Learning From Each Other, Finding Common Ground


Transcription of the audio from the video
In recent times, emotions in our community have been stirred up. Very strong expressions from "across the aisle" that appears to divide type 1 and type 2 diabetes have come up.

It is a fact: type 1 and type 2 are different conditions and there are even more types of diabetes. All have their things that make them unique and more challenging for some people and perhaps not as challenging for others. There are those with splendid A1Cs among people with type 1 and type 2 alike and then there are those that struggle controlling their blood sugar levels in all groups.

To those who have grown up with type 1 diabetes:
As a kid you certainly had to live through things that children without diabetes don't have to worry about. As an adult with type 1 (like those with LADA), you ALSO face the very real short term risk of DKA, the fear of going low in your sleep and the concern of running out of insulin, among other daily challenges.

To those who live with type 2 diabetes:
You have come to experience life with diabetes at a later age. The negative stigma from the media, the finger of blame putting the burden of guilt on your shoulders possibly keeps you from talking to others about your diabetes. It is a well documented fact that you can help keep your blood sugars in check largely through diet and exercise. Yet, we all know that changing our lifestyle can be one of the hardest things to do for an adult and it is sometimes not enough.

These are different challenges and concerns, different outlooks and different ways to live. And they differ even more depending on what country you live in: the reality of people with diabetes of all types in terms of availability of treatment and education can be dramatically different outside of the developed world. But at the end of the day, regardless of your type of diabetes, whether you live in the US or the Philippines, we are ALL trying to keep our glucose levels within the normal range. Because not doing so will have an impact on our lives sooner or later, preventing us from living a full life with full bodies until our times should come.

There are SO many things being discovered every day about all types of diabetes. Yet, there is SO much to be learned. For example, new genes are being found to be connected with type 2 diabetes and there is growing evidence that insulin resistance causes weight gain and not the other way around.

What if the way we have been informed about type 2 diabetes all this time were wrong? What if our assumptions about what life with type 1 diabetes is like make us fear insulin-based therapy when it could be a way to improve our control? Would it make things different? I don't know... but this is just a way to say, what we think we know doesn't give us the right to do some of the things that have been said about the "other" group in the community.

Does this mean we should avoid discussion? By no means. It means to make a conscious effort to LISTEN. It means to accept that others will have a different point of view. It means to respect each other so we may find common ground. And it means to learn from each other and to help one another as much as we can. Why? Because at the end of the day, we REALLY are all in this together, far more than you would tend to think.

We all joined the community for different reasons: some came looking for general information about diabetes or to learn about something specific. Others came for support or even as a way to come out of the "closet" where they'd been for many years, not talking about their condition. The truth is that we are ALL touched by diabetes, including those around us, our family, friends and caregivers.

So what do I suggest we do?
1) On one side, we all know that the vast majority of patients have type 2 diabetes. Yet most of the activism and awareness raising comes from people with type 1 diabetes. ALL of you with type 2 diabetes: I invite you change this! Learn even more about your diabetes (sign up for a class with diabetes educator, pick up a book -I recommend Jenny Ruhl's Blood Sugar 101 and Gretchen Becker's The First Year Type 2 Diabetes), start a blog about your life with diabetes (on TuDiabetes or anywhere else you want), talk to people in your local community about it, when you read an article that misinforms people write to the journalist, contact the editor; organize activities for World Diabetes Day (there is a group you can join for this in TuDiabetes)... in short, get active and help make noise and raise awareness about diabetes.

2) On the other side, members with type 1 diabetes typically have lived with it for a longer time. And due to the requirements imposed by insulin-based treatment, on average people with type 1 diabetes are almost forced to be better educated about diabetes than people with type 2 diabetes (not always, I know, but often).

What if those who have accomplished better control of their diabetes through educating themselves more about it (type 1 and type 2, alike) focus part of their time in the community helping others become better educated about their diabetes? It can be done in a way that is non-invasive yet very helpful. Look around the nearly 10,000 members in the community, find someone who has joined recently or someone who hasn't been too active. Become friends with them: introduce yourself, tell them a little bit about you and ask them how you can help. Offer to be there and be ready to be surprised: not only will you be able to make a difference in their lives and their health but you will likely learn from others in the process.

3) All of us, there is a project under way to develop a compilation of essays based around the experiences of people living with each type of diabetes. This will be a great way to build bridges and continue to raise awareness. This will be an an opportunity for ALL people touched by diabetes to share their stories with the goal of increasing understanding of the various struggles we face. If you want to be a part of this project, please contact Kristin, one of our Administrators, as she is coordinating the recruitment of the team to be involved in this project to make sure all voices are included. This way we fight together our biggest common enemy: ignorance and lack of awareness. You can also participate in the discussion titled "Contemplate, Relate, Educate - share your perspective!" started by MelissaBL and now featured in our Forum. We will be pulling from both places to compile everyone's contributions.

4) Last, I invite you to read the blog I link to from beneath this video. It is titled "The Four Agreements". These are four principles that will come in handy as we walk through the coming times, trying to find and foster the things we share, while we acknowledge and respect those things that make us different.

Views: 148

Tags: agreements, community, connection, type1, type2

Comment by Patti Burns on June 13, 2009 at 10:08pm
I'm so glad you broung this up, cause I had stubble across some of the members saying things like I'm only here for type 1 or vice versa.

That had put a knot in my stomach, cause I've always been for all types. Like you say...read, learn, educate, bond and you will see no difference that we all suffer together with this disease. WELL said, Manny. Others can learn from you all the time, I also learn new things from you, thanks for bringing this up. Patti
Comment by Marie Torregrosa on June 15, 2009 at 6:32pm
Gracias Manny!!!! Has hecho un gran trabajo...well said. Thank you for all your hard work and commitment to the issue. Tu Diabetes has given me a "voice" and I hope to continue using it.
Comment by Mayumi on June 18, 2009 at 5:02am
Thank you Manny. As a Type 2 diabetic I am extremely grateful to a kind and compassionate Type 1 diabetic who took the time to answer many, many questions I had about diabetes. If not for him I don't know where I would be today.
Comment by Cathy Jacobson on June 19, 2009 at 8:06pm
What if the information gained from studying type I or II helps the other? What if the cure for type I could also be used by people with type 2 to gain some relief from this disease. Do you get where I am going? yes we have all lived lives that are different, yet we live lives that have something in common. We should be working together to get the word out, to get to legislators for funding for studying and coming up with better meds, etc. And finally, what happened to supporting each and all? Why not? When I walk into a room filled with diabetics, you know what, unless there is a dress code, I can't tell the difference. Why is there one here?
Comment by Sarah Keech on June 19, 2009 at 10:50pm
You haven't noticed the insulin pumps on type 1s?
Comment by Cheery Love on June 20, 2009 at 12:09am
what do you mean???
Comment by Lois on March 11, 2010 at 8:38pm
Manny:

Here we go again! Misunderstanding. I agree with you in the most part but I don't agree that T1 and T2, etc. are are different diseases. Just like the T1, I require insulin. Just like the T1, my pancreas is pretty well shot. Maybe it's a simplistic view but in all cases of diabetes, the pancreas is the little devil creating the problems. Either too much or to little insulin sends our bodies over the edge. I believe that they are all one part of the "family tree." One base but different branches. We're too alike to be an elm when we are all really birches. Do you get what I mean? I'm not saying that one type is better or worse than the other. For example, as you briefly touched on it, the average T1 has had to handle it since childhood. Therefore, they have had less time to develop bad food habits. The average T2 usually develops in adulthood .... a whole childhood and teen years to develop the worst habits and, thus, harder to combat the beast of food in order to bring their disease under control. A lifetime of habits to eat away at our self esteem.

As for me, I agree Cathy Jacobson. When I walk into a room of diabetics, they all get the same sympathy, love and understanding from me and who the heck cares what type they are. They are human beings sufferring in many different ways and my job is to share as much of myself as I can to uplift even just one soul.

Lois
.
Comment by Virgil Elvin Bowman Jr. on March 11, 2010 at 11:01pm
At the end of the day every D has one thing in common: the need to keep bg in range. To me, it's not ok to judge other Ds, no matter what type they are. We all have struggles that are cruel and relentless, and that makes us more alike than different. Take very good care friends. See y'all online.
Comment by Christalyn on March 12, 2010 at 1:46am
You posted this very same video on my discussion about Type 1 and Type 2's being the same. From some of the comments based on that discussion there is still alot of misunderstanding and sibling rivialry among the types. I noticed a separate but equal attitude among some of the bloggers. Manny, not all Type 1's share your compassion about both types which is somewhat sad. Perhaps there should be more communication between folks instead of a Hatfield and McCoy rivialry.
Comment by Doris D on March 12, 2010 at 7:05am
Good points Manny I hope that we're all here to help each other!

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Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator

Brian (bsc) (has type 2)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)

 

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