Hello my name is Isaac and I've been type 1 for about 10 years now and i am 25 now. I never talked about my diabetes to well anyone in those 10 years, everyone i met with diabetes were much older than me and would only talk at me and never with me.My family were not the best at communication so pretty much when i got diabetes i felt like i was kinda left to my own devices, they gave me books and asked if i was alright every now and then. Also when i got diabetes i had a lot of people telling me about all the things i wont be able to do because of it. That was my support system for years so i have been trying to deal with this pretty much alone and i have fought hard everyday to prove all those people wrong by doing things they said i couldn't do! but i think i have finally reached the end of my rope and i need some support from people who know where i am coming from.

When i was first diagnosed i was scared but i did not tell anyone so maybe the whole no support thing growing up was a little bit of my own fault but i regret not doing a lot of things when i got diabetes because i was scared of how my sugars would act in new situations without me being 100% in control. lets just say i became so anti-social i turned down a girl who asked me out to prom cause i was scared about the after party and if they would expect me to drink. it really took me 5 years to finally feel confident enough to well live..

i was 20 years old and fed up with people telling me what i cant do so i started to live. In the pass 5 years i've been cross country at least 10 times, i've hitched for months lived in the woods (like an extended camping trip) lived in many states and met hundreds of interesting people.

I thought i was controlling my diabetes well i exercise, i eat mostly healthy, and i try to keep my BS stable. But in the last 3 months my health has taken a dive i have not been able to keep solid foods down for over 2 months now, only being able to drink protein shakes and yogurt.
It started as an intense nausea one morning i thought my sugars were super high or something so i checked my blood and when i saw really confused me. it was 101 but my body felt like it had a BS level of 400 so i checked my blood with other meters i have and pretty much all the same levels i scheduled an appointment but had to go to the ER before hand and they said i might have gastroparesis which the specialist immediately dismissed "no way you are too young for that you i bet its an ulcer" well after all sorts of tests cat scans drugs and an endoscopy he told me i was 100% healthy except that i am diabetic, and my stomach decided to stop functioning properly.

does anyone els have this, is there a way to ease the pain? i am really tired of puking. also i do not know if this is what a blog is supposed to look like but yea.

Views: 71

Tags: 1, hard, help, life, pain, support, tired, type

Comment by meee on April 28, 2014 at 10:28pm

Hi Isaac,

So sorry about your stomach problems.. did you have a full work up with a gastroenterologist? I'm sure there has to be a way to figure out what is going on and some way to help you to feel better. I'm sure plenty of people here can help you also. I hope you get this figured out and start to feel better soon!

Comment by Isaac on April 28, 2014 at 10:51pm

thanks and yeah i had a full work up. they pretty much told me it might go away in time.

Comment by Brian (bsc) on April 29, 2014 at 4:19am

Dr. Bernstein believes that gastroparesis is much more common than thought and that you can have it emerge after only a few years of elevated blood sugars. He writes extensive on the topic in his book "Diabetes Solution" and has a number of articles on his website on the subject. Bernstein recommends the use of an R-R Interval study to diagnose gastroparesis, a procedure that can be done simply and inexpensively in any GPs office. The problem is that many doctors are simply uninformed and arrogant and unwilling to perform the test. It would be worth trying to find a friendly GP who will just "humor you" by performing the test.

Comment by Marie B on April 29, 2014 at 7:04am

also, we have a gastroparesis group here

http://www.tudiabetes.org/group/gastroparesis

I've never heard of being too young for gastroparesis.

Comment by Isaac on April 29, 2014 at 3:11pm

i appreciate all the help i wish i knew about this site earlier.

Comment by curlysarah on April 30, 2014 at 6:40am

Isaac,

Belly problems just plain suck!! So sorry to hear about all of the pains you are going through.

I'd like to touch on some other things you talked about in your blog. TuD is and excellent resource for all of us that are D. We are a huge family of all kinds.....T1, T2, gestational, etc. But the bottom line is that we all understand and support one another. This is an amazing place to visit when you feel isolated and alone. But, also, it's a great resource for all kinds of information. After all, we know our diabetes better than anyone.....right?

I would encourage you to check out everything that we have to offer. The chat room is a wonderful place to meet new people, make friends, and ask all kinds of questions.

Good luck, and know that you're not alone.

Sarah

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