On Wednesdays I work from 10am to 8:30pm.  When my husband goes to work in the afternoon he takes the kids to my moms house.  Chloe changed her set this afternoon, after lunch, and apparently, her BG consistently went higher after that.  However, I was not made aware of any of this until she is sitting at a restaurant with my parents, ready to eat and her BG was 369.  She then informs me that she hasn't had anything to eat since lunch and her BG as even gone up from her 2 hour check.  She doesn't have a site change on her and neither does my mother.  I don't want her eating until she gets her site changed because there seems to be a blockage or tube malfunction of some sort.  I'm frustrated because she's 10 and I've told her again and again to move her site around because she  is creating scar tissue and when she keeps putting it in the same spot the insulin isn't getting through.  I'm frustrated because I haven't thought to put a site change and extra tubing in her purse so she has that on hand.  I'm frustrated because NOBODY called me when she was high 2x before in the afternoon and she hadn't even eaten since lunch and the second time was higher than the first.  But the number one thing that frustrates and saddens me the most is that she has to go through and deal with any and all of this AT ALL!  As I was on my way to the restaurant to pick her up so I could take her home and get her straightened out, I fought back tears because I don't want to take it out on her, she's 10.  How many 10 year old's have to sit and wait at a dinner table and not eat because their BG is high and it needs to get corrected.  Why did life have to throw this at her?  Why did she have to be diabetic, why couldn't it be me? As a mother, I just want my kids happy and healthy, and if they have pain of any kind I just want to take that away.  I can't take this away from her, I can't "kiss it and make it better" like I did when she was little.  On top of that, I have NO ONE, other than my husband who's at work right now, that i can call and just cry......and that totally gets why I'm crying.  So, this is the reason for this blog post, to cry, to vent, and not be asked 50 different questions about what tubing is and whats BG and what happens if she eats anyway if she's 369 and you don't know why....so, whoever reads this, thanks for listening. :)

Views: 11

Comment by Robert G on December 29, 2010 at 4:37pm
Wow, I am sorry about that mess you are in right now. She is 10 and doesn't deserve  to have this disease no one does.. It sucks really really bad!! You know how to fix it and she will to, you are human and we all forget. trust me.. I have been on the road on my bike and drive over 20 miles back home because i forgot to put on my pump after i got out of the shower... There is no need to tell you what to do.. you know what to do.. I am glad you are here.. You can talk about it here.. Thank you!!
Comment by The Diabetic Welfare Queen on December 29, 2010 at 5:20pm
*HUG*
Comment by Gerri on December 29, 2010 at 6:18pm
Vent away!  We understand. No child & no mom should have to deal with this. If only mommy kisses could make diabetes go away. Hugs to you & Chloe.
Comment by GinaY on December 29, 2010 at 9:00pm

Yea, and when BG is 369, a diebetic feels hungry, especially since she had not eaten in a while-no proper diabetic snacks--so I'm sure that was tough for her to be in a restaurant..so of course you felt bad for her, it was not a good situation at all. Not to mention how aweful it feels to be at 369. No wonder the whole thing upset you. 

It sounds as if other family members do not quite get the serious implications of diabetes and the regular attention your child's health depends upon now, certainly not the way you do. You need team support rather than to be Chloe's sole cheerleader. I get how alone that probably makes you feel because my non-diabetic family really just doesn't get it at all, but I'm trying to be patient with them and slowly educate them.  

But here is the main thought I had when I read your post: Mothers, moms, mothers like you are so wonderful. I was 45 when I got D, I had just lost my wonderful mother. Even though I was 45 all I wanted was my mom! Fortunately, all the loving care, words of wisdom, and the example she set, help me deal with this stupid D every day. Chloe is so lucky to have a mom like you! You are her number one guardian angel. And when she becomes a young woman, and she takes more control over her diabetes, and its not so much on you as now she is just a child, it won't matter...because you'll always be the most special wonderful person in her life. You're a great mom! 

Comment by Lorraine on December 30, 2010 at 5:56am
So sorry. Hugs to you. It's not fair.
Comment by brnyrbr on December 30, 2010 at 8:47am

No it's not fair.

 

Venting is a good thing.

I hoped it helped

Comment by brandi on December 30, 2010 at 11:57am

Wow that must be very frustrating for you! Since I'm not the mother of a diabetic (actually I'm not a mother at all unless your counting  taking care of my animals lol) I can't really relate. But, being a teenager, I suppose I still have an opinion about everything :)

 

My parents never kept me from eating because my blood sugar was high. Occasionally I choose not too because when my blood sugar is that high, I'm just not hungry, but food is always an option. I guess my parents thought it was unhealthy to skip a meal or something like that. I really don't know their reasons...

 

I suggest Chloe carry an extra site change, as well as a spare syringe or two. That's what I do. When my blood sugar gets to be over 300, I'll use the site change and instead of correcting by pump, I do it by shot. It tends to work a bit faster than the pump. Also, I'll disconnect from the pump and tell it to give my correction, so then later when I re-check, I can look at my pump and see how much IOB I have. It helps keep me from taking too much insulin and crashing.

 

Try talking to your family and telling them that if Chloe's blood sugar goes above or below a set number, that you MUST be called. My parents did that when I was younger. When I got my own cell phone, it became my responsibility to call them when my blood sugar goes crazy. When it does become her responsibility to let you know, just know that occasionally she'll either get lazy or forget. I do it all the time. Hey, we're just kids. We're not perfect :)

 

Hope I helped in some way, shape, or form!

Comment by Lori on December 30, 2010 at 12:11pm
Thank you everyone for your comments.  I did talk to Chloe about calling me from now on, just like she does at school, when she is high two times in a row so i can correct any problems before she sits down to eat.  Also I did give her a site change and extra tubing to put in her purse so she has that on hand.  I was mostly frustrated at that moment with the situation and Diabetes in general.  I'm sure it won't be the last time I'll be frustrated but sometimes it just gets to me.  Thank you all for your kind words, it really does help. :)
Comment by Brunetta on February 6, 2011 at 5:00am
I know how hard it is for you to see your little girl not be able to eat. And she was probably SOOO hungry. Can you always ave a syringe or insulin pen on and in your purse of with your daughter? . She can disconnect the pumo if it obviousl is not giving her any insulin, and use brandi's suggestion about insulin on board. to correct with an injection. Do get the grandparents/caretakers more informed about how important it is to check her blood sugars and notify you if something is awry. They probably just do not know how dangerous it is. Please go over with them how seious a condition that diabetes can be with the highs and lows form insulin management. Many people only have type 2 friends who are not on insulins and may not test as much as you HAVE to, so they really do not know abou the severity of blood sugar sswings in those using insulin.And by the way, I live in Columbus, too.

God Bless,
Brunetta
Type one 43 years

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