Finally found an endocrinologist I think we can work with, so that's great news for us. Been trying to figure out the DOC - or "diabetes online community" - which I've been working on for over a year. I like TuDiabetes, which was my first venture into the DOC. Asked questions, got answers, felt supported.
I tried linking up with other D-moms & D-dads on Facebook. I found a "friend" in Kentucky who is active in JDRF & also has a teenage daughter who plays softball. I have asked her many questions & maybe I'll get to see her in person sometime. Otherwise, I'm basically a getting a bunch of D-news in my Facebook feed, which is somewhat helpful, but really not putting me "in touch" with others.
I joined Twitter. I started following D-bloggers, people with diabetes circles in their profiles, people who seem to be in the know. Once again, I'm just surfing through the D-feed. The DOC seems a little insular. (See what I did there?) The regulars link their blogs & their friends' blogs & re-tweet each other. Wow. A Twitter Clique. Tweet a question & you're lucky to get a response. I'm following 370 accounts & I have about 3 D-people who interact with me.
It's so hard to get the T1 diagnosis. I've wondered how my daughter must feel. I thought I could only compare it to the way I felt when I was pregnant -- my body was not my own, I had something inside which was virtually in control & I was just responding to its needs.
My daughter is about to turn 16, diagnosed at 14 with T1; it's something she tries to hide, doesn't want to admit or take care of in public. I know how she feels.