Hello all, I am excited to share my news with you in hopes that it might help someone else who is confused about their diagnosis not correlating to how they present. I spent the last five years diagnosed as at first as a type 2 diabetic (very active weight 120lbs ht. 5"4) placed on pills, byetta, januevia, metformin and glipizide, I felt terrible, had many lows that lasted for hours, lost weight and felt dizzy and out of sorts for those 3 years!!!!! THEN I was diagnosed as a type 1 in the honeymoon phase, my c-peptide showed I was a type 2 and my glipizide was increase to 40mg daily!!!! I felt drunk all the time, dizzy and could hardly function. I cut my dose way down and felt better, and may I remind you that my glucose numbers were higher with the more meds I used. I later found out that the doctor performed the c-peptide test incorrectly. Then I changed doctor's were I was placed on Byetta, wow talk about severe, severe abdominal pain, doubled over with blood in my stool. Seriously I thought I damaged my liver! Called the doc to tell her my stools had blood then were completly pale in color but she said she was not concerned!?!?! I asked for blood work to check out my liver but she would not do it. So I quickly stopped the Byetta and my symptoms went away. Then my fourth Endo diagnosed me as a type 1 placed me on Lantus and Humalog. Well one thing I can say is that I picked up the weight I had lost (119 to 109lbs!) Thought I felt better, then almost a year of high's and low's and feeling so out of sort's/nausea/popping sugar tabs all the time. That was a very rough several months, it took something away from me, my self. So the second year on insulin I did a little better but my menstrual cycle was so irregular, I had bad PMS, which I have never had before. Every month during my period I would get severe hypoglycemia symptoms and came close to passing out, this became a routine monthly event, although I never did pass out, the feeling like I was going to die (with a normal glucose number) was really not a fun thing to endure. Yes I did talk to all my doctor's about these symptoms and that I never fit any diabetic classification. When I told one doctor that I was losing weight on Januevia/Metformin and felt so hungry all the time, my hair was brittle and breaking, she said to me. "that's just you"!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I told another doctor that I got severe chills and felt very whoozy when I bolused insulin (with normal numbers) she and her nurse told me to stop, calm down and drink a glass of water!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! You know, I am a critical care RN, no anxiety disorder ever, no depression ever, never a hypocondriac. So just around 2 yrs on insulin, I found out that my niece who was diagnosed at age 7 supposedly in DKA or leading up to DKA on insulin until she was genetically tested at age 15 because she had normal A1C all along, had very little and a lot of time no need for insulin, and low and behold she is a MODY 2, I then spoke to my doctor and told this to her and she told me that I was a type 1 or a MODY but the treatment was the same, This is a Stanford hospital MD, and she specializes in diabetes. A few months later I found a website from the UK that explains what a MODY 2 is, I read it, and contacted them, just got my genetic results last night and yes I too am a MODY 2. What is MODY 2??? well it is not diabetes! It is called congenital hyperglycemia. It is where the glucose sensor Glucokinase (which determines when to give your body glucose or insulin). Is genetically mutated on this gene CGK or Glucokinase that causes the sensor to be triggered off at a little higher glucose number i.e 120's to 130's, it varies but I am told that a glucose fasting can be up to 140's. So your body responds just like everyone else, I get glucose when I need it, and I get Insulin when I need it. But the little higher number trigger's off the sensor. THIS IS NOT DIABETES. Most doctor's do not know about this or they are confused and do not have enough information to feel comfortable to not treat this. There is no treatment for MODY 2, they have the same risk as everyone else to get type 2. There are actually eleven different types of MODY, the most common is MODY 3, which does require treatment, but my understanding is that no MODY needs insulin, they treat with a type of pills called sulfonyurea's such as Glipizide at a low dose. The other MODY's are uncommon and a handful on them have only been identified in a couple of families. MODY 2 is the second most common and most people that get diagnosed find it on a routine blood test, remember these people have MODY 2 from birth! Pregnancy however it comes out and a lot of times they do need treatment, But after pregnancy they do not. I wish I would have know about this, my deterioration with my health, body, emotionsl has declined since being on these meds, and I do not get these years back. I have been off my insulin pump for almost a month and my numbers are one teens to one forties, no matter what I eat. My numbers were high on the insulin. Please if you do not fit the bill like me, thin, fasting numbers always in the 120 to 130 range, A1C never higher than 7.2, , negative GAD antibodies, normal range c-peptide test, etc. and other family members that fit that description, please be persistent, my doctor did not test me, I did that on my own. Come to think of it, they thought I was diabetic when I was younger around 12, they did a lot of blood test back then 1982, and said I was a bad eater. Now I know that I am not crazy and will look forward to a much improved quality of life. I feel blessed to get the right diagnosis. Denise