where to begin.just when i get the hang of things and get a schedule laid out for everyone,a preverbiable monkey wrench is thrown into my mix.
so a basic layout of my day.single mom.full time job.girl scout troop leader.gymnastics.pta and a room mom for the rugrats class.besides basic care for my daughter that sums up her activities.
my girlfriend (chas) has CF so add doc appts.breathing treatments.vest usage.and a regular menagerie of meds.not to mention hospital time when required for a "tune up" as we like to call it.one week in.then 4-6 weeks on IV at home.
ok so got it.i do.all laid out in one neat little hectic package.wrong.now add Type 1 Diabeties.sugar testing.insulin shots.not to mention trying to explain that the mountain dew that pretty much replaces blood for her,since she drinks so much,is bad for her.oh did i mention she smokes on top of her CF.try taking either of those two things away and you might as well cut my head off.when i do remind her of a treatment or other thing she needs to do medical wise,im greeted with a "yes mom".grrr.but yet after some heming and hawing she does it and i take a deep breath and sigh.
now her doc is telling her shes doing the diabeties treatments for a month on a trial basis.could she have been misdiagnosed.her pancreas is bad anyway.is she headed for any type of organ failure.can her insulin hurt her.just being diagnosed we havent even done a shot yet.her sugar is staying at about 127 and was told not to do a shot until it gets over 150.six tests later and shes not even close and shes still drinking dew (not as much) but still.i am a whirlwind of questions.i dont want to bombard anyone,i hope i can find what i am looking for on here.so i think im going to slow down to about 90 miles and hour and just enjoy the sound of her sleeping next to me tonight and w ait to see what tomorrow brings.

Views: 3

Comment by debb on July 16, 2009 at 5:30am
will she allow you to switch her mountain dew to diet dew? it would be a start. baby steps. you won't get her to change overnight. take one thing at a time. we will all be here to help and support you. i spent a year here at TuD before i would except that i had to cut my carbs. we all go through our life's changes at our own pace. all you can do is be there for her and be her cheerleader. she must be hurting terribly inside and giving up the things that comfort are the hardest.
as judith says, you are the best. don't forget yourself in all of this. take time for you so that you don't get sick as well.

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