brunetta, if you can find that study i would LOVE to see it. Though I suspect it would make no difference to my mindset as I got retinoapthy 20 years after diagnosis. ;-) I guess NPDR is not "major" just part of the game...but damn I hope with getting this A1c under 6.5 I can halt it longer than the 6 years I have so far with average control.
Comment by Trudy on December 11, 2011 at 4:54am Perhaps Brunetta is referring to the studies done by Joslin with the 25 and 50 year medalists?
Comment by Josh F on December 11, 2011 at 4:59am I have looked and cannot find it. I have gotten pretty good at scouring the internet by now. ha. My internet Kung fu is weak tonight I guess.
Comment by Brunetta on December 11, 2011 at 6:23am I could not find it either, Josh, sorry. I think that Richard57,( I may Hve forgotten his EXACT user name) referenced it when speaking ( thanks Trudy) of the Joslin medalists.. I am going to try for the 25 year medal, as my diagnosing doctor is still well andable, at 90, in my tiny GA hometown. I may go and visit him and the nurses who I remember me; with the documents from Joslin this Christmas.How is your Saigon sourjourn going today?
God bless,
Brunetta
Comment by Josh F on December 11, 2011 at 6:38am Do they still do the 25 year medal? I heard they only do the 50 now because it is come this far that 25 years is nothing special any more , haha otherwise I would have had mine 7 years ago since I was diagnosed at Joslin. So I am assured the 50 anyway in 18 years.... darn It is hard to think I have had this this long. ;-) But I hope you do get one!! If you do let me know. Journey is going well. I am working in my room though, so nothing exciting. I am watching a documentary on Hong Kong roasted pork and getting hungry. I miss living there sometimes. The food was amazing though it made good blood sugars very difficult.
Manny Hernandez(Co-Founder, Editor, has LADA)
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Bradford (has type 1) |
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Marie B (has type 1) |
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