2 year anniversary of islet cell transplant

I recently had my 2 year anniversary of my islet cell transplant. Its been a good and eventful year. Last year at this time, I was recovering from my first CMV infection. I did get over it with the help of the the antiviral Valcyte. Then, in January, I came down with it for the second time. The Valcyte did the trick again and I seem to be rid of it.

I had to give up on the immunosuppressant that had been giving me problems. It caused too many stomach issues and was probably part of the problem with the CMV. So, in January, I switched the Cellcept for Rapamune which I had been on before. I feel much, much better. Actually at this point in time, I have no side effects at all. I feel just great. The trade off seems to be higher blood sugars however. My A1c has climbed from 5.4 in January to 6.2 in April, and is now 6.4. That is still OK. My postpradials are going higher, but my fasting BS comes back down to normal or almost.

The rest of my lab tests are normal. I had some extensive kidney function testing during my July visit and they came back very good. I am continuing to feel wonderful. My energy level is probably the same as a non-diabetic. I've been taking advantage of my higher energy and fantastic summer weather by staying active. My husband and I bought kayaks for our anniversary and have been getting a lot of enjoyment out of them.

I have been doing some Diabetes advocating with the JDRF and am enjoying that. I plan to continue with that and also with the our local organ donation group. I keep my blog updated with the details of my experience. http://kathy-mynewislets.blogspot.com/

Views: 30

Comment by Brigid O'Donnell on August 11, 2010 at 6:27pm
Thanks for sharing your experience! It gives me HOPE!!
Comment by Kathy on August 12, 2010 at 6:15am
Thanks for your nice thoughts. I do feel like I am in a unique position to be encouraging about the possibility of a cure in then near future. I really haven't done anything but share my story. The researchers and transplant teams who work so hard to make this a reality deserve the credit.


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