Published results from the TuAnalyze Hypoglycemia survey!

Thank you to everyone who has taken the TuAnalyze hypoglycemia survey! We presented results from the survey at the International Society for Disease Surveillance meeting this past December.


At the meeting, we reported on the frequency of severe hypoglycemia and the experience of harms related to low blood sugar in the TuDiabetes community (if you would like to read the full abstract that accompanied the presentation, you may find it here.). We found that more than one quarter (28%) of TuAnalyze users have had at least one episode of severe low blood sugar in the past 12 months (defined as a time when they lost consciousness, had a seizure, needed glucagon or medical treatment or help of other people due to low blood sugar). In addition, 15% of respondents had ever had a vehicle accident or serious injury related to hypoglycemia. 42% also reported that worry about low blood sugar affects their daily life.


The chart below shows the percentage of hypoglycemia survey respondents who report that they limit/avoid these daily activities in order to avoid low blood sugar and related consequences.

 

While the frequency of these reported behaviors ranged from 20-50%, they are even higher among the group of users who report at least one severe low in the past year.  Users with severe lows are also more likely to report ever having an accident related to hypoglycemia, and daily worry about low blood sugar.

 

Do these numbers surprise you?  Are these reports consistent with your own experiences?

 

The TuAnalyze team is preparing a full report on hypoglycemia, prevention practices, and diabetes care.  If you haven’t taken the hypoglycemia survey yet, the survey is still open and you can contribute your experiences to this research. You can find the survey by clicking here. If you have taken the hypoglycemia survey, make sure that your TuAnalyze A1c is up to date and that you have also completed the Care Overview survey and the two device surveys. These all provide complementary information that helps us to better understand glycemic control in the TuDiabetes community.

 

Once again, a big thank you to everyone who has taken part in the TuAnalyze project!  This research would not be possible without your participation.

Views: 1476

Tags: Boston, Children's, Hospital, TuAnalyze, hypoglycemia, survey

Comment by Sue R. on January 13, 2012 at 6:26am

Certainly, upon my diagnosis in 1968, the Joslin Clinic required weighing and measuring all protein and fat, in addition to carbohydrates.

Comment by Frank the Lege on January 13, 2012 at 11:16am

In the UK if you're hypo unaware you're supposed to report it to the licensing authorities. You should NOT be driving! The irresponsibility of some drivers is terrifying!

Comment by sophiaofthrace on January 13, 2012 at 11:22am

In some states in the US, it is marked on your license if you are diabetic, and you are required to carry something to treat a hypoglycemic reaction within reach if you are driving. I would imagine you could lose your license if you don't.

Comment by acidrock23 on January 13, 2012 at 3:59pm

If you figure how many tests/ day you need:
1) wake up
2) eat breakfast (these could perhaps be run together?)
3) go to work, although again, a hasty morning regimen could run 1.2.3 together
4) 2 hours after breakfast
5) before lunch
6) 2 hours after lunch
7) drive home
8) dinner
9) 2 hours after dinner
so that'd be 9 tests/ day. It should be MANDATORY that insurance companies provide that many test strips. Oh wait...it's also critical that people exercise so toss in a couple more, an even dozen? I don't think that's that common so that's what the problem is, not talking about the potential for accidents or the behavior of PWD...

Comment by susan on January 16, 2012 at 10:12am

great blog with uplifting story.from a young man who has lived with d for a long while..

http://diabetessuperheroes.blogspot.com/2012/01/introduction.html

Comment by Jane G on January 18, 2012 at 7:40am

Hello Sue R, I have a Medtronic CGM and find it a god send. I think you will find if you set it up to suit you correctly it will warn you of an impending low in plenty of time to do something about it. Mine is set so that when i get to 6 it starts to warn me, if after half an hour it is still going down it then alarms and vibrates and eventually suspends the insulin input.

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