So over the past 2 weeks my gastroparesis suddently got really bad. Constant nausea and along with lack of bowel movements. I have been taking laxatives and those dont even seem to work. I think this disease is more frustrating than the type 1 diabetes Ive had for 25 years. I will take any advice any of you have and would love to hear from others who have gastoparesis. Now its at the point its affecting my life because I dont feel good.

So, just to update this, I went to a new G.I. Dr. who also confirmed from my symptoms it is gastroparesis and put me on three meds 2x a day which is reglan, prilosec, and a rx laxative. I am hesitant about taking meds I have had some side effects from them even after just being on them for a few days such as headaches, slight dizziness, and wierd dreams. I know reglan is the rx with the biggest side effects but im only on 5 mg each dose. Is anyone else on this rx? I must say though I had slight stomach pain once over the past few days but nothing like I was having.

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Comment by Trudy on February 2, 2013 at 5:21pm

Hi Priscilla. We have a group that might be of some help to you: www.tudiabetes.org/group/gastroparesis. Also, perhaps your doctor would send you to a gastroenterologist. Good luck.

Comment by Dee Meloche on February 3, 2013 at 9:54am

So sorry about your gastroparesis.I have this condition too and I know how uncomfortable and sick it can make you.I am taking Domperidone Maleate and my symptoms are now gone.I have been a type 1 for 27 years.I find that chewing really well and several small meals throughout the day helps.I hope this helps.Good luck!

Comment by lotsofshots on February 3, 2013 at 10:45am

I have these types of problems too. I am taking Zofran, Colace, Miralax, and a probiotic reccommeded by the doctor called VSL#3. I bought that from the health food store and it needs to be refrigerated. The doctor told me to stop all foods with gluten, dairy, and greasy or spicy foods for now. I find that buying a fresh ginger root, and pouring boiling water over it, and steeping it for tea is helpful, and some anise seeds raw, chewed slowly help with acid reflux and leave a nice, fresh taste in my mouth. I am staying away from caffeine, high carbs, proccessed food, and nutrasweet as well. I am drinking three liters of water a day, and when I am hungry eating small meals more often.

Stomach pain is very stressful and can make you very tense. I try to stay calm and work though the pain. I listen to soothing music, guided meditation vidoes, and I try to do slow deep breathing, and imagine my intestines relaxing, and that really does help too. I pet my cat a lot for stress relief.

Try not to lay down too much, prop yourself up if you have to, especially after eating, and let gravity help things along. If you are up to it, take a slow relaxing walk and breath in the fresh air to improve your circluation.

I am so sorry you are feeling poorly .It hurts a lot, I know, but it will get better. It is hard not to feel scared and start thinking you will hurt forever. That is simply not true.  Think calming peaceful  thoughts, and look at lovely things, like a beautiful stone, a treasured  item, or  a beautiful scene. Use your imagination, see yourself whole, healthy and well. Feel better.Lots

Comment by Brian (bsc) on February 4, 2013 at 5:18am

I'm sorry to hear about your troubles. Dr. Bernstein has an extensive discussion of gastroparesis in his book and has a bunch of articles on the topic on his website. He has quite a number of recommendations, things like medications, papaya extract, massage and exercises. It is interesting to note, he does not suggest a laxative.

Comment by Gerri on February 11, 2013 at 2:24am

I have gastroparesis also & live in fear of it worsening. I hate it more than dealing with diabetes. So sorry for what you're going through. Afraid I can't offer help with meds, but know you how feel.

I'm careful about what I eat & can't handle large meals. Red meat's a challenge, so I only eat it in stews, soups & in any way it's slow cooked. Fish & poultry are far easier for me to digest. Pickled foods, which I love, are the simplest for me to digest. I eat a lot of eggs. Make my own protein shakes also. Though raw food's a no-no, I eat salads.

Comment by shoshana27 on February 11, 2013 at 6:26am

hi priscilla, reglan made me very sleepy & prilosec did not agree w. me or did not help.
i take PHILLIPS PRO-BIOTICS & PSYLLIUM HUSK...that helps me.good luck.

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