It's happened again...this time was the most unusual. I could tell that I was getting low and my Dexcom was trending downward so I stopped into a place to get a burrito for lunch. I ate my food but before it had the chance to bring me back up I started shaking badly and sweating profusely. A man approached and asked if I was ok. As he was talking to me, I got up and attempted to my make way over to the soda machine to fill my cup with a sugary soda but it was too late... Next thing I remember paramedics, firemen etc... ugh. My threshold in going from low to seizure/passing out seems to have really decreased. I have a call in to my doc to figure out next steps...

Views: 509

Comment by Patty on February 22, 2012 at 5:51am

He won't use moderm technology. His doctor agrees with him. Tells him he will do fine with multiple sticks and giving insulin adjustments as needed with nph and humolog. One bad example of a low was, he tested at 215 at 11:00PM, and I discovered he was 26 at 4:00AM. He only takes NPH in the morning, I am convinced that somehow there is some NPH stored in his body, that hits in the wee hours of the night. This is a very common occurance. His doctor gives me a hard time with Glucagom prescription, also advises my husband that I am using it too much. Then why doesnt he push my husband to use modern technological devices. I know there is not much I can do, because I have been told over the years, that this is HIS problem, not mine, and he doesnt like me to be too involved. But this has effected me and my daughters who are now 15 and 20. I was thinking I would video tape the episode when Bob is at a low of 25 or so, and show how difficult it is to give him food. He thinks I should be able to wake him enought to each. I am scared he will choke, because over the years I have tried things like chocolate syrup, frosting, the glucose tubes, they all make him gag,and then throw up, mostly because he tells me they taste gross, when he comes to. The only think I was able to do, with much physical force was give him sugar water through an eye dropper, a little at a time, so he would gag, but it take about 45 minutes. IN the early morning hours, using this method also involved and lot him make very loud angry noises, sometimes screeming, which would wake the kids, over the years. Very stressful for my family, living in a small house, and then the dog chimes in. As you can see I am releasing all of this information finally to someone who might care or understand, why I choose to use the Glucogom shots, now that has been available and covered by my insurance in the last few years. Even though is cost $25.00 for 2 shots, I try to keep 6 in my house at all times.

Comment by garidan on February 22, 2012 at 6:49am

The video tape idea is good. You have to let your husband understand, and after that, change doctor: he is **@@!!
Are you sure your husband doesn't take more insulin than you know? It seems he corrected with humalog that 215 ... I don't think it can be NPH in the morning acting late.

50 years are a long time, but even if he is in good shape he has not a good control.
I understand it's hard to change your husband mind, that's way a video could be worth a 1000 words.
Does he know/talk with others type 1 ?

Comment by Patty on February 22, 2012 at 7:37am

His brother who is 57 has had it since he is 13, for 44 yrs, His brother has always ran high sugars, they use the same doctor. His brother has had eye laser surgery's stents in his heart a few years ago, and recently a quadrupal bi-pass. During the surgery he had a stroke that he lost all of his perifial vision, and is medically not allowed to drive any more. The doctor told my husband at a recent visit about his brother a1c history. In the 10's and 11's for years. what kind of doctor doesnt' act on that. That is why his brother is in the shape he is in. My husbands A1c is the 6 1/2 to 7, which is not bad.

Comment by garidan on February 22, 2012 at 7:57am

6 1/2 to 7 is not bad, but if you get it going from 20 to 200 it's not good: can lead to problems.
And if you weren't there when needed, your husband would be dead, with a good a1c but dead: did he ever say you "thank you"?
I see it happen to people I know, but I cannot understand how Bob can trust a doctor who did so bad with his brother.

Comment by Patty on February 22, 2012 at 8:09am

He use to thank me more before the glugacon shots. I will try the video set up. I will ask him what he thinks I should feed him today, so I am ready when he goes into shock at 3 or 4AM on any given day. I have told him over the years that he is very sensative to anything put in his mouth when he is in shock. I will have everything ready, the camera, the food/sugar of his choice. I will also set a timer so he can see how long it takes. I will let you know how it goes.

Comment by Scott E on February 22, 2012 at 6:13pm

If you can't convince him to try "modern technology" (which doesn't have to be a CGM... dumping NPH for Lantus would go a long way in helping fight lows... NPH is unpredictable and nasty; getting off of that was the best thing I ever did, even better than starting on the pump), perhaps your daughters can. It's hard for someone to see their children scared and feeling helpless, and it's also harder to say "no" to them.

Comment by Patty on February 22, 2012 at 7:46pm

I have heard a lot about lantus. Not sure why his doctor hasn't recommended that. It makes sense to me. I will try to convince the doctor and him to give it a try. I agree, that NPH is unpredictable. Thanks for you help.

Comment by brokenpole on February 22, 2012 at 11:43pm

Patty, a few years back I was using regular R and N for my control. I would have lows often usually several times a month. I didn't have the problems you husband does (I could eat food and not gag it was just getting me to eat). I finally got off R and N and onto Lantus. I have been on it for 2.5 years now and the lows, while not a thing of the past are certainly a lot less.

In fact I am up right now after correcting for being 45 and waiting to see if everything stablizes. First hypo of 2012. I onlt had two night time lows last year and none of them were so severe that I couldn't take care of them myself.

Good luck.

Comment by Patty on February 23, 2012 at 5:10am

Now if I can only participate in, and be a part of my husbands office visits, and be able to offer this information. Thanks again. By the way, I have another concern. Bob was invited to go the a convention with his friend, in April. Worried about the lows. He won't prepare his friend for this, since he never discusses it. No one knows what we do with our "silent disease".

Comment by Scott E on February 23, 2012 at 5:58pm

(With apologies to Brian, the original poster of this discussion, for turning it towards Patty). If he's going away for a few days, and assuming he and his friend have separate hotel rooms, perhaps he'd be willing to set his alarm and get up in the middle of the night for a BG test. I feel like he's not that comfortable with his diabetes even around you, his wife, but by himself he might be willing to do it, knowing he won't distract anybody and won't have to feel ashamed or embarrassed if things aren't ideal. I hope so.

Comment

You need to be a member of Diabetes community by Diabetes Hands Foundation: TuDiabetes to add comments!

Join Diabetes community by Diabetes Hands Foundation: TuDiabetes

Advertisement



REsources

From the Diabetes Hands Foundation blog...

FDA Docket Extended! We Need You.

If you are new to diabetes advocacy in the traditional sense of the word, you may be thinking, “What the heck is a docket!?” I certainly was the first twenty times I heard it (yes it took that long). For Read on! →

An Open Letter from @AskManny, @DiabetesHF to @NYTRosenthal, @NYTimes

Dear Ms. Rosenthal: I am a person living with type 1 diabetes since the age of 30. I am also the President and co-Founder of the Diabetes Hands Foundation, a nonprofit aimed at connecting and mobilizing the diabetes community. Seeing Read on! →

Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Heather Gabel
(Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator
Bradford (has type 1)

Administrators
Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)

 

LIKE us on Facebook

Spread the word

Loading…

This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information: verify here.

© 2014   A community of people touched by diabetes, run by the Diabetes Hands Foundation.

Badges  |  Contact Us  |  Terms of Service