So, last week, after seeing my numbers, which were basically 100% normal, my endo provisionally changed my diagnosis to T2, pending results from autoantibody tests. Well, those all came back. ICA2 was 2.9 (reference was under 1) and GAD65 was 165 (reference was around 3). Apparently, LADA patients are around 5-10 for GAD65, usually. So, crap, guess I am T1 - on 2 units of basal a day for months. No covering carbs since August. No idea what the hell is going on, and the endo is out of ideas as well.

Right now, I feel a bit like someone kicked me in the tender parts. You know what the odds are, and this is what I was expecting, but still . . . you hold out hope, and think, "well, just maybe . . . ."

And the worst part is, I'm stuck at work, can't reach my fiancee or mom, and can't just run off and disappear . . . .

I need a hug.

Views: 10

Comment by Emily Joy on December 8, 2008 at 11:42am
*virtual hug*

So sorry to hear about this. I can't imagine how fustrating this must be for you. So, does this mean that you're diabetic for sure... but without a clue as to what type? okay... you need another hug. *hug*
Comment by Dov on December 8, 2008 at 11:44am
well, it's definitely T1, but with that GAD65, I should have no pancreas left. He said he's never seen someone with those numbers do so well (A1C was 5.2. Yippie skippie!)

Thanks for the hug, though!
Comment by Emily Joy on December 8, 2008 at 11:47am
Wow, that's an aweosome A1C! That must mean that your average BS is pretty low, right? Eh... who needs a pancreas anyways, right? I'm only kidding. Anyways, I hope you guys get this all figured out. What's the next step?
Comment by Ron on December 8, 2008 at 11:50am
Mazel Tov on the great A1c!!!!!!!!!!!!!!!!!!!!!!
Comment by Dov on December 8, 2008 at 11:50am
Average would be around 102-103, I think.

As for next steps, well, wait until my pancreas craps out entirely, and then back on the injections, I suppose. We've been treating it as T1 all along, except that I couldn't tolerate short-acting insulin at all (it was dropping my sugars through the floor - how does 2-3 symptomatic hypos a day grab you?) So, essentially, it's a waiting game.
Comment by Sohair Abdel-Rahman on December 8, 2008 at 11:52am
With these positive antibodies,you have autoimmune diabetes caught early on.I have a four old boy with normal HbA1c,positive antibodies and with postprandial high BG if he ate high CHO meals.Because type1 is in the family,the mother caught him early.
Comment by Dov on December 8, 2008 at 11:54am
well, I had high sugars, ketosis, etc. at diagnosis, but then I seem to have hit the mother of all honeymoons. So in that regard, I'm lucky, I suppose - as lucky as you can be with this diagnosis . . .
Comment by Megan S on December 8, 2008 at 11:05pm
Hey Dov I've been watching you, because you seem to be going through similar things to me. So, I'm doubly depressed to hear that you're Type 1 because it means that I could be too! *hug* Hang in there! I know it's a big blow now, but I'm sure things will look up once you've gotten used to the idea.
Comment by Joanne on August 21, 2009 at 8:39am
wow, reading this is confusing. So you are now T1 but with an awesome A1C . Congrats on that. Keep up the good work. Will you be posting something about donating for Lois' computer ?


You need to be a member of Diabetes community by Diabetes Hands Foundation: TuDiabetes to add comments!

Join Diabetes community by Diabetes Hands Foundation: TuDiabetes



From the Diabetes Hands Foundation blog...

DHF receives $200,000 grant from Novo Nordisk

Grant given to support programs aimed at bringing together people touched by diabetes for positive change BERKELEY, CA: December 4, 2014 – Diabetes Hands Foundation (DHF) has received a grant of US$200,000 from Novo Nordisk to support programs aimed at Read on! →

Guest Post: World Diabetes Day 2014 on Twitter… sifting through the data

At Symplur we track hashtags, keywords, user accounts, and pretty much anything else on Twitter that has to do with healthcare. We collect the data and then build countless ways to slice it up so that we’re able to better Read on! →

Diabetes Hands Foundation Team


Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


Lead Administrator

Brian (bsc) (has type 2)


Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)


LIKE us on Facebook

Spread the word


This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information: verify here.

© 2014   A community of people touched by diabetes, run by the Diabetes Hands Foundation.

Badges  |  Contact Us  |  Terms of Service