2 year anniversary of islet cell transplant

I recently had my 2 year anniversary of my islet cell transplant. Its been a good and eventful year. Last year at this time, I was recovering from my first CMV infection. I did get over it with the help of the the antiviral Valcyte. Then, in January, I came down with it for the second time. The Valcyte did the trick again and I seem to be rid of it.

I had to give up on the immunosuppressant that had been giving me problems. It caused too many stomach issues and was probably part of the problem with the CMV. So, in January, I switched the Cellcept for Rapamune which I had been on before. I feel much, much better. Actually at this point in time, I have no side effects at all. I feel just great. The trade off seems to be higher blood sugars however. My A1c has climbed from 5.4 in January to 6.2 in April, and is now 6.4. That is still OK. My postpradials are going higher, but my fasting BS comes back down to normal or almost.

The rest of my lab tests are normal. I had some extensive kidney function testing during my July visit and they came back very good. I am continuing to feel wonderful. My energy level is probably the same as a non-diabetic. I've been taking advantage of my higher energy and fantastic summer weather by staying active. My husband and I bought kayaks for our anniversary and have been getting a lot of enjoyment out of them.

I have been doing some Diabetes advocating with the JDRF and am enjoying that. I plan to continue with that and also with the our local organ donation group. I keep my blog updated with the details of my experience. http://kathy-mynewislets.blogspot.com/

Views: 27

Comment by Brigid O'Donnell on August 11, 2010 at 6:27pm
Kathy,
Thanks for sharing your experience! It gives me HOPE!!
Comment by Kathy on August 12, 2010 at 6:15am
Thanks for your nice thoughts. I do feel like I am in a unique position to be encouraging about the possibility of a cure in then near future. I really haven't done anything but share my story. The researchers and transplant teams who work so hard to make this a reality deserve the credit.

Comment

You need to be a member of Diabetes community by Diabetes Hands Foundation: TuDiabetes to add comments!

Join Diabetes community by Diabetes Hands Foundation: TuDiabetes

Advertisement



REsources

From the Diabetes Hands Foundation blog...

Where are you Medicare? The elephant was not in the room

  This was the question burning in people’s mind and passionately talked about yesterday and today at the General Sessions of the AACE/ACE Consensus Conference on Glucose Monitoring, an event to bring together in Washington, DC all relevant stakeholders to Read on! →

#MedicareCoverCGM Panel Discussion

If you follow the diabetes online community, you know that #MedicareCoverCGM is a big deal. We have continued to raise awareness on #MedicareCoverCGM because we believe that ALL people living with diabetes should have access to continuous glucose monitors (CGM). With Read on! →

Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


DHF VOLUNTEERS


Lead Administrator

Bradford (has type 1)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)

 

LIKE us on Facebook

Spread the word

Loading…

This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information: verify here.

© 2014   A community of people touched by diabetes, run by the Diabetes Hands Foundation.

Badges  |  Contact Us  |  Terms of Service