Thank you to everyone who has taken the TuAnalyze hypoglycemia survey! We presented results from the survey at the International Society for Disease Surveillance meeting this past December.
At the meeting, we reported on the frequency of severe hypoglycemia and the experience of harms related to low blood sugar in the TuDiabetes community (if you would like to read the full abstract that accompanied the presentation, you may find it here.). We found that more than one quarter (28%) of TuAnalyze users have had at least one episode of severe low blood sugar in the past 12 months (defined as a time when they lost consciousness, had a seizure, needed glucagon or medical treatment or help of other people due to low blood sugar). In addition, 15% of respondents had ever had a vehicle accident or serious injury related to hypoglycemia. 42% also reported that worry about low blood sugar affects their daily life.
The chart below shows the percentage of hypoglycemia survey respondents who report that they limit/avoid these daily activities in order to avoid low blood sugar and related consequences.
While the frequency of these reported behaviors ranged from 20-50%, they are even higher among the group of users who report at least one severe low in the past year. Users with severe lows are also more likely to report ever having an accident related to hypoglycemia, and daily worry about low blood sugar.
Do these numbers surprise you? Are these reports consistent with your own experiences?
The TuAnalyze team is preparing a full report on hypoglycemia, prevention practices, and diabetes care. If you haven’t taken the hypoglycemia survey yet, the survey is still open and you can contribute your experiences to this research. You can find the survey by clicking here. If you have taken the hypoglycemia survey, make sure that your TuAnalyze A1c is up to date and that you have also completed the Care Overview survey and the two device surveys. These all provide complementary information that helps us to better understand glycemic control in the TuDiabetes community.
Once again, a big thank you to everyone who has taken part in the TuAnalyze project! This research would not be possible without your participation.