I'm sure like many of you the signs started the same way. My little boy, at 21 months, could drink me under the table. If it was wet...he would drink it. He would steal my drink, his brother's drink, his babysitter's drink...it didn't matter. My little guy would cry and beg for drinks. Of course, the wetting soon followed. He needed to be changed more regularly and 2-3 times per night so that he didn't wake up soaking. I told myself that I would watch him just one more week to see if things improved before I took him to the doctor. Needless to say, diabetes doesn't go away.
My husband and I took our baby, Eli, to the doctor on Saturday, December 12th. The doctor spent literally two minutes with us. I explained what was going on and why I was concerned. The doctor said he was not losing weight and that he did not feel it was what I thought it was. He offered no alternative causes and said "to make you feel better we'll schedule a blood test for Monday". Sunday night Eli started vomiting. His father took him for a simple finger prick the next morning. Within two hours the results were in...a fasting blood glucose level of 600. We spent the remainder of the week at Children's Hospital in Pittsburgh (a fabulous hospital!) and were given a crash course as to how to care for our baby.
We've been home about three weeks now, but the questions are all the same...I don't get the food thing. They have us watching carbs, but also feeding certain portions of fruits, veggies, proteins, milk, etc. The schedule is hard, the injections easy (thank the Lord that he is going with the flow), the lows freak me out, the highs don't concern me as much as they probably should. The realization that this will be the rest of his life (and ours with him) is difficult. The facts are hard - that he can't yet tell me that he doesn't feel well, that we can't sleep through the night, that I'm angry at all of those parents that talk about fearing finding their kids dead in their beds in the morning (a thought that never occurred to me until I read their words) and on the list goes.
I know that there is no cure yet, but I am more than happy to have a healthy little boy while we move a step closer to its discovery. I know that there are many situations we have yet to face (ex. vacation, birthdays, school), but we are taking baby steps. I know that the risk of my other children developing diabetes is rare, but I still fear that it will happen. I know that someday he will ask me, "Why me", and that I won't ever really have an answer. I know that this "new normal" isn't yet comfortable, but that it will be.
I look forward to the support offered here and being able to learn from all of your experiences. I imagine we will begin to live more for each day as the focus is on just getting through it. Here's to my son, to finding a cure, to hope, family, support and loving life despite the diagnosis.